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my son was diagnosed with acid reflux as an infant

donavan's*mommy

donavan's*mommy

Monday, January 19, 2009
View All of donavan's*mommy's Posts
Hi! I am a mother of 1 child who is 21 months old, and was diagnosed with acid reflux as an infant. He had symptoms of throwing up after only a couple ounces of formula, gas, tummy aches, and drooling very badly before and after feedings. Our pediatrician prescribed zantac for the acid reflux. I was ...
  1. just a thought
    Anonymous
    Monday, January 19, 2009 at 03:56 PM

    have you had him tested for food allergies?  Also you might try feeding small amounts more often.  Is it possible he is over eating at his feedings?  If not, I would also get a second opinion with a different doctor.

    Reply
  2. Untitled Comment
    Sonja P
    Monday, January 19, 2009 at 04:04 PM

    Hi, every time when I hear that parents and children go through this phase of suffering where no one can help them with solutions it breaks my heart. I am a mom like you and it took me 4 pediatricians and 3 ped GI's to finally get the kind of attention that my little boy deserves. I am not an expert and I certainly am clueless about kids over 6 months of age because my entire experience is based on on my only son who is now 6 mo old and suffers from GERD.

     

    However, one thing I know from my experience is that you have to ask the right set of questions in order to get help from your doctors.

     

    Has your pedi ever checked your child for milk and soy protein allergies? Lactose is a sugar, not protein. Most kids do not have lactose allergies but instead "protein allergies" and show many of the symptoms that you are describing. Can you insist that his pediatrician checks him for those? Simple stool and blood tests can reveal protein allergies.

     

    Alternatively, have you tried giving him amino-acid based formula such as Elecare? Please, ask your pedi if you can at least give it a fair try. Fortunately she doesn't even need to write a prescription. E-bay has some Elecare Vanilla flavor cans at great prices. The one with Vanilla flavor is approved for kids above 1 yr old. Try it for a week and if the symptoms go away you would know for sure that your kid has protein related issues. Read the mixing instructions carefully, they are different for toddlers.

     

     On the other hand if it is reflux and it's still bothering him, you need something stronger mediaction than just Zantac. Most Dr. would refer you to a pediatric GI specialist who would try prilosec or prevacid (both are very safe). However, you need to ask your pediatrician to refer you to a specialist, if she cannot help you find a solution.

     

     One final question: are you giving him vitamin supplements? Or rice cereal with added iron? There are many doctors who do not agree that iron is a culprit but there are many other doctors (such as our new pedi) who are willing to try out and check by "elimination". Eliminate all iron for a short time (1 week) and see if symptoms go away. If your child has mild iron intolerance, there are associated gastric symptoms and your pediatrican can recommend him a low iron diet but supplement his needs by using a "gentle iron" or what is called a "chelated-iron" supplement.

     

    Ask questions, give suggestions and insist the doctor you need more active participation from her. If she seems unwilling to listen or is too busy, go ahead and look for a different pedi who is willing to be more open about this. Good luck and do keep us all posted. Hope your son feels better soon.

     

    Reply
    re: Untitled Comment
    Anonymous
    Monday, January 19, 2009 at 04:26 PM

    I have wondered myself, is it the milk, or is it this , or is it that, and i have eliminated everything 1 at a time. He has never had an iron deficiancy, but i was giving him flinstone vitamins whenever i didnt feel like he had eaten enough. there are times when he won't even eat dinner. i have been wanting blood work done, and other tests done but they feel like they are unnecessary. He has no problem gaining weight, in fact he is 21 months and wears 2 & 3T clothing most of the time. He doesn't appear to be overweight, and the dr.s have never said anything to me about his weight, so i wouldnt think his weight is the issue, and he doesn't eat a lot at 1 time. for breakfast he eats a cereal bar or fruit (such as blueberries, banana, or apple)., for lunch it's fish sticks & green beans, and dinner is most of the time fish sticks. I can hardly get him to eat anything but the fish sticks most of the time, and dont know if that is what is causing the problems. im at a loss! i have no idea what else to do! i have been to a few pediatricians, but half of them seem "too busy to care" because they have so many patients.

    Reply
    re: re: Untitled Comment
    Sonja P
    Monday, January 19, 2009 at 08:18 PM

    I know exactly what you mean. The pediatricians are either clueless or busy. I am going through a similar phase where two of our pediatricians let my kid slip on his growth charts and actually helped worsen his feeding problems. You just need to do an extensive research in your area and ask friends who have gone through similar issues.

     

    Vitamins might not be good when your child is not eating well, instead ask your doctor if pediasure (not pedialyte) might be right for your baby. Your child needs certain amount of liquids and certain amount of calories, and your dr should tell you how much.

    Reply
    re: re: re: Untitled Comment
    joellar
    Monday, January 19, 2009 at 08:34 PM

    yes i have been down that road already! i spoke with the pediatrician today and was trying to get some info from him and the only thing he would say is just bring him in b/c I haven't seen him in a while, and i told him he has also been seeing another dr. because they wouldnt prescribe him antibiotics after he was sick for the first 7 months of his life w/runny nose, fever, cough, vomiting, & diarhea. i live in the memphis area, and if anyone knows a good pediatrician around here please let me know, i am open to try just about anything right now! it has been a game since the first day he was born & i am really exhausted with it! i give props to people out there with children who are much worse off than mine! i dont see how anyone can do it! & i have only 1 child!

    Reply
    re: re: re: re: Untitled Comment
    Jan Gambino
    Sunday, January 25, 2009 at 08:34 AM

    Hello!

    I hope you are able to find a doctor to help you develop a treatment plan. It all starts with going to the doctor for an evaluation of symptoms and review of the history. I keep a journal of the symptoms and every time I go to the doctor, I write in the date, what the doctor said, weight, height, medication, etc. You might want to think back to all of the illnesses and treatments he has had so far. Often the doctor does not look all the way back for the past illnesses and treatments. If I am going to a new doctor, I have a one page summary of all illnesses: ear infections, colds, flu. This will help you to remember all of the important details and help the doctor get the full story.

     

    Jan Gambino

    The Reflux Mom

    Reply
  3. allergic to cream in cow's milk
    anninette
    Saturday, February 07, 2009 at 06:47 PM

    My son had the same symptoms and the pediatrician said he was allergic to the cream. After I gave him skim milk he was ok.

     

    Reply
  4. Acid reflux
    Anonymous
    Friday, October 09, 2009 at 03:22 PM

    Hi! I am mother of a 7yr old , when my son was about 3wks he started projectile throwing up. My doctor tested him for acid reflux, they gave him and xray while he drank some special drink. Well we found out the his lower esophageal sphincter (LES) muscle wasnt fully developed. So the put him on a medicine and it helped keep it down and they said in time it would develop and he would grow out of it. So it did until  this year and it has gotten bad. We are waiting to see a specialist to see if he will need surgey on it. So what i recommend is having them do the xray and the special testing and find out now because it is very stressfull. My son was playing football and a very active boy but now he is limited to what things he can do cause he will spit up and its like the way you discribe your childs spit up. He has been getting sent home very day from school because of his acid reflux. So if you can try your hardest with the doctors to figure it out cause its sucks to see them suffer and not be able to much about it. I hope my story helped you out in some way and you get it taken care of now while your child is young and not in school.

    Reply
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