Wednesday, May 23, 2012

How would you know whether an acid reflux medication is working for you baby?

By Sonja P Tuesday, February 03, 2009

After seeing 3 ped-GI's, 4 pediatricians, 3 therapists, I learned something very interesting about the GERD medicines given to infants. I also joined a local feeding therapy group and we chat online and exchange issues and ideas about medicines, doctor's advice, new products etc. I also met 4 other reflux parents in person and three by phone-- we exchange all the details about our child's feeding problems and GERD. Here are some new things that parents and doctor's brought to my attention. Hope this helps you in asking the doctor right set of questions regarding GERD medicines.

 

One important thing that I learned: never blindly follow any internet based web-site that gives you a range of dosage that might be appropriate for your GERD child. Do not use it as basis for arguing with doctors because only a specialist will evaluate your child and find out what may be right for her. Many of these websites are operated by over aggressive and argumentative folks who might make you lose focus from your child's real problems. Many sites give phone numbers and email addresses of so called 'experts' but numbers that are not in service and you will never meet a real person. Discussion groups such as this one on healthcentral has been more useful for me in terms of productive discussion.  

 

Of course before you go to the specialist, make sure you ask around to see if other parents in your situation have recommended her, how much experience does she have in this matter, is she going to base her diagnosis on personal bias or thorough evaluation (not necessarily invasive techniques). You certainly don't want to go to a doctor who is very inexperienced, but then you also don't want someone with a tunnel vision. Open minded specialists who listen are more desirable. I have found that doctors at Children's Hospitals are more experienced than doctor's who are in private practice, but on the other hand doctor's affiliated to Children's Hospitals might be more busy and you do run into the risk of coming across someone with a 'tunnel vision'.

 

Let's begin with the first line of action against Acid reflux in your baby:

 

Diagnosing Reflux and starting the treatment:

 

When you go into your baby's Pedi's office and let her know that your child:

  • 1. Shows unexplained colic like symptoms that persist beyond fist few weeks of birth.
  • 2. Arches her back while feeding or after feeding
  • 3. May or may not vomit but looks like is very upset after feeding and looks like is regurgitating her formula.
  • 4. Is irritable when she spits or burps
  • 5. Fussy feeder: Either drinks very little, refuse bottle or breast or both (aversions),or clings to the bottle or nurses as if the child has been starving (comfort feeding?).
  • 6. Is losing weight because of insufficient feeding.
  • 7. Wheezes during breathing (night) or has episodes of apnea.

 

A feeding problem is diagnosed by the pediatrician and many a times a good doctor will ask you to feed your child in front of her to evaluate what the problem is. They might ask you to bring two three types of nipples and pacifiers. If your child has begun sleep feeding as a result of aversions they will want you to show how your child accepts bottle while asleep.

2/ 3/09 10:12pm

Thanks a lot SonjaP for such a useful post. I'm sure this is going to help lot of parents. I've always wondered if the medication is really working and helping my son. And this post does answer this question. Our regular pediatrist doesnt take sleep feeding very seriously adn even now she feels that my son may not have severe reflux since the upper GI scan shows mild reflux and she thinks my son is doing ok on the growth curve. She isnt worried about my son sleep feeding and that is what irritates me. We've decided to change the provider. We saw a new pediatrist yesterday who seems to have more exprience with sleep feeding. She seems to know something about sleep feeding. She feels that prevacid is helping my son and it might be that sleep feeding has become more of a habit now. She feels we have give some time to allow sid to learn feeding while awake. And she said we should restrain from sleep feeding and allow him to feed when he feels hungry. We're going to try this for next couple of days and if sid is not improving and his intake gets too low. Then we'll have to again talk to the doc and if she doesnt listen to our problem then we might have to go to another pediatrist. We are waiting for the GI appointment, its so hard to get apointment sooner with GI.

2/ 4/09 1:35am

Dear Tweety, I wish you and Sid the best. Do keep us posted about how your GI visit goes.

 

My long awaited GI visit went really well and I feel that Avin's reflux is well under control.

 

Don't worry about the upper GI series because yourchild has to reflux precisely when they are taking pictures and the chances of that happening are usually low. Many experienced GI's will give him enough medicine. Please ask your therapist about good GI references as well. Good luck and do keep us posted.

 

Sonja

Jan Gambino, Health Guide
2/ 4/09 6:07am

Hello Sonja,

You have written a wonderful summary that will be read and re-read by parents of babies with GERD. Thank you so much for sharing your experiences and the combined insights from the many other parents you have consulted.

Best wishes to you and your little one.

Jan Gambino

The Reflux Mom

Anonymous
sfmommy
3/ 1/09 9:24pm

thanks for posting this incredibly informative and helpful summary sonja. i wish i could've accessed this information a year ago when my daughter was going through this! this will no doubt help other moms out there who are struggling with this illness. i hope that more pediatricians will understand this as well so they are better equipped to help their patients with this.

3/13/09 10:29am

Hi Sonja,

I am very impressed with what u have written. Thanks a lot.

 

my 21/2 month old girl is refusing to eat and exhibiting all the symptoms that Alvin. She has been on Zantac since she was 3 weeks old. But now it does not seem work eve nafter doubling the dosage...constant feeding battles etc..

My ped wants to see her this Monday. I am hoping that he prescribes prevacid or something beter to help her out. Her rate of weight gain has been dropping as well.

I am meanwhile trying to sleep feed her...she is noly exclusively breastfed.

 

How is ur little Alvin doing ?

 

 

Jan Gambino, Health Guide
3/14/09 3:18pm

Hello Lava,

Isn't Sonja a wonderful resource? We are so grateful for her extensive research on this subject.

I am glad you have an appointment with the doctor on Monday to sort out the feeding issues. Most of the time, the reflux is causing the feeding issues. I have had a few parents tell me the baby had thrush, an ear infection, etc that was causing the difficulty with the feeding so it is always a good idea to check everything out.

What happens when you nurse her? Does she pull away? arch? cry? start and stop? all of these things?

Good luck with the appointment and certainly let us know what you find out.

Jan Gambino

The Reflux Mom

 

3/14/09 5:10pm

Hi Jan,

She has all these smyptoms.

I had the same experience with my toddler. Zantac worked for her.

But for this one it does not seem to.

Do u know if the peds usually prescribe prilosec or prvacid for infants less than 3 months old which is my child. She is in serious need of change of medication for sure. She is in pain and her rate of weight gain has dropped 1 ounce a day to 1/2 almost instantaneously.

I can only sleep feed her. Her aversion is very strong..

 

Wish me luck...

Will keep you posted

3/15/09 4:52pm

Hi Jan and Sonja,

I had to get an earlier appointment on Sunday itself coz it was getting extremely hard to get my child even in sleep if she would wake that would be the end of the feeding.

So we went to the doc today , sunday itself.

This time it was a diff doc in the same practice.. She did something - tested the child's pooph and found blood in it - she suspects cow's milk allergy and that might be even the cause of her reflux as well.

So from today i am off dairy which i love by the way.

In addition, she also prescribed prilosec which we plan to start tomorrow.

 

I got questions now:

Is there a connection between milk protein allergy and reflux ?

Also how long before i could see the affects of elminating dairy in my diet /

Also is blood in pooph indication of milk protein allergy or reflux ?

 

So yeah wish me luck and will let you know find out...

Will be meeting the doc again this thursday..

 

3/18/09 11:42pm

Hi Lava,

Hope everything is ok. I am sorry I missed your comments on this post here but since we are in touch over the e-mail, I hope I was able to guide you in the right direction. Please feel free to read other comments on our share posts. There are many babies who have MSPI (milk soy protein intolerance/allergies) who exhibit the same symptoms as reflux. Yes, Prilosec is needed to heal the inflammation to the esophagus, which can be caused by MSPI as well as reflux.

 

Wish you the very with all the diagnosis and do keep us posted.

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By Sonja P— Last Modified: 10/26/11, First Published: 02/03/09