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Untitled Comment
Jan Gambino
Friday, May 29, 2009 at 07:02 AMre: Untitled Comment
lava
Friday, May 29, 2009 at 10:54 AMHi Jan,
I can totally empathise "Maybe this was the hardest part too. I felt so defeated by her inability to eat and MY inability to "fix" the feeding" coz that is exactly how i am feeling with my 5 month month old who is having reflux issue ever since she was 3 weeks old. I have an appointment with a Ped GI this month. We will see how that goes.
Meanwhile i am also in constant touch with Sonja who has been such a wonderful support whom i cannot thank enough.
Sometimes i do wonder if she will ever get better although i know that she sure will outgrow her issues at some point.
Thanks to both you and Sonja
Lava
re: re: Untitled Comment
Sonja P
Saturday, May 30, 2009 at 01:29 AMDear Lava and dear Jan,
Thank you so much for your comments.
Lava, it may be hard for you to accept this right now but believe me--you daughter will be 100% fine.
When Amy D told this same thing to me, I felt no confidence in her statement what-so-ever (and at time Avin was exacly 5 months old). I always wondered whether there would be any light at the end of this dark tunnel. It was horrible and heart breaking and I had to change 4 pediatricians until one of them finally decided to take us more seriously, same thing about the GI's. Sometimes I wanted to fly to Houston and see Dr. Vartabedian (Author of Colic Solved) for Avin. Fortunately, our current pediatrician is a fighter (like me..lol)-- she got on the case of our GI and pulled some strings and got a second GI involved. But by that time the increased dosage had helped Avin tremendouly and we had already begun tapering off.
Initially our pediatrician did not believe that it was reflux (because silent reflux is very hard to diagnose/understand) but she is open minded and she read "Colic Solved" for my sake. I had also taken several scientific publications along, marked the important points and made notes for her to look at. In the end she accepted and once that happened things improved rapidly. So for me nothing was more frustrating than finding the right doctor and convincing her. Fortunately for you, your DD has a good pediatrician, very open-minded. That's as if 50% of your struggle is over. Things will get better.
A 5 mo old reflux child accepts very little solids but do not give up (don't ever force feed though). Slowly but surely the intake increases. I will repeat a statement from Amy's e-mail to me... "One day your little one will surprise you by finishing an entire bowl full of food"...we aren't there yet but I am confident that Avin will do it sooner or later and I am confident that your dd will do it too! Good-luck.
re: re: re: Untitled Comment
Sonja P
Saturday, May 30, 2009 at 10:48 PMJan, I believe that Lava's dd is on a sleep-feeder's reflux roller coaster. They accept solids for few days straight then for some reason it goes down-hill, then one day is good, followed by a bad day. However, if you look at weekly intake it steadily keeps going up...eventually. Lava, correct me if I am wrong.
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Sonja,
Once again you have done a wonderful job of sharing your story and helping other parents on their reflux journey.
While my reflux baby was not a sleep feeder, she has similar feeding problems due to silent reflux. Just as you have found, there was no one treatment that helped. Certainly excellent medical care, including medication was key. In addition, supporting her efforts to approach food and eating during a long period of time really helped her. Checking my emotions at the kitchen door was difficult and key. Maybe this was the hardest part too. I felt so defeated by her inability to eat and MY inability to "fix" the feeding.
Thank you again,
Jan Gambino
The Reflux Mom
www.refluxmom.com