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Mommy’s solution to Avin’s sleep-feeding: understanding reflux and feeding difficulties

Sonja P
Sonja P
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Sonja P is Avin's mommy

Mother of a reflux baby.

Sonja P

Friday, May 29, 2009
View All of Sonja P's Posts
  I have written several shareposts on this site and this one is more of a review or summary type of post. My expertise is that I am a mother of a reflux baby and I understand science (Ph.D. in Biological Sciences).  I am not a medical doctor or a therapist but when these experts explain th...
  1. Untitled Comment
    Jan Gambino
    Friday, May 29, 2009 at 07:02 AM

    Sonja,

     

    Once again you have done a wonderful job of sharing your story and helping other parents on their reflux journey.

     

    While my reflux baby was not a sleep feeder, she has similar feeding problems due to silent reflux. Just as you have found, there was no one treatment that helped. Certainly excellent medical care, including medication was key. In addition, supporting her efforts to approach food and eating during a long period of time really helped her. Checking my emotions at the kitchen door was difficult and key. Maybe this was the hardest part too. I felt so defeated by her inability to eat and MY inability to "fix" the feeding.

     

    Thank you again,

     

    Jan Gambino

    The Reflux Mom

    www.refluxmom.com

    Reply
    re: Untitled Comment
    lava
    Friday, May 29, 2009 at 10:54 AM

    Hi Jan,

    I can totally empathise "Maybe this was the hardest part too. I felt so defeated by her inability to eat and MY inability to "fix" the feeding" coz that is exactly how i am feeling with my 5 month month old who is having reflux issue ever since she was 3 weeks old. I have an appointment with a Ped GI this month. We will see how that goes.

    Meanwhile i am also in constant touch with Sonja who has been such a wonderful support whom i cannot thank enough.

    Sometimes i do wonder if she will ever get better although i know that she sure will outgrow her issues at some point.

     

    Thanks to both you and Sonja

    Lava 

    Reply
    re: re: Untitled Comment
    Sonja P
    Saturday, May 30, 2009 at 01:29 AM

    Dear Lava and dear Jan,

     

    Thank you so much for your comments.

     

    Lava, it may be hard for you to accept this right now but believe me--you daughter will be 100% fine.

     

    When Amy D told this same thing to me, I felt no confidence in her statement  what-so-ever (and at time Avin was exacly 5 months old). I always wondered whether there would be any light at the end of this dark tunnel. It was horrible and heart breaking and I had to change 4 pediatricians until one of them finally decided to take us more seriously, same thing about the GI's. Sometimes I wanted to fly to Houston and see Dr. Vartabedian (Author of Colic Solved) for Avin. Fortunately, our current pediatrician is a fighter (like me..lol)-- she got on the case of our GI and pulled some strings and got a second GI involved. But by that time the increased dosage had helped Avin tremendouly and we had already begun tapering off.

     

    Initially our pediatrician did not believe that it was reflux (because silent reflux is very hard to diagnose/understand) but she is open minded and she read "Colic Solved" for my sake. I had also taken several scientific publications along, marked the important points and made notes for her to look at. In the end she accepted and once that happened things improved rapidly. So for me nothing was more frustrating than finding the right doctor and convincing her. Fortunately for you, your DD has a good pediatrician, very open-minded. That's as if 50% of your struggle is over. Things will get better.

     

    A 5 mo old reflux child accepts very little solids but do not give up (don't ever force feed though). Slowly but surely the intake increases. I will repeat a statement from Amy's e-mail to me... "One day your little one will surprise you by finishing an entire bowl full of food"...we aren't there yet but I am confident that Avin will do it sooner or later and I am confident that your dd will do it too! Good-luck.

    Reply
    re: re: Untitled Comment
    Jan Gambino
    Saturday, May 30, 2009 at 09:52 PM

    Hello Lava, Is your daughter sleep feeding too? It sounds like she isn't too interested in solids. What have you tried so far?

    Jan

    Reply
    re: re: re: Untitled Comment
    Sonja P
    Saturday, May 30, 2009 at 10:48 PM

    Jan, I believe that Lava's dd is on a sleep-feeder's reflux roller coaster. They accept solids for few days straight then for some reason it goes down-hill, then one day is good, followed by a bad day. However, if you look at weekly intake it steadily keeps going up...eventually. Lava, correct me if I am wrong.

    Reply
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