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Untitled Comment
ncbeachgal
Tuesday, March 24, 2009 at 01:24 AMre: Untitled Comment
Jan Gambino
Tuesday, March 24, 2009 at 06:37 AMHello and welcome to our support community! Be sure to read the other Shareposts about sleep feeding and infant reflux for a wealth of information about caring for your baby and coping with reflux.
I am glad you are working with a team of doctors and feeding therapists. It can really take a team effort to figure out the best approach for your baby. I wonder if any other formulas have been considered or tried. I know Prosobee is soy based. Many infants with digestive issues have difficulty digesting milk and soy. Often a hypoallergenic diet is tried. There are many brands and types to consider so you and the doctor will need to look at this. Sometimes this is referred to as milk soy protein intolerance or mspi.
Let me know what else you have tried.
Keep in touch and let us know how you are doing.
Jan Gambino
The Reflux Mom
re: re: Untitled Comment
ncbeachgal
Tuesday, March 24, 2009 at 04:52 PMHi Jan,
Thanks for your reply. While he was in the hospital they tried Progestimil, Elecare, regular Enfamil, and a few others that I can't think of at the moment. Someone has suggested Probiotics--do you know anything about that?
-Kellie
re: re: re: re: Untitled Comment
Jan Gambino
Tuesday, March 24, 2009 at 05:21 PMHello again...wow...talk about taking a tour of the formula department. So I am guessing milk or soy are not an issue for him (allergy or intolerance). Sometimes there is a trigger such as food to cause all of the discomfort. The specialist can go through the list of triggers and related digestive issues to see if there is a underlying problem. I wonder if the interrupted feeding during the hospitalization has led to some fear about eating. The other issue is the tube feeding. The ng tube can make swallowing difficult. My daughter had an ng tube briefly at age 6 and she said it felt kind of annoying to swallow food. I am not sure if a baby gets used to it after a long time on a ng tube. My understanding is the ng tube is meant for short term feeding intervention.
Probiotics are worth mentioning to the doctor. I have used this treatment with my daughters and it has really increased their digestive comfort. I would not say that it "cured" their reflux. However, a little comfort could make a big difference in your day! You both deserve that!
Hope some other moms and dads will add their two cents...
Jan Gambino
The Reflux Mom
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I forgot to mention that he sleeps with his crib mattress inclined and we hold him up for at least 45 mins post-feed, whether it's NG or bottle. He is currently getting Prosobee at 26 kcal/oz. and sees a feeding therapist (OT) twice a week. He had a gastric emptying study, which came back normal. He had several abdominal surgeries, which is the cause of his reflux.