Monday, November 10, 2008
Our 9 month old has reflux and we have had sleep issues his whole life. He is now on his third medication, prevacid, and his sleep seems to be getting worse! How do we know when his night waking is due to reflux/pain versus his being spoiled? He was up 8 times in 11 hours one time screaming for almost two hours straight last night in our arms, but did not have any obvious reflux sounds. He is so tired all the time averaging only 7-10 hours of sleep in a 24 hour period. We really are wondering what we can do for him?
colbysmom,
I am in the same situation with my son. He's 3-1/2 months old and was diagnosed with acid reflux when he was 4 days old. He was on Zantac, up until a recent visit to the ER, where doctors discovered he has laryngomalacia and that his larynx was irritated from acid, so they switched his meds to Prevacid. He seemed to be okay for the first few week but now, 3 weeks after starting the medicine, his sleeping is worse, he is constipated, gassy, and extremely uncomfortable. We are having such a hard consoling him and most days he just cries himself to sleep. I stopped giving him the medicine just yesterday and I have a calll into the ENT doctor who prescribed the medicine but I have not heard back from them yet.
What medicines has your son been on?
He started on Zantac, then we tried Prilosec, which constipated him and made him miserable. We went back on Zantac, much higher dose, which took the edge off for a little while ten stopped working. So now we are on the Prevacid, with a call into our GI doc for the next step, which is a sleep study.
I just got a call back from the ENT doctor at Children's saying to go back to the Zantac, a higher dose, 3 times a day. Hopefully this will work as I think we're running out of options, and we all need sleep. Let me know what you doctor recommends.
Colbysmom,
How is your son doing? Have you been to the doctors for a sleep study? I just wondered what came of that.
Connor is back on Zantac now and his sleeplessness continues, at least its better than the constant crying. I wonder if the medicine could be causing the sleeplessness. Of course, every time I mention it to the doctor, they say his sleeplessness is just colic and he'll grow out of it. Yesterday, he was up at 5 am, slept from 7 to 8, then was up pretty much the rest of the afternoon, haven taken only two 30-40 minute cat naps, then at 4:00, he napped for 2-1/2 hours and last night he woke up about 4 times in 7 hours.
I keep thinking his sleeping habits will get better as he gets older but its been 4 mos already and he still continues to have such a hard time staying asleep. I don't want him to spend the night in the hospital, but I think he needs to have a sleep study done as well to check for apnea, so I was just wondering what happened with your son.
We are scheduled for an upper endoscopy, a 24 hr PH probe and a sleep study on 12/1. So we have two more weeks to wait for the tests. I have wondered about the meds making it worse too? I guess we will find out because he needs to stop his prevacid 7 days before the tests and the zantac 3 days before. He is still having his wakeful, screaming nights. Last night he was up 7 times between 10pm & 7am. I am hoping that we get some real answers from the tests!
I am sorry to hear that your son has to go through all of that testing but hopefully it will provide you with a better understanding of what's going on so he can start to feel better and not have to wake up screaming. I am interested to find out how your son sleeps when he is off the meds. We have a follow-up appointment with the ENT doctor this week, but I'm not looking forward to the trip to our local Children's Hospital, as my son hates being in his car seat and screams either the whole there or the whole way home. Needless to say, we don't go very many places with him.
I can't imagine having to go through this for 5 more months...my husband and I are exhausted now. It's hard to work full-time with a baby who keeps you up at night.
Best of luck and please keep in touch. I will keep you and your family in my thoughts and prayers.
Colbysmom,
I hope all is well! I just wanted to find out how your son is doing? How did all the tests turn out? Did he sleep better off the meds?
Connor is now on his third medication, Pepcid. He still seems to be very gassy and constipated. We started giving him pear juice (3 parts water and 1 part juice) to help soften his stool and we're going to try to switch from rice cereal to oatmeal to see if that will help. He didn't sleep all day yesterday, just two short little cat naps, like 30 or 45 mins and he woke up 4 times through out the night (from 8 pm to 5 am). This
Colbysmom,
I hope all is well! I just wanted to find out how your son is doing? How did all the tests turn out? Did he sleep better off the meds?
Connor is now on his third medication, Pepcid. He still seems to be very gassy and constipated. We started giving him pear juice (3 parts water and 1 part juice) to help soften his stool and we're going to try to switch from rice cereal to oatmeal to see if that will help. He didn't sleep all day yesterday, just two short little cat naps, like 30 or 45 mins and he woke up 4 times through out the night (from 8 pm to 5 am). This si
Colbysmom,
I hope all is well! I just wanted to find out how your son is doing? How did all the tests turn out? Did he sleep better off the meds?
Connor is now on his third medication, Pepcid. He still seems to be very gassy and constipated. We started giving him pear juice (3 parts water and 1 part juice) to help soften his stool and we're going to try to switch from rice cereal to oatmeal to see if that will help. He didn't sleep all day yesterday, just two short little cat naps, like 30 or 45 mins and he woke up 4 times through out the night (from 8 pm to 5 am). This is
Colbysmom,
I hope all is well! I just wanted to find out how your son is doing? How did all the tests turn out? Did he sleep better off the meds?
Connor is now on his third medication, Pepcid. He still seems to be very gassy and constipated. We started giving him pear juice (3 parts water and 1 part juice) to help soften his stool and we're going to try to switch from rice cereal to oatmeal to see if that will help. He didn't sleep all day yesterday, just two short little cat naps, like 30 or 45 mins and he woke up 4 times through out the night (from 8 pm to 5 am). This is so
The tests went as well as could be expected. He didn't sleep any better off the meds and we could feel him refluxing!! We haven't gotten any results yet, waiting and hoping for them every day! He is back on Prevacid and Zantac, and still up 4-7 times a night. Hopefully things will work for Connor.
I am sorry to hear that Colby did not sleep any better off the meds. Have you gotten any results back? I hope the test results will give you some answers as to what is keeping him from sleeping.
Connor's sleep study is scheduled for Feb 7th, I hope he actually sleeps enough to complete the test.
Take Care and I hope all will be well with Colby real soon!
Here's to a restful 2009 for both of us!