This is the question that I asked my child's nurse last week after the school called and told me to come get Noah from school. That was followed up with "He's ok, but everyone else is dropping like flies. We think you should come immediately to get him and keep him out the rest of the week. There is a huge outbreak of the flu and a bad stomach virus". I said "I'll be there as quickly as I can, please keep him isolated the best of your ability". Within 30 minutes, I was at the school to sign out my child. The teacher brought him out a back way and I hussled him to our mini van. Minutes later, I was on the phone with the nurse and asked my question, "Where can I buy a bubble?".
You are wondering why in the world my child gets out of school because of an outbreak of illnesses. If he's not sick, then why does he get to go home? Other kids would probably love to be able to sit out of school, but not be sick.
The answer is that Noah is sick. He doesn't have cancer and he doesn't have anything that most people know about. On all outward appearances, Noah looks fine and at 44 lbs and almost 4 years old, he's a right good size.
Noah started his life with a severe case of Gastroesophageal Reflux Disease. He had surgery and we thought that would be it and he'd be fine. After the surgery, Noah was diagnosed with a motility disorder called Chronic Intestinal Pseudo Obstruction. Just a month ago, he was also diagnosed with a probably mitochondrial disorder due to a defect in the Complex V. Don't even begin to ask me to explain this in this post! But, it means our lives have changed forever. The slightest of illnesses could be life threatening. We are in the process of learning and have our first big appointment on Tuesday.
So, where can I find a bubble. We put Noah in school for social interaction, as Noah's medical problems are complex and recently we found out he is on the Autistic spectrum. In doing this, I realized we can't keep our children in a bubble forever. Sometimes, keeping them well isn't worth the sacrifices of holding them back socially.
However, for this little week in time when illness seems to be causing "healthy" children to drop like flies, we will form the best of bubble we possibly can, but while it's expensive in that we get to lose some normal things that we take for granted when the kids are well, it's a small price to pay for the well-being of our children.
How?
No public appearances from my boys. We get take out from places that offer curbside service so none of us must go inside. We take little trips in the van to get the boys a change of scenery. We use antibacterial wipes on everything. We wash hands. No exposure to people who have been sick or around others who have been.
Today, I went to the grocery store, and the greeter laughed at me with my wipes. I just smiled and in my head thought, you do what you have to do to keep your family safe and I came for groceries, not germs. It made me sad because it's the first time in a long time that I went to the grocery store on a Sunday afternoon without my whole family.


Hi Brandi,
Thank you for sharing your story and giving us a snapshot of your day. It is hard work being a mommy and there is no way to explain that to anyone...you just have to live it.
I don't know where to buy the bubble either...I did try to create that bubble with my daughter Rebecca when she was a chronically ill, germ magnet, cute as a button toddler. I tried staying home and shopping late at night or shopping by day with her strapped on my back in a carrier so she could not touch the germs on the cart and surfaces. She still got sick constantly and stayed sick longer than the other kids.
I do love the drive thru windows at the bank, pharmacy and dry cleaners. I think it is important to go out and we used to just take a walk-in a park or zoo. However, I would steer clear of the really germy places like the indoor play areas at a fast food restaurant whenever possible.
On one hand, I felt disappointed and cheated that I could not do the things that I wanted because of the chronic illness. On the other hand, I found that I spent more quality time with my kids than other people. I quit my job and spent a great deal of time at home painting, reading books and trying to put those tiny high heels on a barbie doll. I am grateful for those moments and the closeness I feel with my children from spending so much time with them.
You are doing a wonderful job with those boys and they are lucky to have you for their mom. Just take one day at a time and keep writing.
Jan Gambino
The Reflux Mom