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Monday, November, 23, 2009
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Where can you buy a bubble?

Brandi Polatty
Brandi Polatty
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I'm an early childhood educator and mother of two special boys!

Brandi Polatty

Sunday, February 15, 2009
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In the past, I've somewhat dreaded the kids screaming and grabbing things off the shelves on our weekend shopping trips. 

 

Today, as I walked and enjoyed my mommy time, being able to grab things from the shelf myself without my grounded husband telling me we don't need girl scout ice cream, I realized that my bubble is lonely. 

 

Next time I'm in the grocery store and my kids are being bad and they are grabbing everything, pulling each other's hair, screaming at the top of their lungs....I'm going to smile and be happy and grateful for the blessing of having them by my side and not fearing for their lives because we're doing something normal.... 

 

Right now, we're going to stay in our bubble until Tuesday.  Tuesday is our first big appointment with the specialist since finding out the most recent Complex V defect.  We pray for answers.  There is no cure for mitochondrial disease and very little treatments.  In most cases, the disease is progressive.  The treatments only help to slow the progression.  Lifestyle changes, like avoiding extreme temperatures and staying well are also things that help slow the progression of the disease.  If you'd like to learn more, you can visit www.umdf.com or www.mitoaction.org.  It is believed that mitochondrial disease is linked to adult diseases such as Parkinson's, Alzheimer's, and some cancers.  Help me raise awareness of this "invisible" disease.

 

God, Give me the strength and patience to deal with my many blessings.  But most of all, thank you for my many blessings!

 

 

 

 

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