Monday, February 13, 2012

Laproscopic Nissen Fundoplication!

Written by

Karla

Karla

Sun, August 26, 2007

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I am on day 7 post surgery today, and feel pretty good.  When I have felt a little bloated I've walked around the house until it goes away.  The worse pain I've felt was the first 1-3 days, and that was mostly at night when getting up to go to the restroom.  I've lost 7 lbs. so far, and feel confident that I can keep that off now that I'll be able to eat a more balanced diet without getting reflux!  I feel hope for my future now more than I ever have. 

 

I had a wonderful team of doctors who had many years of experience performing the surgery.  I am so greatful that I finally got it done.  The worse side effect so far has been gas, but hey, it's much better than burping all the time.  Thank goodness my boyfriend has also had the surgery (7 years ago) and can handle that part.  He has been very helpful giving me the do's and dont's.

 

I would recommend this surgery to anyone who suffers from daily reflux.  Ask to be tested to see if you're a candidate.  It could be the best thing you've ever done.  I know it is a blessing for me.

 

 

 

 

Anonymous
Carol Kearfott
9/ 3/07 6:56am
After reading the uplifting surgery remarks, I will not be so afraid. It sounds like the doctor is hep to doing this. I have Les, hiatal hernia, Barrets esophagus, metallic taste in mouth, extreme high level of acid. All necessary tests have proven me a likely candidate. I thank you for posting the letters. It helps those who are afraid, such as I am. I have had  many surgeries, however this one is tricky! The doctor will have to have blessed hands for this one. Thanks again Carol Kearfott
1/10/08 11:33am

Hi Carol.

 

Have you had your surgery yet?  I was wondering how you were doing. 

9/23/11 11:35pm

i have had the surgery 6 years ago, the best thing i ever did.also have barretts esophagus. i suffered with heartburn since i 18 years old & pregnant, everyone said, your baby's going to have a head full of hair!! well he was bald and the heartburn never went away..i am now 60 and totally heartburn free!! it's like a new life, believe me..never had any problems eating anything since surgery either.i eat everything. have it done & don't be afraid..


Anonymous
sdj
10/18/07 1:25pm

Hello,

I am fixing to have this surgery.  I am glad to hear you have had such great results.  I have heard so many bad thing about it.I am overweight myself so I hope this isn't going to be a problem and have had c-section and hystorectomy.  I am 33 and have had reflux since I was born.  I have taken medication for so long nothing seems to help.  I hope I am making the right decision.

10/18/07 5:13pm

I wish you luck on your surgery.  It changed my life in such a good way.  I am no longer sick every morning, or all day every day.  I can eat so many things that seemingly would have killed me before, like tomatoes and orange juice without getting heartburn.

To be relieved of daily heartburn is a miracle if you ask me.  I hope you have selected a good doctor, and do take it very easy after the surgery to ensure you heal properly.  There will be pain after surgery, but that WILL go away, and hopefully if your surgery is successful, you'll be free of the pain of heartburn.    

Anonymous
stacy
10/20/07 10:36am
Thank you for your reply.  I have had reflux since I was little.  I am just like you were.  Sick every morning  and  thru out the day.  I can't drink orange juice, which I love.  I am scheduled to see a surgeon on Wednesday the one I was going to use has gotten very ill.  I really like this new one. He has done surgery on several friends and family members so I trust him. Thanks for all the info and I am glad that  you are feeling better.
Anonymous
David - Boston
10/20/07 9:57pm

It is 9.34 pm and I am seating in bed on day number 8 after my Nissen Fundoplication operation reading the wonderful in detail postings above. While I am reading I am reassuring myself that I made the right decision about surgery and then it hit me like a tone of bricks.....I have not had heart burn in over a week, the last time I had it was the day before my operation. I, like many of you, have had the joy of a flaming blow torch in my chest for as long as I can remember and now NADA! Someone has quenched the flames! No more Tums every hour or two, no more difficultly breathing and no more headaches. Yes I am in some pain and I feel that was what was blocking my brain from registering the lack of flames in my chest. I have had some lake of sleep, slight discomfort etc but everything looks wonderful, and I am so looking forward to a very large glass of orange juice in a month or so, heck, I think I might even have a bloody Mary to celebrate!

 

Good luck to all,

David - Boston

Anonymous
BD
3/19/10 12:15am
David, just wondering how you are feeling now after 3 years? Who did your surgery in Boston? I am talking to Dr. Rattner at Mass Gen. about having it. Please tell me all the good and bad short and long term that you have experienced! thanks, bd
3/19/10 9:42am

Hi bd,

 

So here is the good, the bad and the ugly..... The good = I have not had heart burn "not once" after the surgery. Not even one tum's!

 

I healed pretty quick, had no complications and was back at work after 2 weeks. I now believe on playing it safe when it comes to my health, but I think I could have gone back too work after one week, really depends on your job. Over all no problems and if I had know about the surgery, I would have done it a lot sooooner!

 

The Bad =  I waited too long and have damaged my esophagus  "Barrettes Syndrome" so I do need to go for a upper GI every 2 years to keep an eye on it but that has nothing to do with the surgery. I had also a very bad hiatal hernia, probably all my life which lead to all the problems but they fixed that also when they were in there .....I did slow down a bit for a few months and you do lose some weight (Me 16 lbs) But I put it back on +10lbs but you can lose the weight, I think it has to do with not eating for awhile and when you start back your body put it on as weight "Starvation mode "

 

BTW, with most of my research, I did find that most people get into trouble / have problems after the surgery because they eat way too soon after the operation!!!!! I did not eat anything thicker then apple sauce for the first 6 weeks!

 

I have heard of people going for a stake dinner 1 week after there operation and they wonder why they got into trouble?!?!?! So I would recommend taking it slow with solid food, I did find a good post surgery food plan on the Mayo Clinics web site "I think" but use your own judgment... I even recommend my brother-in-law to go get checked out because he also had very bad heartburn, in the end he also had the surgery (about 2 months ago, over in Europe) and he is doing just fine.

 

The Ugly =  I did have to relearn how to eat my food, if you call that "the Ugly" no more eating a sandwich running between meetings or gulping down my dinner in the evening because I had not eating in so long and was rushing to get back out the door to do something else.

 

 I now eat slower, take smaller bits, and chew my food.  Which is not really a bad thing when I come to think about it? I tend now to "graze" more. I eat small, 6 times a day rather then just 2 really big meals like I used to do....

 

Over all, I highly recommend it. I do not know Dr. Rattner but I also had my surgery done at MGH by Dr. Hutter who was wonderful! Not saying that Dr. Rattner is bad by any means.....

 

Let me know if you have any more questions?

Anonymous
bd
3/20/10 7:09pm
Thanks for responding, I appreciate it. Spoke with the Dr. yesterday about concerns and I feel pretty good about it. My greatest concerns were not being able to belch, stomach dumping, and diarrhea to which he said only in a very small % is that a problem. A lifetime of that didn't sound fun. Have you been able to resume a normal, active life? I am pretty active and while I know it might take a couple mos., I do want to be able to work out and live my life. How long til you felt totally normal? Like you, the eating habits ie., eating too fast and not chewing enough, will be an adjustment. One my wife will love, she's been trying to get me to eat slower for a long time! I already have Barrett's Esophagus at age 34. Ugh... And I have a recurrent laryngeal granuloma from the reflux as well. I am going to be having another surgeon remove the granuloma during the fundo as well. 2 for the price of... well, 2. I had jaw surgery when I was in high school, so the liquid diet doesn't scare me much. That and I love an excuse to live off milkshakes! If there is anything more at all you can share about what to expect I'd love to hear from you.thanks again...
3/22/10 11:58am

Thanks for responding, I appreciate it. Spoke with the Dr. Yesterday about concerns and I feel pretty good about it. My greatest concerns were not being able to belch, stomach dumping, and diarrhea to which he said only in a very small % is that a problem.

 

Answer =

 

Not being able to belch does take a bit of getting used to, but once you start eating slower, There by swallowing less air while you eat does help, it took awhile to get used to carbonated drinks, if I drink to much you can feel a bit blotted....like after Thanks giving dinner..... But again you get to know your body and how to handle it..... For example 4 beers is now my limit....cuss of the carbonation, but again reducing alcohol intake is not a bad thing either.....

 

As for stomach dumping, and diarrhea not so much, I do get diarrhea from  time to time but I think it depends on  the person, I have a BM every day, have done so all my life; sometime 2 a day so if I eat the wrong food, for me it is "Dairy" yup I get diarrhea. But again you get to know what you can eat and what is going to cause you trouble....

 

A lifetime of that didn't sound fun. Have you been able to resume a normal, active life? I am pretty active and while I know it might take a couple mos., I do want to be able to work out and live my life. How long till you felt totally normal?

 

Answer =

 

Working out, let's say I now run 3 miles 3 times a week and left weights 2/3 times a week so I don't think you should have a problem.... But I am carefully not to over do it....i started running again I think after 9 months

 

Like you, the eating habits i.e., eating too fast and not chewing enough, will be an adjustment. One my wife will love; she's been trying to get me to eat slower for a long time! I already have Barrett's Esophagus at age 34. Ugh... And I have a recurrent laryngeal granuloma from the reflux as well. I am going to be having another surgeon remove the granuloma during the fundo as well. 2 for the price of... well, 2. I had jaw surgery when I was in high school, so the liquid diet doesn't scare me much. That and I love an excuse to live off milkshakes! If there is anything more at all you can share about what to expect I'd love to hear from you.thanks again...

 

Answer =

 

Sorry to hear about Barrett's and laryngeal granuloma, the Barrett's is the main reason I did the surgery and of course the never ending hear burn.... But Barrett's can led to cancer so the stopping of acid washing my esophagus for me was a big concern....

 

Over all I am happy with the out come and for me most of the side effect were temporary and the few that are not, e.g. carbonated drinks, I have got used too. Hope this helps!

Anonymous
Melba
12/26/07 1:35pm
I had the surgery on the 19th of December, WOW what an experience.  I have had not heartburn and minimal pain from the actual cuts (5)  but shoulders and neck were a problem took pain meds two days.  Came home 24 hour after surgery.  Had boiled shrimp and boiled potatoes for Christmas dinner.  I am eating small means and seem always hungry.  But this has been wonderful.  I had been on meds for 25 years, had a hiatal hernia, and esophigitus.  Sick all the time.  The week before surgery I tried one last time the wonderful dreaded Onion Rings.  Big mistake sick for three days.  Good luck to all who are getting ready.  It was not as bad as I expected.
1/10/08 11:37am

Hi Melba.  Just checking to see how you're doing now, a few weeks after your surgery. 

 

I've had a few episodes of esophageal spasms and some cramping, and discovered I was eating a little too much, and a little too fast, and probably not drinking enough water. 

 

Hope you're doing well.

Anonymous
Melba
1/10/08 11:47am
I am doing great.  Only problems I have are from overeating.  Still eating 6 small meals a day.  Which is better for me anyway.  The other thing I have found is that I feel better sitting up for at least an hour after meals.  But other than that I have had minimal problems.  Hope you continue to recover well.
1/ 9/08 5:12pm
karla, since we in 01-08-2008 how are you feeling now?  and how much weight have you lost?
1/ 9/08 6:34pm

I have felt great for the most part since my surgery.  I have had a few spasms, once in the center of my chest, so it was most likely my esophagus.  I followed up with my doctor... they did a barium swallow which showed everything was okay.  He suggested I slow down a little when eating, and make absolutely sure to chew my food well.  Last week I had another episode sort of like a severe cramp in my lower right side.  These episodes have been very painful, however I'm still very happy to be heartburn free!  I'm finding that it's very important to drink a lot of water these days, but I can eat just about anything without getting heartburn. 

1/ 9/08 6:37pm
Oops, I forgot about your question regarding the weight loss... I've lost about 10 lbs. and have managed to keep that off so far. 
1/10/08 10:13am

karla,

may i ask, were you a heavy person?  my doctor tells me to get ready to buy a new wardrobe, because my lifestyle will change drastically.  since i have been diagnosed with acid reflux, i have lost 16 pounds in six weeks.  my doctor tells me i will lose drastically.  did this happen to you?

1/10/08 11:31am

Well, yes, I was sort of heavy.  I am 5' 3" and weighed about 180 at the time of my surgery.  When I had reflux it seemed impossible to eat a healthy diet, because a lot of things that are healthy affected my reflux worse. 

 

I was on a liquid diet for 2 solid weeks after my surgery, so of course that in itself will lead to a little weight loss.  Once I was able to eat solid food again, I could only eat small portions before feeling very full.  I increased my portions for awhile, but then when I had the esophageal spasms I metioned, I started eating smaller portions again. 

 

I decided to weigh myself last night, and to my surprise I have lost about 7 more pounds, so now I'm down to 163 lbs.  That's 17 lbs!

 

I attribute the weight loss to being able to eat better, and also having a little more energy because I'm not sick every day anymore. 

 

Your lifestyle will definately change after you have this surgery.  When you're sick all the time having reflux, you are forced to do things just to deal day to day.  Imagine not having reflux anymore, at all... it's pretty amazing.  I am finding that I can deal with stressful situations much easier now, instead of having to run from any sort of conflict like I used to have to do because it made me physically sick.  That in itself is such a relief! 

 

So did you already have the surgery, or are you preparing to do so?  Best of luck to you!

 

1/10/08 12:43pm

i see the doctor on 01-16-08.  my G.I. doctor wants me to have the surgery after having  a series of test.  but right now my mother is ill, i have three children and a husband.  it does not feel like the right time.

iam depressed and can not eat. i fear the after affects!!!!

1/10/08 1:12pm

I'm truly sorry things are difficult for you.  I can totally relate.  My family had a trip planned to go camping for a week, the same week my surgery ended up being scheduled.  I also had tickets to see Heart the same night, but had to give them up.  : (  I needed the surgery so bad that I had to cancel our camping trip, and my children were very disappointed.  Thank God my boyfriend had vacation time and still took off work for the week to care for me through my surgery and after.

Trust me, you will feel so much better after you have the surgery, and you will be able to eat again without having fear of it making you sick.  Hang in there and best of luck to you.   

1/10/08 2:42pm

karla,

how long did you stay out of work? so let me see if i understand you correctly.  for the first three weeks, you had to eat in small portions?  my doctor said, that for the first five years, my eating habits will be different.  can you relate?

1/10/08 3:14pm

I wasn't working at the time of my surgery at the end of August.  I started a new job at the end of October.  They usually say you can go back to work in a week or 2 if you don't do anything very strenuous for work.  I do administrative work. 

 

They had me on a strict liquid only diet for 2 weeks following surgery.  A nutritionist met with me in my hospital room to go over what I could and couldn't have.  I stuck to that liquid diet the whole 2 weeks, then gradually started introducing soft, easy to swallow foods. 

 

It's been almost 5 months since my surgery, and I still find it best for me to eat smaller portions than I used to, but my doctor didn't say anything about five years of that. 

 

I would think some of these issues would vary a little between patients.  You will be able to discover what works for you. 

 

I feel very fortunate that my boyfriend of 5 years had also had this surgery about 10 years ago.  He has been there to help me through it so much, and has been very patient. 

 

You will find that you will be able to tolerate foods that you can't now, like orange juice and pizza. 

 

One thing is that you won't be able to throw up so if you drink alcohol, DON'T over drink.  You will have the heaves, but nothing will come up.  I don't drink very often at all, but I had a migraine this week that made me very nauseated, but I couldn't throw up.  That part hurts, and I wished at the time I could have just done it and gotten it over with, but it doesn't happen.

 

 

1/10/08 3:23pm

karla,

i was told by the doctor that, i would not beable to burp, is that the same with you?  how is your boyfriend doing after 10 years?

1/10/08 3:28pm
I can burp, and my doctor says that all depends on how tight your surgeon makes your wrap.  My boyfriend could not burp for many years, but can now.  He is doing good 10 years after, although he's had a few minor episodes of reflux, ironically right when I was having my surgery... may be in his head, lol! 
1/10/08 3:42pm

karla,

thanks for your patience and time!! sharing your information with me, gives me hope, that one day i will be back to normal!!! happy new year!

1/10/08 4:26pm

I am glad that my experience can be helpful to you.  I do hope you can get your surgery done soon.  Maybe you could get some help from family or friends to get it done.  I can assure you, the sooner you get it done, the sooner you can be on your way to recovery. 

 

Keep me informed.  Big Grin

Anonymous
Carol
2/18/11 3:35am

Hi Karla!

 

Hope I still get you after a few years... I'm a mom of a 3 1/2 year old girl, she had the nissen done when she was three weeks old, the doctor warned us about the life span of more or less 10 years of the surgery, that haunt's me a lot as I am afraid of what can happen.... How is your boyfriend doing? what symptoms must you be on alert for when you reach 10 years?

Thanks

2/18/11 6:30am

Hello Carol, My daughter is now 10 years post fundo surgery. She still checks in with the peds GI every year and has had some follow up endoscopies to check on her esophagus, stomach and wrap. All is well. No meds, no complications. She does have some reflux symptoms such as wet burps and food does occasionally come up but there is only occasional heartburn or discomfort that requires over the counter reflux medication. She is careful about her diet and eats small, frequent meals.

What a difference from before the surgery! I hope your little girl has a good outcome from her surgery too.

Take care, Jan

1/10/08 10:15am

melba,

what cuts, what kind of surgery,did you have? wy did you go home just after 24 hours?

Anonymous
Melba
1/10/08 11:53am
I had a Nissen Fundoplication with a Hiatal hernia repair.  I had 5 punctures and one two inch incision just above my belly button.  I stayed about 24 hours.  They told me I should maybe stay another day but I love my own bed and went home with no problems.  I mentioned above that if I overeat.  I get the dry heaves.  No fun.  But after three weeks I can eat pretty much what I want but only about 1/2 cup to 3/4 cup at a time.  But no heartburn since surgery on the 19th of Dec.  Yippee
1/10/08 12:13pm
That is great! 
Anonymous
jean sweat
12/21/10 12:45am

UndecidedI wish I could say same. I had surgery 2 yrs. ago. First one unsucessful and went a year being violetly sick to stomach and could not swallow my own salvia. Had 2nd surgery after living with nausea and no medication would ease it after a yr. Had so many scopes to open esophagus up so I could swallow my owns spit for 3-5 days than repeat till they operated again at Oregon Sciences in Portland Oregon. They did a 3 in one and cut spinchter between my esophagus and stomach. Took a long time but finally got rid of nausea and food tube. I still have the reflux and have to sleep sitting up. This has caused undo problems with my lower back. I take 2 nexiums daily. They should never have operated in the 1st place as I have no motility due to CREST Syndrom which has attacked my esophagus and liver. More complications on the horizon as I need to be scoped again as I am foaming up again. LOL Hate all the problems and the lies told about this operation.   Jean    Good luck to all of you that you may not suffer what I have.

Anonymous
susan
1/10/08 4:12pm

I have had severe gerd (Bravo PH test score 60.5). No medication works for me. My doctor keeps throwing medication at me. I am in pain 24 hours per day. How can I get him to take me seriously?

I have had 2 endoscopies with results of chronic GERD, esophagitis and Hiatal hernia. I cannot handle it anymore. Any suggestions?

1/10/08 4:48pm

I finally contacted a surgeon myself and asked for the surgery.  At that point I cannot even recall how many times I had ended up in the ER with severe pain, and had seen several different doctors who all just wanted to give me medication. 

 

The medication is designed to lower the amount of acid your body produces.  BUT, if your lower esophageal sphincter does not function properly, the medication is not going to help you. 

 

I had Barrett's Esophagus, a Hiatal hernia, and GERD.  The endoscopies I had showed that my sphincter was open all the time, which is what allowed the acid to reflux up into my esophagus and cause Barrett's. 

 

I would use the internet to search the hospitals in your area for a surgeon who specializes in Thoracic surgery.  If you can get an appointment with a surgeon they may order additional testing of their own to see if you are truly a candidate for the surgery.  There are some factors that indicate whether the surgery will actually help you depending on the test results.  I'm not sure where you live, but if it's in the Seattle area, I'd gladly refer you to my surgeon who was absolutely wonderful.  Good luck to you and let me know how it goes.

1/10/08 4:55pm

Thank you for your reply. I am in Illinois.

The main problem is that my doctors do not want to be bothered. I just want to be fixed. Do you know what the PH score means? I cannot find info on it.

Thanks again.

1/10/08 5:23pm

It seemed to me that my doctors didn't want to be bothered either.  I assume that's because I didn't have health insurance, and Nissen Fundoplication is an expensive ($30-$40K) procedure. 

 

I found some info regarding pH scores by searching Johnson-Demeester scores.  I see that scores below 22.4 are normal, so I would assume that if yours was 60+ you definately have severe acid.

 

If you haven't had it yet, you will probably need to have a Manometry test done, which measures the pressure within the esophagus when you swallow.  It's very uncomfortable, yet necessary to determine whether you are a candidate for the surgery.

 

 

1/10/08 5:31pm

Thanks again. I am looking up Thoracic surgeons now. I will go back to my doctor for a referral when I find one.

 

1/10/08 5:57pm
Stand up to your doctor and demand to get that referral.  I just read your original post as see that your experience was quite similar to mine.  Sometimes I REALLY wonder if the doctors do not have some sort of alliance with the drug companies.  Sure, maybe those drugs help people with mild reflux symptoms, but they sure aren't going to fix your Hiatal hernia. 
1/10/08 8:27pm

I go back every two weeks to my doctor. It has been so frustrating. But, this last visit he said that he was going to refer me to a gastroenterologist (my doctor is a family physician). The main thing is that I do not want to go thru another endoscopy or PH test or anything. The last GI doctor I saw just kept shoving carafate (increased dosages at a time) down my throat.

I am releived to see that someone has been through similar to me.

1/11/08 11:49am

Yes, medical doctors (including gastroenterologists) practice medicine, hence they prescribe medicine.  If the medicine is not working for you, chances are the surgery could help.  However, you will not get a surgeon to agree that you are a candidate for the surgery until you have undergone all of the proper testing to assure the surgery will benefit you.  This normally includes an endoscopy, pH testing, and manometry or pressure testing, and possibly even a barium swallow.  Although I had already had both an endoscopy and pH testing once I was finally able to meet with my surgeon, he wanted to perform the testing again himself to assure it was done properly, etc.  The results from these tests when performed by my surgeon varied slightly from the results of them when the gastroenterologist did the tests and proved beyond a shadow of doubt that I was a candidate for the surgery. 

 

The surgery has improved my life tremendously.  I have not had heartburn one time in 5 months.  I had heartburn every day for at least 20 years and now it's miraculously gone.  I like to say "I left my heartburn at Swedish Hospital."  I even had heartburn the morning of my surgery, but once I woke up from surgery it was gone, and has been gone ever since. 

 

 

 

 

1/11/08 12:06pm

Thanks to your suggestions, this morning, I had contacted a renowned thoratic surgeon in my area (he is the head of Thoratic surgury unit at University of Chicago hospital. I had e-mailed him and he responded!

I only have one obstacle to go through - I have to change insurance plans with my employer. I can do this and it will be effective April 1st. After I change insurance plans I can make an appointment and see Dr. Ferguson. Hopefully it will be resolved then.

Thank you again for your suggestions.

1/11/08 12:10pm
That's great news.  I do wish you luck.  Keep me posted.
Anonymous
jean sweat
12/21/10 12:47am

have you tried nexium????

12/22/10 4:05am

Karla,

I have read your post, and was wondering if you could help me. I live in Oregon, and haven't been able to find an experienced surgeon in my area. Could you tell me who your Doctor was in washington? I would really appreciate it!! I hope you still read these posts. How are you doing now? Are things still ok?

Thank you

Jm

jmeirndorf541@gmail.com

1/12/08 9:31pm
Hello I had two nissen fundoplication surgeries because I had severe Gerd/Barrett's Esophagus with a very large hiatal hernia, five years ago I had my first surgery (fundo) 6 months later I had to have surgery again to fix the hernia. A year later I had to have surgery again because the fundo was too tight and I coulnt swallow. Plus the hernia because extremely large and they had to put mesh in. Now four years later I had to have the surgeries undone and have gastric bypass surgery (because I had hurtburn again very bad a night, the barretts was getting worse, still couldnt vomit and was always feeling awful, I was not able to do sit ups as my stomach was in such pain) I am not overweight I am 5 8 and weight 130 lbs.and Im a very positive person and I work out at the gym. Doctor says inside were a mess stomach all up in my lungs. Gastric bypass not good situation After the gastric bypass surgery I had to have my gallblader taken out. Both surgeries were alwful. I was put into hospital 4 times. Im not trying to be negative or anything. Just want to let you know that the surgery doesnt always turn out the way we might want it to. I know a few people who have had it done and it worked for some and some it has created more problems then before. Sometimes I wish I didnt do any surgery. I recently had my esophagus burned to get rid of the Barrett's, however I was in extreme pain and not able to eat or drink for 4 weeks, (which I did lose 20lbs). I had the best doctors one was from Cleveland clinic. I just wanted to give you this info. Hopefully everything will work out for you. ( I can handle pain but having all these surgergies were very painful (the second fundo I had to have an epidural in my back (constant) for four days and then went home and on pain meds for weeks not just days. I hope your surgery goes well. feel free to write to me directly if any additional info is needed.
1/14/08 11:43am

I'm sorry your experience has been so horrible.  I do knew that the surgery doesn't work for everyone, and feel very blessed that I have had such a good experience with it.  Also, they fixed my hernia at the same time as the fundo, so that probably saved me some grief as well, versus having to have a 2nd surgery for it.

 

Thank you for sharing your experience.

 

 

1/30/08 12:26pm

iam so glad everything worked out for you!!! but i fear after the surgery, i was told i may not beable to burp! was that true for you?  you spoke about gas alot, where is this coming from?  was it painful? was it painful to swallow? please give me some do's and don'ts that you have experienced.

hope to hear from you soon!!!

1/30/08 12:35pm

I am able to burp, but from what I know, that depends on how tight the surgeon makes the wrap.  I am however, very happy that I don't burp 182 times a day like I did before the surgery. 

 

You get gas because the gas that is naturally produced by your body has to escape from somewhere.  I feel better to have a little gas than be burping all day long.

 

There is pain after the surgery, just like any surgery, but it does ease up after a few weeks.  I'd say at 5 months post surgery I am fully recovered from it. 

 

I have had no trouble swallowing.  I would say it's a good idea to eat small bites of food and chew it very well, and take your time eating, even say 3-4 months after the surgery.  I had a few episodes of spasms, which my doctor said could have been the result of eating too much, too fast.  I cut my portions back a little and haven't had any more trouble.

 

Are you having the surgery soon?  Best of luck to you.  Please feel free to ask more questions if you have them.  I'd be glad to share my experience.

 

Take care!

 

1/30/08 3:50pm
my surgery is on 02-19-08.  i fear the after math of surgery.  i have read stories where people have had spasms and they said it was very painful.  for the first two weeks you had to eat soft foods?
1/30/08 4:35pm
my surgery is on 02-19-08.  my fears starts with having spasms.  for the first two weeks were you only able to eat soft foods?  did it hurt for you to swallow?
1/30/08 7:26pm

I did stay on a completely liquid then soft diet for the first 2 weeks.  I didn't really have any trouble swallowing, and I believe that is because I did completely stick to that diet.  I drank protein shakes that I make myself, I can tell you how if you'd like.  I ate a lot of Gerber Rice Cereal, the kind with the banana.  I mixed in milk to a thin consistancy and added some sugar.  That was great.  I ate a lot of yogurt, other baby foods like the fruits.  I also ate mashed potatoes, and found it was very easy to just micowave a potatoe and mash it with milk and butter.  You can get pretty creative when your diet is limited, but I survived and it wasn't that bad.  It never hurt for me to swallow.

 

Another thing I would suggest is to make sure you have plenty of help around your house for at least a week after your surgery.  You shouldn't lift much of anything, I'd say even a gallon of milk.  Have someone pour a few portions of beverages so you don't have to lift any containers that may be too heavy.  Try to have help with normal day-to-day housework because you don't really want to be bending over and being up and down a lot like doing laundry.  I'd suggest really taking it easy if you can, as hard as that may be for some, and really helping yourself recover.  Know that in just a short time you'll be back up and better than ever if your surgery goes well. 

 

Looking back on the episodes of spasms that I did have, at about 4 months after my surgery, I feel I probably could have prevented them by eating slower, taking smaller bites, and drinking more water.  I was so happy that I could eat such a larger variety of food since I didn't get heartburn anymore that I was no doubt over-eating.  That along with not drinking enough water is what I whole-heartedly believe is what caused my spasms.  The pain WAS severe, and it really scared me.  I went back to my surgeon just to make sure that what I had was spasms.  They did some tests to make sure that my wrap had not slipped or come undone.  All was in place and my surgeon told me to slow down a little on the eating.  I haven't had any trouble since then.  I've been eating smaller portions and slower, and have even lost about 7 more lbs. 

 

Good luck to you!  I hope your experience is as good as mine has been with this.  I know it's scary, but if you have an experienced surgeon I think you'll do fine. 

Anonymous
Janice
6/11/08 8:06pm

Hi, I wonder if anyone will see this post.  I'm scheduled on July 16th at Cleveland Clinic; I think I know what to expect, but at the same time I don't think I know a thing!  Your posts have given me great insight as well as some apprehension.

 

My reflux has been on-going for maybe 15 years, probably more; it now impacts my breathing, my vocal cords and (they're hoping) that it may be a contributing factor in my daily migraine..althought the Dr.s' at CC said nonsense to that. I'm on protonix twice a day plus tagamet with days where the rolaids come out too.  I've developed a stricture in my esophagus too.

 

They told me that I was "no slam dunk" that I have a 90% chance of this being successful, that I need to expect to have gas bloat and (now I find out) dysphagia..but for how long?, I don't know.  I haven't received my packet of info from them yet, so I have only a vague understanding of the pre-op appointments, and, until I found this and another post, not much understanding about the post op situation...oh they're removing my gallbladder at the same time.

 

I hope I hear from someone!, I find myself in the surprising position of becoming nervous about this.  I say surprising, because I am not normally like this and I think it's  due to a few things, not enough knowledge; not being at my "home" hospital, concern about the post op things and I have 10 more pounds to get to my surgical weight, they're sticklers about you being as close to your ideal weight as possible..I've hit a plateau and I'm worried about that!

 

Thanks,

Janice

Anonymous
Anonymous
6/12/08 12:03pm

Hi Janice,

 

What are you scheduled for, pre-op tests or the actual procedure? 

 

From my experience, I have had more gas since I had my surgery 10 months ago, but it has not really been unbearable.  I have noticed that certain foods that I eat make this worse, so I just try to avoid those foods.  I only had a little trouble swallowing for a week or two.  For the first 2 weeks after the surgery I was on a liquid diet, and I absolutely stuck to that.  Once I could eat solid foods again, I just focused on eating very small bites and chewing well before I swallowed.  I think it's also a good idea to eat smaller portions, more frequently so you don't overeat.   I think that if you do those things you should be fine. 

 

I am a firm believer that the success of this surgery is largely based on how a patient takes care of themselves afterwards.  My boyfriend who has also had the surgery convinced me that you sort of have to "protect" your surgery, meaning just take really good care of yourself so it can heal properly. 

 

One thing for certain is you should ask your surgeon how many of these procedures they have performed.  100 or more would prove they're probably pretty good at it.  My surgeon and his staff did an excellent job of giving me all of the information I needed.  Surely I was still scared too, as everyone going under the knive would be.

 

I would guess that the reason the doctor is focused on being close to your ideal weight would be because if there is extra fatty tissue surrounding the area they need to access, it makes it much more difficult for them.  I ended up with a 6th little incision due to this because they just couldn't get around the extra fatty tissue. 

 

I am aware that not all of these procedures work well for everyone, but it has surely improved the quality of my life.  I've lost about 30 pounds and I'm not sick everyday of my life anymore.  In fact I can't remember when the last time I was absolutely nauseated to the point I couldn't stand up, but I know for certain that it was at least 10 months ago.  I don't have to rely on taking a pill, that may or may not work for me.  I can sleep comfortably without waking up in the middle of the night with that fire that just won't go out in my chest. 

 

Keep in touch and let me know how it goes for you, and good luck!

 

Karla

 

 

Anonymous
KayBee
6/18/08 9:41am

Janice, I just had my surgery on May 29th.  I am so happy with the outcome.  I've had absolutely no heartburn at all.  It was so amazing to be able to drink a glass of orange juice with no problem.  As well as all the other weird trigger foods; ketchup and bananas...no problem!  Due to insurance issues I had to fly to the Boston area to have my surgery.  I stayed overnight in the hospital and then drove to relatives in New Hampshire where I layed on their couch for a week.  My surgeon insisted that he see me in person in one week.  (I'm glad he insisted)  I flew home to DC and followed up with a direct phone call to the surgeon a week later.  The only issue I had at first was the pain across my upper chest when I ate.  It was weird how the incisions didn't hurt, but the chest was painful.  The surgeon said that was normal due to the CO2 gas used during the surgery.  He told me to take advil at meals and by now the pain is non-existent.  I get full very fast and only eat small amounts at a time being very careful to chew completely.  Dr. Val said you must not make your stomach do the work of your teeth...chew chew chew.  I've lost 11 pounds since May 29th and love it!!

10/26/08 12:49pm

Maybe someone out there had this combo surgery that I has been recommended to me.  Before I can have the Nissen Fundo surgery, I must have the Cricopharngeal Myotomy and Diverticulotomy (or diverticulostomy) so I will be able to swallow well and hopefully have fewer problems with the Nissen Fundo surgery.  I know this means a lot of time on a liquid diet and soft foods.  They want to do both ASAP.  I'm thin so I don't want to lose too much weight. I'm 134 pounds, 5'7" and 54 years old.  Any helpful comments or suggestions anybody? Gloria

Anonymous
amanda
3/23/09 11:12am

I just had surgery myself and they also removed my gall bladder and i agree 100% with you its just been a few days but i feel like im going to have my life back im only going to be 27 years old and i have missed out on a lot in the past few years dealing with the constant sickness and worry of geting sick.thank you for sharing your storie and reassuring me that i will be ok.

Anonymous
Anonymous
6/ 9/09 11:01am

I suffered with indigestion for 36 years and it finally got so out of hand, that I was referred to a wonderful Doctor here in East Bay of California.  My reflux had gotten so bad that I had to sleep in a lounge chair because if I laid down the acid would climb into my throat and then down into my lungs. I had the surgery in 1996 and HAVE NEVER EVER HAD AN ACID OR STOMACH PROBLEM!  Strangely enough when I awoke in the hospital I noticed a video tape next to my head on the pillow.  I asked the nurse what it was and she told me it was of my surgery.  I gave it to my husband to take home and watch.  I then watched it myself and was amazed.  When I went for my Dr. check up a month later and she told me everything looked great, I told her I agreed, that my liver looked wonderful.  She said "how did you see that?"  I told her I had the tape and she was horrified.....and asked me if I would please return it.  Apparently it was not for me to share and she couldn't believe I had it.  Of course I returned it.  I guess it was for training purposes, or for their safety to verify the surgery was done correctly.  I would recommend this surgery to everybody with my problem.

4/19/10 2:27am

Just had it done last monday and anything I eat, I feel very bloated. Eating cream of wheat in the morning (about 1/4 cup w/ sugar and milk) and 1/2 cup of juice. As far as eating 3 hours later, I'm still bloated and feeling nausea. Can't take anything for the nausea because I'm allergic to the medications. I'll eat about 1/4 portion of cream of mushroom soup for dinner. Any suggestions or just need to go thru the weeks of healing.

8/18/10 10:18am

Wish I had known about this surgery a few years ago.  Could have saved myself a few hospitalizations due to aspiration while sleeping.

 

Dr. Jose Falco performed my surgery at the Northfield Minnesota hospital.  This surgery was not painful at all.  More discomfort than pain.  The doctor was very helpful in telling what to expect and the progression of healing.  Everything went as planned and have no problems at this time. 

 

I had my surgery on the 8th of July.  Went through two weeks of the "slimey food"  diet.  Started back on regular foods slowly, and back to work after three weeks.  NO heartburn, no blocks under the head of the bed, no extra pillows, no sleeping in a recliner on occasion.  Yes to a bowl of ice cream before bed, tomato products, fried foods.  Once in a while something will hang up at the site of the fundoplasty when I swallow.  Probably a result of not chewing food well enough.  It usually resolves quickly with sipping water.

 

I do heavy lifting at work and have had no problems with that.  I also play 54 - 72 holes of golf per week without difficulty.

 

Don't suffer needlessly with reflux when you can enjoy life again.

8/ 3/11 12:26am

I go for my surgery this Friday, August 5th and am scared to death. This is not my first surgery ever and that is not what scares me, just the whole after care.

 

I went to the store today and stocked up on Jello and even bought chicken base to make broth.  

 

After reading the comments here, I feel a bit more at ease. (Until Friday morning)

 

How quick were you eating regular food again?  

9/19/11 10:53am

Yours is the latest comment I have seen as I read these posts.  Can you tell me how you are feeling a month after your operation and how you are? 

 

I have an appointment at Mayo in October and am very anxious.

 

I hope that all has turned out well for you.

 

Blessings, CMC

9/19/11 10:54am

Yours is the latest comment I have seen as I read these posts.  Can you tell me how you are feeling a month after your operation and how you are? 

 

I have an appointment at Mayo in October and am very anxious.

 

I hope that all has turned out well for you.

 

Blessings, CMC

9/19/11 11:32pm

Thanks for asking. A little over a month out - its been rough at times, I am not going to lie. It has been worth it, heartburn is mostly gone.

 

At first I had Cdiff and was sick with diarrhea from that and now I am getting diarrhea with almost everything I eat. So from research I read this can be common for a short time.

 

Be prepared, be knowledge and ask questions!  Good luck! 

Anonymous
jkm
8/ 3/11 1:38pm

Karla

I was wondering if you could help me? Who was your Docter who did your surgery at the Swedish Hospital in Washington? I have been trying to fine a good experienced surgeon to do this surgery. We don't have any in our area that I know of, and I have been researching. My insurance will let me go to Washington.

Thanks JM

 

8/15/11 10:54pm

I had it done 7/14. It has been slow going, but overall feel GREAT! No more reflux. I think I pushed eating to fast. Listen to your body. Chew and chew. Eat small meals and stop when you feel full. The feeling if you don't SUCKS. I just need to slow down. Hope it went well.

Anonymous
future candidate
9/ 1/11 10:43am

karla, what is the gas issue that you were having? i currently have more gas and burping since i have had acid reflux since 8 years ago. after your surgery, you said the burping is gone but now you have more gas?

9/15/11 7:21pm

Hi Karla,

 

I hope you are still getting these posts.  The last one I read from you was in 2008.

I have gerd, LPR and an open LES.  There are absolutely no medicines that work on me so I have finally called Mayo in Jacksonville where I live for an appointment.

 

I have waited so long because I have been living in fear of this operation.  All I have ever read on the internet concerning this procedure was negative.  Your post was like a life saver for me.

 

Right now I am very anxious about the testing that will have to be done.  I have

been scoped several times so I am fine with that test.  I know that I will more than likely have to do a 24 hour probe test and the mammetry test.  I am letting fear drive me.  Can you tell me a little more about these tests so that I can relax a little?  I keep telling myself that I have to go thru these tests and then the operation if I want my life back.

 

I hope you are doing well several years later.

 

CMC

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

11/12/11 7:46am

Hi,

I just had the Nissen Fund and Hital Hernia Repaired 10/28/11, I woke up the same day of surgery in severve pain across my chest and alot of gas. They worked me up cardiac which was not the problem. I stayed in the hospital for 6 days, went home still having the pain left chest, neck and shoulder. Oh I forgot I was spilling up blood in hospital right after surgery too. They also followed up with a lung MD because my O2 Sat were in the 80's. I think when they incubated me the tube probably cut something in throat. Anyway Lung MD say I was fine I kept blowing in the airflow and walking the halls until my O2 sat was in the 90's. After d/c I continue to have the pain and alot of gas. Saw the MD 11/10/post op told me to continue to take it easy going back to work 4 hrs. light duty till 11/28 but need to call in a week with update.

Has anymore experience the severe pain in left chest and shoulder and alot of gas and how long will this last?

 

Tx,

T

 

11/13/11 3:05am

Oh dear, Tina,

 

Sorry you have had such an awful experience. Hope this calms down soon and you return to full health.

 

My own fundo was a piece of cake. Out of hospital next day , no pian and off all meds. But I have heard of others like yourself whose op wasn't so comfortable.

Some back pain is caused form the operation where they pump air into the abdominal cavity to give a bit of 'working space' but residue of that is usually muscular which passes in a day or two at most.

11/13/11 8:45am

Thanks for your comforting words. You were truly Blessed I am Happy for you. I will be there soon. Again Tx,

Tina

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