My fourth child, an eight-year-old boy, was diagnosed (at 18 months) with GERD. He was breastfed exclusively for 6 months and weaned at 1 year. Looking back on that first year, the only GERD symptoms I can identify were vomiting if he coughed while nursing. I seemed like a gag reflex. He never spit up and seldom burped. He was a big, healthy, happy baby.
At about 15 or 16 months, I remember his throwing up, yet not seeming sick. Of course, I kept him away from others for a day or so, not to expose other children to the flu. About a week later, the same thing happened. Another week passed, and he was sick--again with no other flu symptoms. Then, instead of once weekly vomiting, it became every few days. When it reached once a day, I finally went to the pediatrician. My son was diagnosed then with GERD and was given Zantac which cleared his symptoms almost immediately. We also limited the grapefruit/orange sections, the Hawaiian pizza, and the tomato soup that had seemed to almost immediately induce vomiting. After a couple months, I stopped giving him the medicine at the suggestion of my doctor and only medicated him when his symptoms "flared."
As he has grown, he's been both easier and harder to treat. Easier because he's growing up, can talk, is getting bigger, vomits into a toilet, etc. Harder because we no longer live across the street from a children's hospital. Instead, we're traffic hours away, the doctors keep changing, each new specialist wants to observe and start over, or it takes months to get the appointment, then diagnostic equipment breaks . . . Anyway, it seems to not bother him except once a year when the reflux flares, he starts wheezing and coughing (sounding like a chronic smoker), coughing so hard he vomits (a pattern for him), and he ends up with bronchitis/pneumonia. This year--the first exception--he passed through winter unscathed. Still, I worry.
Frankly, my son is a highly gifted, intense and behaviorally challenging child. Doctor's offices are understandably torturous for the both of us. As a result, I tend to avoid them. Then I think of my mother with her almost bi-monthly esophageal dilation and her "snacks" of baby rice cereal (one of the few things that doesn't cause her pain to eat), and I'm consumed with guilt.
Is my determination to avoid doctor's office trauma for us both actually hurting him? Have I erred in my quest to keep a young child off powerful medications? Is there an effective, natural remedy besides limiting acidic foods? Is long-term damage being done even when he's not presenting classic GERD symptoms? Is there a specialist in the greater San Francisco Bay area (we live in Tracy, CA) you would recommend and a specific course of action to try?


Hello! Thank you for your message. You are asking many good questions. I will try to address as many issues as possible. We can follow up and talk some more.
My feeling is - you need a good diagnosis. I am not a doctor, I am a mom too. However, I have talked with hundreds of parents and they all tell me similar stories. It seems like the reflux goes away and then at some point, it flares. It makes me wonder if something like an illness, a growth spurt, change of diet, etc puts the digestive system over the edge. There is even some evidence that reflux is worse during allergy season. The added coughing and nasal congestion of allergy season can cause more irritation to the stomach and start the reflux.
Since your son has a history of reflux in infancy and you have a family member with a history, it is important to confirm the diagnosis. There are some reflux look alikes such as food allergies and intolerances, celiac disease and eosinophilic esophagitis. You don't want to treat a disease and find out years later that another disease is causing the symptoms.
Now the hard part: finding a doctor/hospital that you can work with. I had the experience of going to a large well known teaching hospital and getting a real run around. I had to deal with the residents and the rotating doctors too. I was able to network with some other parents and found a less famous hospital with an excellent gi department. Best of all, my doctor travels to the satellite center close to my house. I have written several blogs about finding a doctor with links to websites such as www.naspghan.org for lists of doctors.
Once you have a diagnosis, you can develop a treatment plan. My two refluxers have benefitted from reflux medications and were eventually weaned off. Now they just take medication as needed. they are both severely lactose intolerant so they are vigilant about avoiding dairy or using lactaid pills. They also use probiotics daily to reduce symptoms and increase digestive comfort. Avoiding trigger foods, elevating the bed and avoiding tight clothes may help. Also avoiding athletics after a meal.
So let me know what else is on your mind and any questions that I missed.
Lets talk again.
Jan Gambino