Nissen Fundoplicaton Surgery Questions

By hummerlady54 Thursday, October 23, 2008

My situation is very complicated. The surgeon said I must have my throat operated on first for cricopharngeal achalesia and fixing a pocket (diverticuli) where food gets stuck and makes swallowing difficult, then I can have the Fundo surgery after that.  When he does the Nissen Fundo surgery he said he will have to remove my g-tube and remove any scar tissue plus he must detach my stapled stomach to put it in a new position.  I had no idea my stomach had been stapled to something when the g-tube was placed.  He will have to cut away any scar tissue there too.  He cannot guarantee a great outcome but he's very optimistic.  I do have confidence in this surgeron.  He is very skilled, compassionate and has a wonderful repution. 

 

I have run out of options. I have tried all the anti-reflux medications for years with no benefit.  My pH levels continue to rise.  My throat, esphoagus, vocal cords and stomach are on fire every day.  The meds are making my osteoporosis worse.  I'm on Carafate too until I have the surgery.  I want much to feel better.  Acid Reflux is just one of my many diagnoses most of which are related to my brain disease (cerebellar atrophy). My digestive system is "dysfunctional and disorganized from the base of my tongue to the anal sphincter".  I sure hope I'm not going to be worse after this surgery.  I don't expect anyone else to have exactly my problems but if anyone has some encouragement about going through with the surgery, I'd like to hear from you.  I sure don't want to end up in wose shape than I already am.  I've had 18 surgeries and this is the only one I've even felt uncertain about.  Having 4 brain surgeries was easier than this decison.  What else should I be asking the surgeon? Undecided

Cricopharngeal Myotomy post-op
1/16/09 11:45pm

I am in a similar situation.  I had three months of not being able to swallow anything but ensure and liquid.  I had my esophagus stretched in December and can now eat soft food and baby food.  I am being checked now for achalasia, they want to try botox next.  I am on my third gastrologist and ent.  No one has any answers for me.  I have an MRI of the brain and a new barrium swallow with different consistancies of liquid and a speech pathologist on Tuesday.  I was on carafate and lidocaine which did nothing for me, prevacid solutabs which were hard to swallow and now Zegerid twice a day and Reglan four times a day.  I would love to know how your precedures went and more about your situation.

2/ 6/09 11:51am

Dear Daun,

Forgive me for not responding right away to your comment.  I was swallowng very well on the eighth day after the Cricopharngeal Myotomy but ever since the Nissen Fundoplication, I have to have only liquified foods.  I cannot have Ensure or any formula to balance my nutritional needs due to food allergies.  I think it's psychologically, but I feel hungry all the time.  I find that my stomach can take in quite a bit of fluid and liquified soup or smoothies but I just can't anything thick.  I'm so bored with my limited choices in food and anxious to eat a semi-normal meal.  Going places where food it served is quite a challenge for me. I attended a memorial service last Saturday and to my dismay, the only food I could consume was lemonade and the pudding & cream of a slice of pie.  Bummer! 

 

Today I will have my esophagus dilated at the hospital where I had my surgery.  I'm very hopeful that this procedure will allow me to eat a wider or near normal assortment of foods.  I do have a history of esophageal spasms so this is my second time having dilation.  The esophageal spasms have NEVER been this bad before. The Esophagram showed the esophagus as being extremely swollen and "beak shaped" or spastic to the point of only allowing drips of fluid to get through.  I was very dismayed to see how swollen my esophagus was around the Nissen surgical sight.  I think that swelling is much better now but whether or not my esphagus has stopped spasming so much is anyone's guess. When the GI doc goes in there today, he will tell  me if the swelling is a great concern or not.  I suspect if the swelling is significant, he will not do the dilation.  I mentally have a nice meal planned in my head if he is success at opening up the esophagus.  For me, I know my brain is sending signals for the esophagus to spasm. I have damage to my cerebellum and brain stem which coordinated muscle movement and much more.  My case is very complex and I don't want any one to think my experience means the same will happen to them.

 

Despite my difficulties, I do NOT regret having either one of the surgeries. When my brain calms down, I will be better off.  I just never know what unusual thing my CNS will do when under physical stress.  Mentally and emotionally I can handle all of this. 

 

How are you doing?  Worried you will never eat normal again? I was diagnosed with severe achalasia in my throat. Cutting the bands of muscles in the CP Myotomy was what needed to be done  Best of luck to you on the Botox.  I receive Botox (Myobloc)injections in my arms to relieve some of the skeletal muscle contractions in my hands. It helps.  Be sure to select an ENT doctor very well experienced in Botox injection to the throat.  You don't need more swallowing probems.

 

I'll post again after my dilation procedure is over.  My prayers are many for a good outcome.  God bless you and I pray you will find relief too.

4/ 3/09 11:08am

I'm now 3 months post-op after my Nissen Fundoplication surgery. Due to my neurological problems with internal spasms, my esophagus still spasms forming strictures for hours or days at a time.  I work around this problem by maintaining my nutrition through my gastric tube when necessary or eating soup and other foods that will go through the narrow esophagus.  It will be a continual problem for me but I have progressed to eating crunch things like torilla chips. Yummy!  My esophagus has been dysfunctional for so long, my GI doc says it has to learn how to handle food properly.  I am to give it at least 6 months before they look at other possible problems.  I healed very well from the actual surgery. No problems there!  Mine is not the typical case.  The Nissen full wrap was done semi-loose but not so lose acid can come back up.  I don't severe GERD anymore. That was the goal and it worked. 

 

Please don't judge my other medical complication with your case. Ask your doctor and discuss your concerns.  I'm actually very happy I went through with the Cricopharngeal Myotomy surgery in December 2008 then the Nissen in January. I have no regrets at all.  I still recommend it to patients who are really suffering with severe GERD or the acid levels are so high the doctor recommends it to prevent cancer or Barrett's.  I don't need any other problems.  I have enough, thank you!

 

God bless anyone ready this post and wondering about your own case or a loved one.  Ask questions, don't just read.  Someone has information or their own experience which will be similar to yours.  Gloria (aka Hummerlady)

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By hummerlady54— Last Modified: 10/26/11, First Published: 10/23/08