Wednesday, May 23, 2012

I have a 6 week old son who was diagnosed with silent reflux...

By hfrazier Wednesday, October 08, 2008

He doesn't spit up much, although occasionally, but he gets a sour look on his face and will scream at the drop of a hat as the acid comes up. We started him on axid and while it seemed to improve the symptoms, he was still experiencing discomfort. We went back to the doctor and we are starting him on prevacid this evening. Anyone with any experience with prevacid, any advice or anything that may make this transition easier, it would be greatly appreciated.

 

Thank you.

Jan Gambino, Health Guide
10/ 9/08 5:21pm

Hello! Good luck with the Prevacid. Are you using the solutab? Jan

10/ 9/08 6:40pm

hi Jan,

 

Thank for replying to this and my sharepoint. I was uncertain as to where I should leave the question so I figured it couldn't hurt to cover all my bases.

 

We are using the solutab. Today is the second day so as much as I wish I could say that prevacid is helping, I can't yet make that claim. We are anxious to see how well it works. Our doc originally put him on axid as my son was making sour faces, very uncomfortable and squirming during and after feedings, and would go from fine to screaming in 10 seconds flat. While axid seemed to help alleviate some of the pain, but not all of it, we went back and have moved on to prevacid. The goal is to really help him with the discomfort. He is upset and uncomfortable on a regular basis. And by extension it would make it feel better (and sleep better) if he felt better (and slept better as well).

 

The dosing is 15mg (I think mg), I don't have it in front of me...1x daily. We give it to him at least a 1/2 hour before a meal.

 

Another ped doc in the office with ours said she believed that acid reflux was highly over diagnosed until her third child had it and that prevacid was the difference between night and day in her daughter.

 

How long after starting prevacid did you see a response/change in your child?

 

Thank you for your wishes of Good Luck...we need it.

 

Heather

Jan Gambino, Health Guide
10/ 9/08 9:49pm

Hello Heather,

It is fine to post in either or both sections. Lets just hope I don't give you conflicting answers from one section to another!

It does take a bit of time to see improvement from the medication. Once in a while a parent will tell me that things were better from the first dose. Often it takes a few doses over a few days to see gradual improvement.

While you are trying the new medication, it makes sense to stay in close contact with the doctor. There is some trial and error to finding the right treatment plan for each baby. There is on one size fits all treatment for all babies.

It sounds like your doctors have much experience with reflux so that will be a huge advantage.

Good luck and let us know how your little one is doing.

Jan

10/ 9/08 10:10pm

Jan,

 

Will do, and I appreciate your responses as well as this website as a great resource. We had this idea as to how the first 6 weeks of Ethan's life were going to go and needless to say, it didn't include him crying and writhing in pain. But I feel like we're on the road to better days. Thanks again.

 

Heather

Jan Gambino, Health Guide
10/11/08 8:17pm

Heather, Ethan is adorable! He is lucky to have you as his mother. Keep up the good work and let us know how you and Ethan are doing! Jan

10/12/08 12:46am

Thank you. We feel very blessed to have him...we're the lucky ones! I will let you know. We had to switch formulas, the soy wasn't agreeing with him. It is one thing after another but I am confident that we'll get this worked out. Thanks for the support. 

10/15/08 2:51am

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Anonymous
Concerned Mom - Go with Your Heart....
10/21/08 2:23pm

Prevacid inhibits the absorption of calcium which a growing baby needs. Calcium can also help to strengthen the lower esophageal sphincter and keep it closed so the food or liquid does not come back up in the throat. My son was on Prevacid but this is not a cure. I kept on trying to find a solution to the problem not a bandaid. Please research more on what might effecting your child. It could be a bacterial or fungal overgrowth. Probiotics do wonders for children with this problem because their gut flora is not in balance. Research probiotics acidophlus especially. My son was labeled with reflux from 2 weeks old. By 7 months I had enough of the "spitting up" and found a doctor who cured him and he stopped his refluxing immediately. We give him a calcium supplement and a probiotic every day. He is doing great and has never had a cold. He is now 15 months old.

Prevacid stops the production of gastric acid which is needed to fight bad bacteria in your gut. If you take prevacid you run the risk of getting sick becuase you don't have that gastric acid to kill off that bacteria.

Research how children with autism have reflux and why. They believe it's becuase they have a fungal or bacterial overgrowth causing toxins to enter the blood stream.

That's why Jenny McCarthy was able to heal her son of Autism.

No one has been able to answer the question of why one infant refluxes and another does not.

Good luck and God bless.

10/23/08 1:55am

Hi there! I also have a baby that is a silent refluxer. We just now put her on prevacid and we are waiting to see if it works. I know exactly what you are going thru. My daughter is 6 months old and she was diagnosed with gerd at 6 weeks old. I think it takes a few weeks for the medicine to start working. I wish you the best. Hang in there.    

 

 

10/23/08 3:38am

Thank you! Keep me posted how your daughter does. I am almost at the two week mark with prevacid. I am seeing some improvement and hopefully it will continue. Take care!

Anonymous
Concerned Mom- Go with Your Heart....
10/23/08 2:49pm

Not sure if you were able to view my comments but my son was diagnosed with "reflux" and it was not that. Please see belpow:

Prevacid inhibits the absorption of calcium which a growing baby needs. Calcium can also help to strengthen the lower esophageal sphincter and keep it closed so the food or liquid does not come back up in the throat. My son was on Prevacid but this is not a cure. I kept on trying to find a solution to the problem not a bandaid. Please research more on what might effecting your child. It could be a bacterial or fungal overgrowth. Probiotics do wonders for children with this problem because their gut flora is not in balance. Research probiotics acidophlus especially. My son was labeled with reflux from 2 weeks old. By 7 months I had enough of the "spitting up" and found a doctor who cured him and he stopped his refluxing immediately. We give him a calcium supplement and a probiotic every day. He is doing great and has never had a cold. He is now 15 months old.

Prevacid stops the production of gastric acid which is needed to fight bad bacteria in your gut. If you take prevacid you run the risk of getting sick becuase you don't have that gastric acid to kill off that bacteria.

Research how children with autism have reflux and why. They believe it's becuase they have a fungal or bacterial overgrowth causing toxins to enter the blood stream.

That's why Jenny McCarthy was able to heal her son of Autism.

No one has been able to answer the question of why one infant refluxes and another does not.

Good luck and God bless.

10/23/08 3:40pm

Thank you for your comments. I have a entire list of questions for my ped at our next appt. (Tuesday) and included are some of the things you mentioned. Specifically I am going to talk to him about supplements and probiotics. I am so glad to hear that your son is doing well and while I don't believe these are solutions for every child with AR, I'm glad you were able to find answers!

 

The great thing about this forum is that we can share and everyone can benefit. I really appreciate all the information you gave me and I'll keep you posted on what we can find out in regards to my son.

 

Take care and God Bless!

Anonymous
Concerned Mom- Go with Your Heart...
10/23/08 8:50pm

Please feel free to contact me anytime. My email address is ilbacio0626@yahoo.com.

I have had the pleasure of healing another child of a person whom I met off the internet as well. He used to vomit all the time, had eczema and allergies. He no longer vomits and his eczema is gone. The allergies will take some time though as this is an IgA mediated repsonse. Let me know if you want to know more about the physical experience the body goes through. I can tell you what the difference between prevacid and zantac is and how neither are a healthy choice as they both reduce stomach acid which the body desperately need. My only goal at this point is to pass my information along to other moms and help them heal their children, as well as save them frustrating days where they should be enjoying their infants.

There is a strong relationship between labeling a child with AUTISM and have GI disorders, especially reflux. They told me to seek early intervention for my son at 6 months because shopping malls and too many people around him made him cry. Now, at 15 months he can go anywhere, and waves to every body.

Please don't over look any additional signs of what is happening to your child.

Let reflux be the way your child is communicating to you that something is wrong.

Why can't anyone answer why one child refluxes and another does not???

God bless and please feel free to contact me if you need more information.

Lisa

Jan Gambino, Health Guide
10/26/08 10:06am

Hello Lisa,

I wanted to respond to your comments about Prevacid and Zantac. If a baby or child has GERD, reducing acid is a standard treatment. Both of these medications do not eliminate all acid. Everyone needs some stomach acid to digest food. Reducing acid will not stop spit up or vomiting but it may reduce it. Further, reducing stomach acid often reduces pain and discomfort, a primary goal of treatment.

 

There are many reasons why babies cry and have digestive issues. That is why the doctor will try different treatments. Certainly a baby with bacterial overgrowth or food allergies does not need medication to reduce acid.

 

Many doctors will guess that the crying and digestive issues are related to GERD. It makes sense to try a medication for a week or two as a way to test the theory. If the baby improves, acid reflux was probably the cause and the treatment can continue. If the baby doesn't improve, the parents and the doctor need to look at other causes. I know there are times when the parents need to take the lead in looking for less common reasons for the symptoms. I am so very glad that your little guy did not stay on reflux treatment when he had bacterial overgrowth instead. I am also glad that your friends baby didn't stay on reflux treatment for food allergies.

I am a bit confused about why a baby would need calcium supplements. I thought that baby formula and breastmilk provided adequate calcium. Was your baby tested and found to be deficient? Just wondering.

Jan

Anonymous
Concerned Mom - Go with Your Heart....
10/26/08 4:06pm

Acid reflux is not a disease but a description of events occurring. The contents of the stomach are regurgitated back up the esophagus, sometimes exiting through the mouth, other times being swallowed back down. Medication is not needed! Prevacid does in fact stop some of the production of stomach acid at the source, the parietal cell in the stomach. That's why it takes about 2 weeks for this to work. It's reprogramming the body to do something different. Zantac works based on the histamine released which is why results from Zantac are seen sooner.

I feel as though everyone is trying to put a band aid on these children's wounds as opposed to healing them. It is not right that these children are suffering and all we do is write a prescription. Why don't doctors perform a stool sample to see if there is bacteria or fungus in the stool? Why, when they perform blood card samples, and its positive do they not tell the parent this is due to inflammation and what is causing it?

Do you honestly believe that so MANY babies are born with acid reflux??? Why would Mother Nature do this?

Your body has no way of talking to you but in symptoms. If you get a cold, your body can only speak with sneezing and coughing. If you touch poison ivy and get a rash, this is your body's way of talking to you, letting you know, "it's allergic".

The first course of action is to use probiotics, which are common good bacteria found in everyone's gut, even little tiny preemie babies born into this world moments ago have good bacteria in their gut. Their immune systems don't always tend to be perfect so this would help. Especially if mom was on antibiotics at time of labor.

As for the calcium, it strengthens the lower esophageal sphincter which so many doctors believe is the cause of the regurgitation. That's why TUMS has calcium in it. And if you research it, Prevacid inhibits the absorbtion of calcium, so no matter what, your baby is not getting enough of the calcium from the fromula.

Tests should be done first before trying medications, especially those where NO STUDIES HAVE BEEN CONDUCTED ON CHILDREN UNDER THE AGE OF 1!!!!

We research more about the car we are going to buy rather than researching a medical issue of our children. 

I don't want to come across as someone who thinks they know everything and is preaching, but what is do want everyone to know is that other explanations are out there and they should not take reflux as an answer and seek more advice.

1 in 150 children today have AUTISM. Most of whom were refluxing as infants and are boys. This is not genetic. It's bacterial, or fungal or viral. That's why vaccines play an important role. Reduced stomach acid can not fight the bacteria or fungus or virus, hence the toxins are an overload for the body with an already weakened immune system.

That's another topic, for another time.

I hope to help one person, who helps another and so on.

God Bless.

Lisa 

 

2/27/09 7:41pm

My son, Jasper, was born on his EDD (2007/11/01).  Labor was quick and smooth.  But a few days after he was born, he started continuous granting groaning day and night, restless even during sleep.  His PD told me it was normal.  Unfortunately, the colic symptom didn't finish till he was over 4 months old, from which time he started to refuse milk.  And gradually it became complete food strike.  We didn't know he was suffering from GERD then, and even the PD couldn't tell that.  To avoid my baby from hunger, our nanny and I had to get him into half-sleep first, and then feed him pumped milk.  Around 5 months, he started vomiting, first it was once every couple of days, and soon it became a couple of times every day.  Every feeding was like a battle.  I did some research on the web and suspected he was suffering from GERD.  So we brought him to a GI specialist, Dr. Haddad, in Walnut Creek, CA.  Dr. Haddad gave Jasper prescription of Prevacid, meanwhile he suggested us to feed
Jasper Enfamil ER.  Prevacid, plus Enfamil ER, seemed to help at first, because Jasper now could start drinking out of bottle AWAKE.  Even though feeding him still took much longer than other babies do, it was a big relief for us.  Nevertheless, vomiting came back in about two weeks; further Jasper couldn't take any food other than milk.  Whatever solid food we tried, Jasper screamed badly, each time ended with worse and worse vomiting.  One extreme case, he looked very interested when our nanny and I were eating some water melon.  So, I approached him with a small piece only to find Jasper started vomiting the moment his lips touched (absolutely no kidding!) the water melon.

With such things going on and on, we gave up feeding him any solid food.  Jasper was 100% living on Enfamil AR till he was 10 months old, when our nanny started adding a bit of lamb gravy (Gerb stage 2 jar food) to the milk bottle.

We determined to put an end to formula feeding last month, when Jasper was 14.5 months old.  For I heard of speech difficulties about babies living 100% on milk.  So, late January, we decided to switch to stage 2 jar food no matter how Jasper fought against.  And by that time, Jasper's vomiting was not that frequent, which gave us the courage to start this experiment.  As expected, Jasper first was on food strike for about one week, during which time he lost over 1lb.  Then he got used to jar food bit by bit.  Now he is 90% on jar food and drank less than 10oz of soy milk a day.  Yet he is under feeding difficulties.  Stage 3 jar food still causes him to caugh badly, followed with vomiting.

We have been concerned by Jasper's speech: he never responses if we call his name.  But, his GI specialist tried to calm us down by saying all GERD babies would show similar delay in language.  So we were not that concerned.  Nevertheless I am more and more worried by Jasper's obvious autism symptom recently after I knew of this disorder: 

1> He does not know pointing things --- if he needs something, he cries or screams in front of it.
2> He does not know how to play toys except those simple ones  --- he never listens or watches if I do a demo about the more complicate toys, and he figures out how to turn on/off those simple electronic toys purely by his OWN experiments.
3> His focus span is extremely short --- it's mission impossible to attract his attention onto something more than a few seconds, no say nothing of learning.
4> He is interested in lights and shades, and in spinning wheels.
5> He can't sleep well, still waking up quite a few times every night --- he refuses to sleep on his back once he wakes up in the midnight; instead, he prefers to lean against the bumper in his crib; or I hold him in my arms and bounce him to sleep before I put him onto his bed.

At this stage, I'm desperate to find out whether these symptoms are the results of GERD or autism.  Only after we know what's wrong, can we provide Jasper the proper set of treatments, which I believe you will agree.   I work full-time, but with Jasper suffering from one symptom to another, I am driven crazy, and can't focus on my work.

 

If you have some advice, could you share with me please?  Greatly appreciated. 

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By hfrazier— Last Modified: 10/26/11, First Published: 10/08/08