My grand daughter is having a lot of issues and is considered to be a medical mystery by John's Hopkins and Sinai Hosp in Baltimore, MD. She is on an ng feed 24/7 right now for failure to thrive. No one seems to be able to figure out what she is suffering with. From birth,she has been extremely irratible, she does have Sandifer's syndrome, extreme gerd, esophagitus, she has been having seizure-like symtoms, very rhythmatic, eyes, arms, legs, torso, turns blue, she has had every test she could probably have, 4 eegs, the last being at Children's Hosp in DC for 36 hrs and video monitring, everyone was convinced it's Sandifer's, but seems so realistic. She had 4 episodes yesterday, and apparently unless an episode happens while on the eeg, they can't determine. She has acidic and non acidic reflux. Considering the ng tube to see is surgery would help with reflux, and another eeg, any ideas?