So after that, we started his recommendation. She's been on Good Start and it seems okay, but now those episodes have started up again. This time she would not eat as much...yesterday she at 15 oz, and the day before she ate 10 oz. We video'd how she ate to show her pedi because it looked like she had a problem latching and sucking onto the nipple. Her pedi is giving us a referral to see a speech therapist.
I am so scared that she has food adversion. I don't know if she's in pain or is just scared of eating or is frustrated that she can't latch on well. She gets so frustrated that she gives up on eating and then just goes to sleep hungry. She never cries for food...
We're giving the decrease of Prevacid a try in the meantime...but if it doesn't work, I'm going to insist on them running more tests and if not, I'm going to have to get another GI specialist.
No one seems concerned...they all think she's healthy and is growing...and when they see her she's all smiles.
I've quit my job and my life is all about feeding her. I feel like I'm sinking here...
Hello Cloe's Mom,
I know what you mean-she looks so healthy, how can anything be wrong? She is growing so well. If you just wait until she is hungry, she will eat. Been there, done that. Too bad that doesn't work a bit when you have a baby with reflux. No one understands how hard we have to work to get every bit of nutrition into our babies.
I am glad you are working with the doctors on this and taking one step at a time. Even though it is maddening and feels like slow motion when you make a change, wait, make another change and wait.
As I was reading, I was thinking that going to a feeding specialist such as a speech language pathologist or occuational therapist would be the next step. You might have a combination of a physical problem (reflux) and a feeding problem (oral motor problem) or reflux and a learned behavior (feeding aversion). It is time to try to sort that out.
We know something is wrong since Chloe is communicating as best she can that feeding is not working out for her too well.
I hope that you are getting some assistance with the home care. Some parents ask a friend or relative to come for an extended visit until things settle down. It is hard work and more than one mommy can do all alone.
Come back if you want to ask questions, vent and give us updates.
Jan Gambino
The Reflux Mom