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Hey my Name is Angela. When I read your story, you described to a T what I went through with my daughter. My daughter is 2 1/2 now. But since birth she was dignose with asperation and acid reflux, she was sent home to thinken her formula with cereal and 1/2 sol. tabe of prevacid. 2 months later they were adding zantac along with the preacid, and a medicine that helped digest her formula faster. When she turned 6 months she quit eating. We had to her ped. and a local hospital every week trying to find out what was wrong. Finally I had to yell at them that she is losing weight, and will not eat. I actually had to show them how much of a fight is was to try to get the bottle in her mouth. we had to squeez the nipple to get formmula in her mouth. Her ped. finally told us to take her to a children's hospital in Pittsburgh, Pa, the next day we did and they ran all kinds of tests. We were there two weeks, they had done a scope and showed that she had sever acid refux so bad that if we would have let it go much longer it could have started to become cancer. So, the docs to us the safest way to go was a nissen-fondoplication (which is a belly wrop to stop acid from splashing up into her esph.) and put a feeding tube into her stomach. I can tell you the belly wrap has really worked wonders. We stoped all the medicine a week after she had it done. I don't know if you want to talk to your doctor about it or not, but there is an option for you. I know how hard it was trying to be a good mom and not being able to control the pain. I felt like I was a bad mom for letting her go like that for so long. But on the up side, she is alot better. She still has the feeding tube, not because of the acid reflux, she had a trach placed because of sleep apena, which causes her to asperate.  I'm just glad that I'm not the only one that went through this, because back then, I really felt like I was alone, because the doctors just looked at me like I was lying. I really do wish you the best of luck on everything.
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