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Thanks for your input, Jan.  Yes, an ENT did the tubes and adenoidectomy.  Much to my dismay, she (ENT) is not giving any useful information or advice on the recent LTR, in addition to the GERD.  I just spoke with my daughter's GI dr (nurse practitioner actually) today, and she agreed that it sounds like she needs something to help with her GI motility.  I failed to mention that my daugher has also been diagnosed with hypotonia (she receives weekly PT for this - she walks fine, but still a little clumsy & behind in the gross motor skills area).  I have reminded both of her specialists of this, but no one made the correlation until I mentioned again today to the nurse practitioner.  She said it definitely could have a lot to do with holding food in her stomach too long.  Therefore, we are going to try Erythromycin.  Have you heard of anyone using this antibiotic in low doses for GI motility?  It makes me a little nervous, as my daughter has had C Dif twice due to lots of antibiotics for ear infections.  She said it shouldn't be a problem in such a low dose.  As far as breathing issues and sleeping issues, she fortunately does not seem to have either.  Should we still see a pulmonologist in case there is aspiration?  She does cough & choke sometimes, so I do worry about this.  It just seems that each specialist is concerned about their own specialty, and do not want to cross lines.  I definitely feel that I need to advocate for her every step of the way, which I have.  Thanks for your advice!
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