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Hello Michelle, I have heard of Erythromycin being used for motility. Unfortunately, there are not too many medication choices for this type of medication. Another one that is sometimes used is Reglan. This medication has a history of side effects and limited success in treating the symptoms. It does make sense to try this treatment, especially in light of the low muscle tone. I know it is a terrible burden when you are the case manager, trying to coordinate care and make sure the entire team is aware of the various conditions and treatments. Sometimes the pediatrician serves as the case manager. Other times the GI doctor. Perhaps you could address this with the doctors and ask for some assistance with case management. If your daughter doesn't have any obvious respiratory symptoms, a visit to the pulmonogist probably isn't warranted. My daughter had constant respiratory illnesses and pneumonia. There was no doubt she was aspirating. In fact, it was the pulmonologist who suggested the possibility of GERD. Let me know what you decide about the erythromycin. Take care, Jan Gambino   The Reflux Mom