I had the Nissen fundoplication operation 6 years ago to treat my reflux. It appeared to work, and I was told that I would not be able to vomit and that I wouldn’t have reflux again. Since the operation I have vomited several times. Now I have reflux and gas frequently again, and I often feel short of breath. Is it possible that the surgery didn’t work properly? Have I damaged something with my vomiting? Please help me to find some answers.
hi I too had the surgery back in 2004 and still had symptoms afterwards, was back to doctor a number of times and they told me that the surgery is not guarenteed and that my symptoms could return, well now my symptoms have all disappeared but now I am experiencing excess gas and I am having left side pain under my ribcage so not sure if the two are related. I wish you the best of luck. so ya instead of my symptoms coming back within 5 years of the procedure my symptoms have actuallly left 6 years after the procedure opposite of what I was told, is that weird or what.
I had the nissen surgery in 2007. The reflux has been pretty controlled until recently. It is really intense again. I am worried that the wrap has come undone . I didn't think it was possible after four years. I also experience trapped gas pain, bloating, spastic colon and my food sensitivities are getting worse. I've noticed an increase in heart palpitations and shallow breathing as the symptoms have become worse. I am a female, I run daily and I am approximately 115 lbs. The surgery and recovery are a real pain, but it is worth the relief, so I am ready to try again.
I had the nissan done about 8 years ago and now am having lots of problems with eating. Food is staying stuck in my chest while I am eating and I feel like throwing up before I am done eating. It gives me alot of pain. I have to burp alot and I don't actually throw up but I do bring up clear stuff that looks like water and after that I feel better. I have not gone to the doctor yet cause I just don't want to go through all those test they had put me through those years ago, and I am afraid they will want to do the surgery again. I have been through so much so I think I will watch what I eat and see what happens. Good luck to you all but I know how you feel.
The Nissen fundoplication should prevent you from vomiting, so it’s entirely likely that the operation didn’t work, I’m afraid. As many as five to 10 percent of patients who have had the surgery may see their symptoms return, experts say. Your breathing problems may be a sign of gas bloat, which is when air becomes trapped in the stomach, causing pain and discomfort. Gas bloat occurs when the fundo is doing its job and preventing you from burping or vomiting. Common ways to decrease the bloat are to make sure that you’re eating small meals, chewing your food carefully, and avoiding carbonation in your drinks. You should avoid drinking from a straw as well, since that increases the amount of air in your stomach. Here are more ways you can stop bloating and gas.
Meanwhile, it might help to eat slowly and carefully. Chew your food well. Eat small meals. Avoid carbonation (soda) and drinking from a straw. All of these will increase the air in your stomach.
I am worried about your symptoms. I hope you will consider going back to the GI doctor for advice on your symptoms. Especially the sensation of food getting stuck.
Thank you for being concerned Jan.
hi i had the nissan done in dec 2010 i wish i could turn back the clock i ended up being in hospitial for 7 weeks. i had to have a stretch and am having another stretch next wednesday like you food is staying stuck in my chest and i bring up the clear stuff that looks like water. i have also a slow empting stomach now they tell me i had it before the op yet i was never tested for it. this has ruined my life as i went out for meals 3 times a week and went dancing also went on holidays a few times a year now its all stopped i live mostly on ensure drinks and yogurts.
Hi, My name is Megan and when my son was three months old he choked on his reflux and nearly died. He underwent a fundoplycation and a pylora plasty. He did great with no need for any medication. Now my son is 1 1/2 years old and his reflux is back. He is up every night screaming, because of the burning pain in his esophagus, and has bout of vomitting. I am terrified of him choking again, what am I to do? In my town there is only one pediatric Gastroenterologist and it is extremely hard to get an appointment. My son has undergone more radiation and surgery than I have in my entire life and I am 28 years old. Is there any hope for him or is he going to have trouble his whole life? The surgeon and gastroenterologist told me that he would out grow this when he turned one and was eating a steady diet of solid food, but he is still have problems. Solid food just gives him something different to vomit up. I have not been able to sleep in almost 2 years myself, and I am lucky if I get 4 hrs of sleep each night. Someone please help me I am begging for some guidance.
I have had this same operation done to me twice already. The first time was back in 2009 and the second was in 2010. i am sad to say that as of today I am still able to vomit bile and have acid reflux bad from time to time.I also have a hard time eating a lot of foods. I can be staving but after having only sometimes four or five bites will feel full and sick to my stomach.. Can anyone please give me some advice on what I should do. My email is email@example.com
I have had the same result bringing up clear stuff and feeling better
Yes, your shortness of breath does have to do with both. Many years ago before the Nissin Fundopllication wrap I felt like I had a Mack truck on my chest and a plastic bag around my head suffocating me. After a successful surgery, I have not had ANY breathing troubles until one month ago. Like before my surgery years ago, I am also being told that my breathing symptoms and chest pain are unrelated to the GI or acid reflux. Well, I now know better because I am also getting the burning occasionally. He even asked if I've had my asthema checked. I simply said don't even go there because I took two years out of my life before proving that the breathing and chest issues weren't asthema. So, I am scheduled for all usual tests but plan to only have the PH test if I have burning. I had a hiatal hernia that moved and due to this it took three PH probe tests to see how bad my acid was at times. I am hoping to just do it one time this time around. As for me I do want the wrap redone if it has loosened because I have had extremely normal life that I had no chest pain and no breathing problems after a successful surgery. I have shoveled, stacked wood and last year shoveled/spread a dump truck full of gravel on my driveway. I was in my late 30's with the first surgery but now am in my mid fifties. I have put on around 40 pounds since my thirties and think maybe I stretch it out with the weight gain. I now can't eat much again or I cant breath and get sever chest pressure and pain so I hope to loose some weight to see it it helps at all. Go for it and hope and pray that your life will be good when you can breath again. Right after the surgery everything is swollen so eat soft foods only. Take it slow and easy and know it gets more normal with each passing year. My side effects since the surgery was no burping but gradually I now burp easily. Also, bloating that I just take gas X and it helps and I have always eaten small pieces of steak and potatos as they get stuck easily. They are the common food that does. I keep on had suppositories for nasua to avoid wrenching as I can't vomit and if the surgery is successful you won't be able to either. The suppositories help until the food/bile that would have been vomited ends up coming out the other end as diaherea. I am in the process of proving once again I need surgery. Don't let the GI doctors make you think the symptoms are real or GI related because THEY ARE! Best wishes M
I had sugery about 8 weeks ago and have never help so go for 3 years.
If you are having reflux and you have not had surgery (not sure if it will work after a nissan fundiplication or not) try eliminating refined sugars from your diet. Refined or white sugar seems to relax the spincter muscle in the esphosogus and allows gastric acid to climb up and irritate the lining of the esphosogus. I have had terrible reflux in the past. I discovered the complete absence of reflux within 24 hours of starting a low carb diet such as South Beach or Protein Power Plan: any of the diet plans that nearly eliminate white, refined sugar. I eat all the fresh fruit, vegetables and whole grain bread or pasta that I want. I also use brown sugar, Agave syrup and Stevia to sweeten my food and drinks. I am not following a specific diet plan any longer, just know how to eat now. Some foods like Jiff Peanut butter or regularly sweetened yogurt do not cause the heartburn to return as long as I am getting the protein I need with ea meal. I put plenty of finely ground hamburger in my spaghetti sauce or chili for example and can sweeten it with a couple tbsp of brown sugar although that's just my preference, not necessary. Anyway, I've tried to tell different G.I. docs about this easy solution but they seem to blow it off. I haven't needed an antacid in yrs! I am an RN. Try this, you'll be amazed. Anyone that has started a diet that reduced refined sugars including cookies, cakes, frostings etc (which you will lose the craving for in 2-3 days) can tell you that you can lead a reflux free life without medication by making this easy change. Just try this. Best wishes, Chris
Hi, name is Barb and I just had the nissen done about a week ago. The one thing that bothers me is I cannot drink water but I can handle ice. Warm tea helps out. I know I have weeks to go before I can even try to eat anything but I am hoping this works out. The surgeon told my hubby that it was a good thing I had it done since the hole in the esophagus got so much better. I feel like something is stuck in my throat though and it that more common until things heal better. Lost a lot of weight so far but energy level is really down. trying to do energy drinks but they do not stay down. have you something that might give me some hope. thanks
Hi, my name is Christine, I also had a Nissen op 19th Jan 12. It was a re do. The first one was only 19 months ago!. I have just been to A&E today as I am suffering a bit. They said there is nothing wrong (after x rays and blood tests) I have a constant feeling of eating roast dinners in my throat, when I am only eating strained soups, yoghurt and water!!! I have severe bloated stomach and couldn't fasten my trousers today (worn them since the op OK). I am really concerned as I didn't have these symptoms last time, in fact I sailed through the op and post op period. I lost 3 stone prior to the op last time and afterwards was on restricted diet. I have put the weight back on but now do not feel like eating and the scales show very little weight loss!!! I can't explain that. I will be speaking to the GI nurse tomorrow hopefully. What a state!!! I had an extremely large hiatus hernia, which broke through again. I have never had any GERD symptoms like burning in the throat but was on Omeprazole 40mg every day prior to the ops. I have no desire to eat anything, but forcing down the soup to keep up energy levels. GP has given me energy drinks to keep the vitamins up. I reckon if you feel weak, you need to suck some vitamins or see your Dr who can prescribe something that doesn't make you sick. I feel pretty miserable but 2 weeks is nothing in healing. I dont think the feeling in my throat will ease, but I hope I am wrong. I still had it to a lesser degree after the last op. Don't suffer in silence, see you GP and insist they either refer you back. I live in UK and we can go to the A&E at the hospital any time, but we are NHS, so understand if you can't.
Thinking of you, hope you feel better soon
I have a question. I'm one week post op and am wondering what kind of food I should be eating. I've been on broth and jello, but tried some boiled squash today. It went OK, but I could tell it sat there for hours and hours before being digested. All they told me was NOT to eat....don't eat gas producing foods, white starchy, no raw fruit. But I need someone to tell me what I can eat.
Thanks for you reply in advance. Pray you are doing better.
I went to the nurse practitioner at the surgeon's office yesterday. She told me I was drinking and eating too quickly. I needed to chew my food really, really good. And to sip water instead of drinking it fast. I too am having that feeling that something is stuck in my throat. The stomach spasms are not as bad as they were a week ago. I'm currently 2 weeks post op. I see you are 5 weeks post op.
Is the medicine helping?
Hi, KDT, the domperidone has relieved it a little bit, but sensation still there. The GP thinks it could be Globus and given me Diazapam!!! Only 5, apparantly if this reduces the feeling ie muscle relaxant, then thats the problem and nothing due to the op. I took the diazapam(valium) and guess what - no change!!! Apart from sending me to sleep!!! I am back this Friday. My GP is going to speak to the surgeon this week. Not sure where we go from here. How are you? Are you taking any protein drinks and keeping your vitamins up?? I had the op 19th Jan so will be 5 weeks this Thursday. So a little bit in front of you. Keep your sense of humour, its difficult, but try and act as though everything is normal. I have a wonderful husband, but think he is as fed up as me now!!! I am still on soup, soft food, and have managed a dunky sweet biscuit, dunked in coffee!!! tried a small piece of cake, and suffered for it, so won't eat that again for a good while. Take care
Hi! I would try juicing. I have a Jack Lalanne. I bought it at Costco for $99.00. I juice 4 times a day, some days. I drink ensure, equate, kirkland brand slimfast. I drink french onion soup, blend up the onions. Chicken and beef broth, jello, pudding, yogurt, and apple sauce. I also drink: apple juice, cranapple, crangrape, and cranraspberry. I suck on popsicles and make myself smoothies. I have had this surgery done four times in the last 7 years. With all my surgeries, I was unable to eat solids for three months.
I am currently having all the tests to see if I need the surgery again. I think I might do the botox injections into the stomach this time. When I drink, I have 30 minutes until I have major pressure in my stomach, then I become nauseous, and then I dry heave. Good Luck. You can do it.
Bless your heart. I feel like I'm doing better. Smashed up food does so much better and if it is something substantial, I have to chew it up really good and drink water really slow too. I still sometiimes feel like I have a hunk of roast in my throat. But I'm starting to feel like I'm going to make it.
I am praying for you.
I have the same problem and I do have the shortness of breath, some people relate it to the diafragma ( if you have the external hernia) ...... that's hard to understand whether take the risk of the surgery.
I too had a nissen fundo Feb 1st. I was wondering how you are doing at this point. I still have a tremendous amount of nausea along with the feeling that something is stuck in my throat. The simple act of eating has become a big deal. I carefully choose my food because I know I won't be able to eat very much. I also have to think about whether I will be able to chew it up adequately.
I have recently had the Nissen - Food seems to get stuck in my throat, and although I have been told I can eat normally, I still have to eat soft foods, as that seems to stay down. Also, it seems that I cannot eat during the morning hours and the time before lunch. I was told to eat 6 small meals a day, but I have trouble getting 1 or 2 to stay down. I dunno, I don't have the severe reflux I had before, so I guess it's worth it. My pH levels were in the 70's when I wore teh pH monitor before the surgery. It has been a huge relief, but the spitting up is causing anxiety now....LOL.
I am scheduled for Nissen's, have to have a PH first though before they'll give me a date. i'm 29. Scope revealed stomachefull of green bile,hiatal hernia and red raw throat. I am on the very highest dose of inhaler for my alleged asthma, they have decided they can do no more as it is likely the acid reflux is aspirating my lungs, i have tablets for my breathing and a ventilator. I can't even get to the top of my stairs without gasping for air, I'm a mother to a 1 year old, not easy when you can't breath. So many GI docs are brash and treat you like another number on the list, they set aside bedside manner and realism for cash. I am lucky to have good doctors who want to fix me. I throw up every day, i have tachicardia related to reflux stimulating the vagus nerve, i have vit b deficiency because of all medication i'm on to cope with the symptoms and repetative bouts of oral thrush. Saliva gland in left of throat is constantly swollen, throat and mouth blistered frequently. Glass of water ends up in my nose, wholly distressing. I know how you all feel. I personally have nothing to lose with having this surgery. Nice to hear of someone having positive results.
I hope he is much improved. If not, I would ask if the baby been to an allergist? I have a nephew that suffered terribly at the same age as yours. His reflux would subside as his diet was changed in repsonse to a number of allergies, some developing later than others.
I have heard from folks over the years who told of their child's terrible reflux only to report that years later doctor's diagnosed with food allergies---most common seem to be dairy/lactose and wheat. The reflux improved with diets eliminating the offending foods.
My own sotry is that I suffered awful digestive issues and chronic anenmia that was debilitating during childhood. At 31 years old I was diagnosed with gluten intolerance.
If the reflux has not stopped please consider help from allergist.
i'm in my fourth year since the nissen, at first i thought i would not get thru the op, i had so much pain and couldnt eat or drink for about four to six weeks, food still got caught, I would try solids like potato,and go into panic mode choking again. i ended up having a stretch, that really helped ,now having gerd symptoms again, i'm scare to go to the GI dr , because i know it means . more test more medical bills and just tress. i'm going to try this diet it sounds great, i did the low carb diet few years ago to lose weight, but now if it helps my gerd i'll do it again. Thanks for your post, i hope it helps me as it has you.Karen
I had my operation done 6 years ago and it took about 4 or 5 weeks to really come right. The weight loss is expectant, so don't be too alarmed by it! As for your energy levels, this is also normal - the body was used to certain foods from which it could draw energy, but now that your diet has changed to a liquid one, you almost burn-off the food you consume.
Give it a bit of time and you'll see that you'll be fine!
I have had a normal and wonderful life thanks to the wrap. I got sick when my daughter was 1 yr. and my son was 5 yrs. I didn't get the surgery until my daughter was 3 yrs. I lost so much time with my children, husband, and life. I am now 17 yrs later and get some acid in the morning. I had a bad time of it last July, but with a glutin free diet and acid medicine doing fine. You might have to repeat the PH probe test if it comes back normal. I ended up having 3 PH probe test and the last one showed I had over 12% acid. Most people who have acid reducing meds work only have around 3 to 5 % acid. I also had a hiatal hernia and when I had the 1st two PH probe tests the valve was back in the lower cavity and I wasn't having as much acid. The last test the valve was in the upper cavity and wow did it show acid. So....don't stop with one PH probe or the chip test as you also have a hernia. Unfortunately, they wont operate unles it shows alot of acid. I have found the surgeons to better understand the symptoms in people with SEVERE acid than do gastroentrologists who usually see people with only some acid issues. They actually don't know all the symptoms like the surgeon will. Presently, I am waiting to schedule the PH cip to measure acid but am waiting until my symptoms are really bad so I don't have to repeat them. I think mine may have stretched a little over the years. Best of luck to you and I know you will be a new person after your surgery. Also, get checked for celiac as I also have that in addition to the other issues. Let me know when you're scheduled for surgery as I want to encourage you. I had coffee the morning after mine!
I know you posted this over a year ago and I hope you have found some answers for your son. I had the nissen done many years ago and suffered with many symptoms that made me with I could turn back time and actually understand how the body works. In the long run I turned to raw foods and juicing. staying away from the S.A.D diet Standard American Diet. our bodys are not designed for the food we eat, meat,dairy,oils,chocolate. Any way if your out of options you could try adding alot more fresh fruits and veggies along with greens like kale,romaine and such. The more greens the better to clean out the stomach and rebuild the good bacteria.
Hello, I am also 17years post op. About 2 weeks ago I had SEVERE HEART BURN. Dr. put me on protonix about a week ago. seems to be helping some. Been reading about a higher protien diet and lower carbs. gonna try that as well. Any other suggestions? Hope you are still doing well.
Hi my name is juan 45 yrs old had surgery 6 weeks ago today 7-25-13 I had the half wrap I still get reflux with food that is bad for gerd also gettin chest pains feels like heartburn but could be something else have alot pain recovering from surgery still to early to tell I guess
Hi, I'm 32 had the surgery 3 weeks ago having a lot of chest pain on the left side, (I know its Trap air) and feeling like the food is stuck after eating. I'm staying w/gas also. I'm still eatin soft liquid foods suchs instant potatoes, jello, & puddings. Anyone else had these symptoms & if so how long do they last?
Chris, I completly agree with you regarding the foods you should avoid. Let me tell you my history in hopes that it will help others.
I had the surgery done a few years ago and everything went very well. Although my symptoms were different from most of the post I have read here. Instead of heart burn I would be up all night hugging the toilet. What was comiing up was small white chuncks that looked like pieces of cotton. This went on for months until I went through all those awful test and finally had the funduplication surgery. I got through the post op and eventually was able to eat as I did before without any problems. That lasted for about 2 years. Then every night I started "spitting" what I describe as thick mucus. Once again I wasn't able to sleep very much. After a visit to my surgeon he was adament that the surgery was not the problem, everyting was fine. Nothing changed, I lost so much sleep every night because of this spitting up. This continued for about a year. Well, just last month I decided to go on a diet. I am very overweight. This is not intended as an endorsement but somehow it has changed my life. I wanted a diet that would be easy with food I would enjoy. Since I've tried many diets I knew which one's I didn't want. Lucky for me I found one called BistroMd that I am extremely happy with. As soon as I ate their food for just a few days I noticed I was not spitting up at all. What's the difference? Exactly what you said. No carbs no refined sugar. Oh, I have lost weight but more important to me, I sleep all night and never spit up.
Last week I had a endo scope done. It was scheduled before I started my new diet. The gastro doctor said the funduplication surgery showed the wrap had come undone just a bit. He did not recommend any additional surgery. Just before he did the scope I let him know that my symptoms recently disappeared completely since Ihad started this new diet. He said if that was
working continue eating that food.
I know this was a long story. But I felt had to give you all the details. The bottom line is if you remove starches and refined sugars you will see a significant improvment. Try it for a week, it doesn't take long.
I'm nine days out from surgery and liquids seem to be stuck and I get horrible pain in my left shoulder. I have no reflux. However I woke up from surgery with a nasally voice that no one seems to know how it happened. They call it VPI. I'm afraid my voice will never come back. I can no longer blow into a strawe the air comes out my nose.
I had nissan fund dup, 8 year ago i am suffering from chest pan in middle of my chest goin to top of my stomach and sore wen i eat foods goi down to my stomach can be very painfull.i have been admitted so much in hospital with chest pain ,doc say its not my heart which is very well thank god. but this reflux surgry giving me the pain. iv had lot endoscopy done dont find anything so goin in again hope they can discover this pain and wot will happen.i dont realy know wots happening to me after this surgery . can any1 help me. apprecaite this .
In case you read this and are interested, I`m having the same symptoms you experienced with the Nissen Fundoplication (shortness of breath). If you wanna keep in touch, my email address is sjhon_fabio at hotmail.com.
I had the Nissan Fundoplication in June 2002, after years of suffering the effects of reflux.
I was told that I would not be able to drink carbonated drinks or burp. I suffered for a couple of months post op with the regular problem of getting solids down and a couple of times I was quite unwell, on one occassion I tried to eat a bannana which just didn't want to budge, hey presto a few gulps of Coke and it was gone... I used Coke a few times to move food down, and thankfully after the initial first 2-3 months months I've had no problems in that department.
Burping - I have always been able to burp, and on some occassions I'm told that they smell disgusting, I know which ones will stink, as they seem to come from deep down and feel unlike a normal burp.
Vomitting - I have been unable to vomit from the day I had the op, (not that I made a habit of it before) I still get the feeling of wanting to vomit and the feeling you often get when you know if you can vomit you'll feel better, but unfortunately have never been able to, more often than not it has the effect of giving me the hot sweats and diarrhoea.
Breathing - I've found no problem with my breathing to date.
I'm glad I had the N F Op and would add that the couple of side effects suffered are worth it.
I think that this is because you are drinking too much alcohol. All the side effects that you are mentioning, can all be because of alcohol as well. Vomiting is often difficult or even impossible with a fundoplication. In some cases, the purpose of this operation is to correct excessive vomiting. However, when its purpose is to reduce gastric reflux, difficulty in vomiting may be an undesired outcome. Initially, vomiting is impossible; however, small amounts of vomit may be produced after the wrap settles over time, and in extreme cases such as alcohol poisoning or food poisoning, the patient may be able to vomit freely.
I agree its almost been a year now and eating is so much better I bloat alot and have a shortness of breath constantly. i thought it was because I was out of shape and needed to lose weight which has been a real struggle. But I would do it again the pain before was excrutiating
Be very careful and don't confuse your fundo with secondary achalasia. This can happen when the wrap is to tight. Food gets stuck at the junction where the fundo wrap was performed. This food can ferment and cause very similiar symptoms to acid reflux. Any food (especially alcohol) creates a differant type of acid and your esophagus regurgitates the contents. Ask your doctor for a barium swallow from a qualified radiologist.
I've had 2 fundoplications in the last 11 years. I know your pain.
Hi, I hope you dn't mind me askign something here but this last answer talks about having had the nissan fundoplication twice. Do you mind if I ask why and was the second one successful? I had one done two years ago and it worked for about 6 months but but now has completely failed- I now get reflux far worse than I did before the operation plus I can no longer tolerate anything other than cold drinks and cold food. I've had a barium swallow which shows the wrap is still in place but my specialist thinks I have loosened it by doing regular abdominal crunches. (no-one told me not to do them). I think it more likely that it was too tight in the beginning and I tore some or all of the stitches as that is what it feels like. The specialist says my only option is to have all the tests done again then to have the op but it can't be done laparoscopically and will last no more than ten years. As the first one didn't last, my worry is that nor will this second one and I might get other complications from the 2nd op like this inability to tolerate warm or hot food. What has your experience been?
I hope you dn't mind me asking my question on top of this original one. I have never had any shortening of breath or vomiting so this does sound as if the operation has gone wrong just as mine has.
They were both successful. The first fundo was a toupet or what they call a half wrap. The radiologist also said my wrap was still in place, but this does not mean that it is working. It lasted 11 years. It is very difficult to tear the stiches out. Most surgeons now use stitches and a mesh screen that bonds with the scar tissue. He is wrong telling u that a second fundo cannot be completed laparoscopically. My nissan was done laparoscopically 11 years later with lots of scar tissue in the way. It is so very important to choose a surgeon that specializes in these ops only, even if u have to travel out of state. Do not pick a general surgeon. The endoscopy, barium swallow, and the esophageal manometry should all be repeated with the right doc. Sorry, I don't know whats up with the hot stuff. There could be damage to the lining and the hot stuff iritates and the cold stuff soothes it? I could get u my docs number and he could help u or find u a doc who could. best of luck!
I had the nisson done in Feb of this year and it lasted about 6 months. I started having problems about 3 weeks ago and I'm miserable. My throat and chest are raw. I barely have a voice. The doc has put me on 80mg of Nexium a day to see if that helps. I've only been on the double dose for 2 days and no relief. I am getting pretty desperate. I don't want to overreact but I don't want it to turn into something worse either. Any advice?
hi i,m micky i,ve just had a nissen fundoplication done laparoscopic 3 weeks ago every thing seems ok so far as reflux goes but when ever i eat i sweat and dry heave and feel unwell how long does it last like this and is it normal
i,ve also had shortnessof breathe along with plurisy which i still have very painfull
I'm a young guy (27) and I've had Barret's edophagus for a year now. I've been on Nexiam all that time, which has really helped. But it's rather expensive and I've always been contemplating having the NF.
Listening to all your stories I'm really not so sure anymore. What do you guys recommend? Would you go for the op or just continue with the medication for the rest of your life...?
I am brand new - searching the internet for some answers - thought I'd respond. Had my nissen fundoploication laparoscopically in October 2003. My heartburn was pretty bad but the worsf was my cough, constant throat clearing and swallowing problem - food just hung in my throat and would not go down, especially bread, meat. I also have nerve issues in my throat which are another story that contribute to this (glossopharyngeal neuralgia). Anyway, I could not and did not throw up 5 1/2 years - then this summer I got what I believe to have been food poisoning for the first time in my life. I threw up mercilessly for hours and hours. I get some heartburn now and one week ago I had a horrific pain on the left side of my stomach while I was sitting in bed doing nothing. It lasted for 20 maybe 30 seconds. I am convinced my nissen came completely undone. I had the sensation that something was unfolding/slipping deep inside my body right at the area where the main port from the surgery was located. I now have burning which is tolerable in the area and what appears to be a vein or weird piece of tissue sticking out of my body (under the skin) from the bottom of my ribs to my waist and then you can't see it anymore. Went to the doctor this morning - had a ct scan of pelvis and abdomen and the doctor is telling me everything looks fine although he says he can't see if the nissen is still in place - he says it doesn't matter. Well it does matter to me. He also says he doesn't know what this "tissue thing" is - could have been a clot (occluded blood vessel) - seems to be coming out of the main nissen surgery port he says - seems suspicious to him. My original doctors are no longer around and this new group doesn't seem too concerned. I have the throat clearing back and the cough is just starting a little bit. Yes, I have breathing difficulties with this condition also - it is like I can't breathe and talk at the same time - I have to hold my breath while talking and then stop talking and quick breathe. I also have vagus nerve involvement and this past week I have that all too familiar vibration of the vagus nerve up the center of my chest. Haven't felt this since prior to the nissen surgery. Ever since the surgery I have the worst gas passing from whatever I eat. Why my family doesn't make me live in the garage I will never know. My bowel movements have an ungodly smell, texture has changed - nothing is working right. Whoever invented that tube down the nose 24 hour gold standard probe test obviously never had it done to them, ditto on the mannometry test. I will never go though those tests again. From reading this site I see I need a different test to see if the nissen has come unwrapped, gastroscopy, barium swallow, endoscopy, what is the best one? If it is undone, I wonder if I can just leave it and try meds. I don't want to do it again. What if it is half undone, hanging by a thread or something, is that bad? I would appreciate hearing of other's experiences. I wish you all well.
who does it other than a general surgeon
It's been a while since you posted your comment, but I can relay my background to you in the hope that it helps. I was diagnosed with Barret's when I was 30. I took nexium, prilosec and prevacid, as prescribed by my doctor and my insurance's formulary. None of them relieved the symptoms. After 8 years of constant pain, I had the nissen. It gave me four years of relief, which, as you know, is a really good payoff. My symptoms are back, so I am returning to my Dr. to see if I need it again. If you are not getting relief from the meds, you should really consider the surgery. I wish I hadn't waited so long. Read what you can and find a surgeon who specializes in Nissens.
I have had the same problen had the wrap 4yrs ago still having severe reflux and bloating and pain nexium didn,t work for me prevacid helps with my heartburn but nothing has helped with the reflux i feel it is distroying my throat.I wake up sometimes feeling like i can,t breath thats because of what it is doing to my throat .Hope you can get some relief good luck......
Get a Bariactric surgeon - they are the best for this type of surgery!
never heard that one. with mine if im sick i dry heave cause i cannot vomit. breathing no problems thats weird
have the surgery, we are already at risk for cancer due to the changes in cells. I had surgery 1 yr ago 57 yr old still required to have scope yearly to watch for cancer.
Hi, I'd like to know your outcome. I had a nissen Oct 2010 and then 7 months later in April 2011 developed a constant lump feeling in my throat (from the moment I start eating each day), which gets phlemy, sore and hoarse at times. It came on suddenly... was eating one night and noticed that I all of a sudden had the capacity to eat a large amount of food, then the next day the lump feeling started and has been there ever since. Had a gastroscopy May 2011 and he said all the stitches were fine and that it looked like it was functioning ok. Have had heaps more tests and even though the PH test said I was having reflux after eating, the specialist won't acknowledge that this is the case... he thinks the surgery is fine. Having another gastroscopy in April 2012 and in the meantime are back on meds which don't fully help.
My message above was supposed to go under Nana's message, but for some reason ended up further down the page.
PS: I shouldn't have even had a nissen... turns out the major upper abdo pain I was having for 5 years was actually due to gallstones and was bilary pain (I did have a hiatal hernia, but in reality had minimal symptoms from this). They did a nissen in October '10, I ended up in hospital with the abdo pain again in November '10, then they took my gallbladder out December '10 (since that op I've had diahorrea for the last year)! Now I have major symptoms from the hernia that I never had before surgery. Moral of the story... gets heaps of tests (and even a second opinion) so that they have the right diagnosis.
Hi not sure if anyone can help, I had my NF on 21st Feb 2012 and am still struggling with food sticking in my oesophegus and causing pain. just had a barium swallow test and after the first liquid test the radiographer said that was enough. It took 45 second for a mouthfull of liquid to get through the wrap. Food is sticking in the gullet and fermenting causing pain and swelling which in turn makes it difficult to eat. I need to eat every couple of hours even if its a yogurt/jellly etc. I am still on soft food and if I try anything else suffer the next day.
I am trying to find out what is involved when they do the stretch. After 8 weeks I am really fed up and going to see GP this afternoon. Had a temperature and hot and cold sweats and cannot get warm for last week or so. Had a chest xray to make sure it was not phneumonia which was clear.
I had the Nissen surgery in the mid-90s. For the most part, it has been a success, but I have had a few scares. Looking over this page, I see a LOT of side effects that weren’t really talked about back when I had the procedure. I don’t know if my advice will help everyone, but I’ll give it a shot:
- Eat SLOWLY. Seriously. Chew your food. Sip your drinks. Take it easy. Scarfing down your food is a very bad idea.
- Eat less. I know it’s tough to get used to, but you really will be better off eating smaller meals/snacks five or six times a day. It’s a lifestyle change. Portions are HUGE in the U.S., and it’s one of the reasons we’re one of the fattest countries in the world. Make a conscious effort to eat much, much smaller portions.
- Stop eating before you feel full. Just MAKE yourself stop. Chances are you’ll feel full a few minutes after you stop anyway. I’ve read that our brains are actually pretty slow at telling us when we should feel full.
- Change your diet. Stop with the fried foods. Go easy on the sweets. Drastically lower your sodium intake. Try eating more fruits and veggies. Based on what my nutritionist told me, I try to get about 80 grams of healthy protein each day. (This number may be different for different people in different situations. I’m not a doctor.) Chicken, turkey, quinoa, kidney beans, garbanzo beans, lentils…this stuff is all pretty high in protein.
- Burp. Often. Really. I know there are some social problems with this, but, for me, getting all of that excess gas out of my stomach really seems to help with 95 percent of the discomfort. I lived heartburn-free for about 10 years, and then symptoms started coming back within the past few years. I actually had a few scares—and a couple of ER visits because my heart was racing, and I thought I was having a heart attack. And my heart rate was up, but not anywhere near the “red zone.” Turns out I just needed to burp. I had a huge gas bubble trapped in my stomach. Several large belches later, my heart rate was down and my heartburn was gone. I know it sounds crazy, but I feel like the gas-bloat syndrome associated with Nissen tends to reconfigure things down there and cause all kinds of problems. Without a release valve drilled into your abdomen, the next best thing is simply burping. Gas-alleviating meds like Gas-X don’t seem to work well on me.
- Don’t go hungry. A stomach full of acid is a disaster waiting to happen. This is where those frequent smaller meals help again. Also, I take one 40mg Nexium pill once a day, and combined with these other practices it seems to help. I’m actually thinking about quitting the Nexium because things have been going so well lately (and it’s kind of expensive). On rare occasions, I take some Pepto Bismol before bedtime. I get gassy when I go for a long time without eating. For some reason, lying down on my left side seems to help with this.
- Exercise. Get in shape. I know it’s a no-brainer, but this really does help. And I’ve found that a good run really gets me burping : ) I’m like a baby again, I guess. I just need to be burped.
I don’t know if stuff will help with some of the more serious concerns on this page, but I think it’s worth a shot. You really need to make some lifestyle changes to deal with the aftereffects of Nissen, but we should all be eating right and exercising anyway. Worst-case scenario: you get in better shape. My heart really goes out to those with the more serious side effects. You’re all in my prayers.
I had this done almost a year ago and am so glad I did, except the bloating and accasional shortness of breath I am able to eat so much better
My husband had a Nissian about 1.5 years ago , he was having shortness of breath and they believed it was reflus causing it , He is now having shortness of breath but another doc said he had asthma , after a severe cold and cough now is waking up in the night coughing and sort of gagging ,Has the nissen come unwrapped ? Not sure if he is having a lung problem or a nissen problem
Based on my own personal and very positive experience with the "Classic Nissen Fundoplication," and what I have read on Internet blogs and medical journals; I strongly recommend against anyone choosing the "floppy (short) version of the Nissen peocedure. I believe the "floppy" is "sloppy" and has a propensity to come lose over time.
Goodnight Johny ust want to know does your surgeon still do this procedure. which hospital does he work and wich state. I will like to know
Yes, my surgeon still practices laparoscopic surgery at Houston (Texas) Northwest Medical Center.
My surgeon is Dr. Philip L. Leggett. His web-site contact info can be found at http://www.drleggett.com/.
If you have trouble with the hyperlink I pasted above, a Google search under my surgeon's name (Dr. Philip Leggett, Houston, Tx) will get you to the same place.
I was so impressed with his work, I had him perform a laparoscopic double hernia repair (completed 8 years ago with perfect results).
Good luck in your quest.
I too had the nissen procedure June 1st 2011 and my life has been a living hell since then I wish I could go back and never had it done I had the Niessen hiadial hernia and they opened the paloric valve on that day 2 weeks after I had the surgery the gagging and sever pain started I have been to over 10 doctors and have been threaten on being taking off my pain meds because the pain meds are the only way I can funtion on a day by day life they tell me it is all in my head I wish that was the case I am going to see my reg doctor today to see if I can get a whole new set of doctors and hope someone can give me some reliefe my husband is deployed my family lives in other states and I am trying to raise 2 kids but it is not fair to my kids to see me in this much pain and mad all the time because I hurt everytime I eat I pray ya'll get better also and if I can get fixed and it don't hurt anymore I will let ya'll know what the doctors do and see if I can suggest anything to ya'll so ya'll don't hurt this bad for the rest of ya'lls life also
After reading so many lumps/hairball feeling in the throat I think I'll give my suggestions. I also had that feeling after the surgery for 6 months or more. It could be that when food is stuck at the valve it gives this feeling in the throat. This would suggest the wrap may be a bit too tight and need stretching. As for my case I had neurological damage from too many years of suffering. I was put on Nortripteline and my end dosage was 50mg. I stayed on it for 1 yr. I was told the symptoms may never come back or at anytime could return in which case I would be put on the Nortripteline again. Last fall, after 16 years, I had all my old symptoms return: lump in throat, feeling of not being able to breath, and burning, and chest pain. I had an upper GI and a CAT scan which should the wrap was still in place. My wrap has stretch out a bit as I can now get a lil acid and burp. My doctor put me on the Nortripteline along with acid reducer medicine in case it was neurological again and over 3 months my symptoms improved. I went off it this past Sept. as the 1 yr was up (I was on 50 mg this time to be symptom free). I am once again symptom free. Also, get checked for Celiac Spru. I have it and am on a gluten free diet. This may have helped too. don't give up anyone....
I am 41 and had the surgery in 2000 and was in the hospital for 3 wks had alot of complications. I too am having alot of problems with my breathing and been for my asthma test after test they now say its not that going on Friday for a voice test were they put the tube down your throat and look at it. I have not been able to eat anything spicy since the surgery due to the burning in my throat and have not throw up since the surgery only dry heave. I get air in my stomach if i don't eat every 3-4 hrs and bloat up with gas. I have been to numerous doctors and they took my gall bladder out and checked my surgery and said it was fine.. I have an appointment with a new doctor someone recommended next month because I have more acid reflux and gas and indigestion now then before my surgery 12 yrs ago. I regret ever doing it but if this new doctor says he can fix it I will try it one more time for some kind of relief.
I had a nissen fundoplication proceedure 2 years ago after many years of all the common reflux symptoms including breathing difficulties and constant coughing. After going to a Respritary Physion and having a bronoscopy it was discovered my left lung was coated with gastric acid burn from the gastric acid draining into my lungs at night. I have been really good until the past 6 months or so and now the symptoms are just as bad a ever before. I recently had another scope and I now have Barretts osphagous which I now have to see more specialists to control. Long term taking PPI's also developed adeomna's in my stomach, which have now been removed, but regular checks have to be made.
I too had the Nissen fundoplication three years ago. My worst symptom was the reflux cough despite trying all the anti-reflux lifestyle advice. My gastroenterologist could only put me on the maximum dose of PPI (80mg Omeprazole) and the resultant hypochlorhydria (lack of stomach acid) meant I was not able to dissolve out the important minerals: calcium, iron, zinc etc. nor destroy bad bacteria ingested.
I know my Nissen wrap is loose. I can burp and vomit and I still cough - though nothing like what it was previously. But I don't need any meds.
I'm sure the years of acid reflux damaged my lungs which may account for my cough now but think my wrap may be stretching and getting looser as I do occasionally get small twinges of heartburn again which are easily dealt with with a minimal 75mg ranitidine. I'm due for my next scope in a couple of months: I'll see what it reveals.
I also had my nissen done awhile ago; 1997. For the most part, I have had no issues at all until recently. For the past four months, I am having stomach and chest pain and burping, which is something I have never been able to do. I have begun to take Maalox again; something I haven't had to touch since my surgery. I recently went to my internist for the chest pain, which is not heart. So we are thinking the wrap may have come loose. My surgery was a terrible experience, so am dreading the thought of going through it again.
Interesting about the breathing and palpitations, as that has been happening as well. I am a runner and have had difficulty with shortness of breath for the past five years, and thought it was just age. Now I am beginning to think it could be related to this.
I had the nissen done 15 yrs.ago.I never had any heartburn or discomfort to warn me that I had a serious problem.I am a singer and was concerned about my vocal cords,due to tje fact that I couldnt hit any high notes.one night I took a drink of alcohol thinking it would cut through the phlem.I took one swollow,my throat and stomach were on fire! I underwent all of the fun tests and found out that I had no valve at all! I had surgery right away.The burning was gone but sadly my volcal cords have never healed.they continue to be irritated and inflamed.any suggestions? I feel like I lost part of my soul not bei ng able to sing.I would do anything to be able to sing again.I always feel pressure in the upper part of my stomah and also in the bottom of my esophagus.I have so many acid blockers nothing works. I`m considering having my galbladder removed...if anyone has suggestions you can email me at firstname.lastname@example.org thank you...I hope that we can all find solutions to fix our reflux issues...ps.
Hi everyone, I had a NFS 2 yrs ago at U of M hospital in Ann Arbor, Mi. It was done by a chest surgeon on the left side thru the ribs (open surgery). 2/3 of my stomach was in my chest due to hiatial hernia. The surgery was difficult and painful. I started with all the symtoms mentioned above before I ever left the hospital. Chest pain, breathing problems, bowels problems, dumping syndrome, etc. I had 3 or 4 bouts with chest pain and severe pain betwen my shoulder blades when I got home. Went back to surgeon 6 months later, not being able to eat regular foods after being diligent about the clear liquid, soft food follow up after surgery. I just got out of the local hospital and was severly dehydrated from diarrhea. I was very sick. There for a while after the surgery, I thought I was doing good. I never have eaten a normal diet but it did settle okay.
I have some suggestions that I have found out from dieticians: Stay away from fatty, deep fried foods, no sweets. Some people have to eat soft foods such as apple sauce, soups, mashed potatoes and the like for it to go down good. Eat 6 small meals per day and find out if you can drink liquids to wash down the food.
I don't think we will ever be able to eat normal. Be careful when you are filled up. STOP EATING. My heart goes out to all who are suffering with this. Jan
Thank you Jan and I am so sorry for what you have had to go through but it was the same thing for me. The surgery was really hard and painful. And you are right, when you feel full, stop eating cause that seems to be when the pain starts for me and I feel like vomiting.
I was glad to hear from you Judy. To get yout input. I was to a follow up to my family dr and he told me that no matter how perfectly lined up the hiatal hernia, stomach and what ever they have to do in the surgery to get the stomach back down where it should be, everyone heals different and scar tissue plays a big important role in healing and for some reason no matter how hard the surgeon tries he will always get the wrap too tight or too loose and 2nd surgeries or repair will not help. We just have to live with it and watch what we eat, how much and how often. Now I will see if that works. Nothing else has and I seem to be gettin worse.
hi my names arron im 30 and have had the nf in june11 and had problems from day 1 so i went back to see my surgen and he preformed a part undo in august 11.i still have the same problems today im still on liquid to soft diet no matter what i eat the food still gets stuck and i get a massive pain in my chest and it feels like theres another heart there beatinf fast untill the pain eases then im vomiting for about 40-70 mins untill the food finally comes back up the the pain stops.ive been sent to see another surgen on november 3rd this year who is suppose to be top dog its along way for me to travel but its my last option.
p.s take care all and will be in touch to let you know what he says
Aaron, you are quite a bit younger than me. I'm 76 years old and I found that after the surgery some get relief right away and some it takes time. For me it has taken 2 years off and on. I know now since my last hospital stay that I really have to watch what I eat and when the food gets stuck, I stop eating every bite and wait until the stuck feeling goes away. I know thats hard to do because your food can get cold etc. but it really helps to prevent further problems with bloating, gas, and nausea. I am hoping that you will find out what is causing you to have these symtoms. Don't give up. Jan
vomiting can damage the wrap whats probably happened is its loosened quite a bit i think mine has stretched in past year so symptoms are back, they never went away just were less. gi docs are bad at scoping to check this, a surgeon needs to. i would say dry heaving and gagging on not well chewed foods is good, albeit a pain. when you dont have those is when i would worry. you sound like me my surgeon said no restrictions but i believe once you have this disease the restrictions, at least many are life long, at least they need to be modified a lot. have a surgeon look at the wrap. vomiting can and often does damage it