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Thanks for your question. This must be difficult for your entire family. The good thing is that your son is under the supervision of doctors. Considering that the doctors treating him directly have yet to fully diagnose what may be bothering your son, it is difficult for someone who has never met him to do so. All I could suggest is possible trying this symptom checker to see if there is something on therethat maybe you have not yet discussed with your doctor. I wish I could do more, but I hope this helps, if only just a little.