Saturday, March 27, 2010 dvdel asks

Q: 3 month old with GERD, FTT.. NG tube removed trying to Bottle Feed Need help....

HI,

My daughter was diagnosed GERD, FTT and oral aversion. She is 3 months 2 weeks old and weighs 11 6 oz.  24 inches..(she was born 9lbs 9 oz).

She was placed on an NG tube January 27th after a 2 weeks stay at the hospital. It was just removed 2 weeks ago for a trail to see if she will take the bottle. 

We have been going to GI Dr every week for weight checks. She has not gained or lost in the last 2 weeks. She needs to drink a minimum of 15- 18 oz of 22 cal formula a day.  At our last visit the GI DR said that at the next apt we need to see weight gain and an increase in her intake. Easier said then done!

 

We are getting about 18 1/2 ounces a day in her. It is a struggle, It takes about an hour to take 3 ounces.  Most of the time she starts off pretty good in about 5 minutes she will drink an ounce,but then falls asleep, plays with the nipple...I have to walk with her or she will not drink.

 

 

She is on Neocate due to allergies, previcid 2 x day and zantac. Since the change in meds and starting her on Neocate she is like a different baby. She is happy smiling. cooing.  The GI DR wants her to go for some blood tests a  CBC, Serum Igs and the RAST test. 

 

The only problem is getting her to take the bottle. She seeing a Speech Therapist. Not much help... She never shows any signs that she is hungry. The DR said to follow her signs of hunger. SHE DOES NOT HAVE ANY!!! At night she will sleep for 10-12 hours and never wake up for the bottle. During the day she never shows signs of hunger. I mostly wake her up during her naps and try to feed her every 3 1/2 hours.

Does anyone have any tips to get to her to drink the bottle. I am desperate, I do not want to put that tube back in...

Thank you for your help.

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Answers (1)
Jan Gambino, Health Guide
3/31/10 7:45am

Hello!

 

I hope that her weight was ok this week. Let me know. Trying to get a baby to gain weight puts a great deal of pressure on you. You have such a big job right now. I hope that you have lots of friends and family to help you. Some parents have a grandparent or relative move in for a few weeks to help out.

 

I hear about this situation over and over again-the doctor puts pressure on the parent to get every calorie in. The parent puts pressure on the baby to eat. The baby reacts by eating less. Her little tummy is as full as it can be. Adding calories to the formula can make each ounce as packed with nutrients and calories as possible. A speech language pathologist or feeding therapist can make sure your baby is eating efficiently and not ingesting air or getting worn out from using a less than optimal suck/swallow pattern.

 

You might need to take this week by week for now. Her weight gain may be slow for a bit. She will need to avoid illnesses because this could be a real setback for her eating. Be extra, extra careful about germs right now.

 

Remember that it isn't your fault that she is struggling to eat-it is the reflux that is causing this problem.Both of your are working very hard right now. Try to focus on the eating but enjoy those smiles and accept any and all offers of help.

 

Sometimes the tube can be avoided, sometimes it cannot. Again, it is not your fault. It is the reflux. My daughter had a feeding tube for a while and I felt like a failure as a mother. It became our best friend and allowed her to eat as much or as little as she wanted.

 

There are other parents on HealthCentral who share your struggles. I hope you will join the conversation.

 

Best wishes,

Jan

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By dvdel— Last Modified: 12/25/10, First Published: 03/27/10