HI,
My daughter was diagnosed GERD, FTT and oral aversion. She is 3 months 2 weeks old and weighs 11 6 oz. 24 inches..(she was born 9lbs 9 oz).
She was placed on an NG tube January 27th after a 2 weeks stay at the hospital. It was just removed 2 weeks ago for a trail to see if she will take the bottle.
We have been going to GI Dr every week for weight checks. She has not gained or lost in the last 2 weeks. She needs to drink a minimum of 15- 18 oz of 22 cal formula a day. At our last visit the GI DR said that at the next apt we need to see weight gain and an increase in her intake. Easier said then done!
We are getting about 18 1/2 ounces a day in her. It is a struggle, It takes about an hour to take 3 ounces. Most of the time she starts off pretty good in about 5 minutes she will drink an ounce,but then falls asleep, plays with the nipple...I have to walk with her or she will not drink.
She is on Neocate due to allergies, previcid 2 x day and zantac. Since the change in meds and starting her on Neocate she is like a different baby. She is happy smiling. cooing. The GI DR wants her to go for some blood tests a CBC, Serum Igs and the RAST test.
The only problem is getting her to take the bottle. She seeing a Speech Therapist. Not much help... She never shows any signs that she is hungry. The DR said to follow her signs of hunger. SHE DOES NOT HAVE ANY!!! At night she will sleep for 10-12 hours and never wake up for the bottle. During the day she never shows signs of hunger. I mostly wake her up during her naps and try to feed her every 3 1/2 hours.
Does anyone have any tips to get to her to drink the bottle. I am desperate, I do not want to put that tube back in...
Thank you for your help.




