FROM OUR EXPERTS
To kick off Scleroderma Awareness Month , twenty-four athletes will swim, bike and run to spread awareness about scleroderma and pulmonary arterial hypertension (PAH) in the Escape from Alcatraz triathlon on June 5, 2011.
What is scleroderma?
Scleroderma is a chronic autoimmune rheumatic disease in which the body attacks its own connective tissue. It is often, but not necessarily, progressive and can range from very mild to life-threatening. Scleroderma is a disease which causes a thickening, tightening or hardening of the skin and internal organs. It can cause serious damage to the lungs, heart, kidneys, esophagus, and gastrointestinal tract of patients living with the disease.
The term scleroderma comes from the Greek - “sclero” meaning hard and “derma” meaning skin. There are two main types of scleroderma - localized and systemic. Localized scleroderma can be morphea or linear. Systemic scleroderma (SSc) can ...
When someone is aspirating food and drink, and they don't improve with exercises or drink thickeners, their doctor may recommend they don't take anything by mouth. The person may then need to obtain primary nourishment from an enteral feeding tube, or "g-tube." (see my previous blog at http://www.healthcentral.com/diet-exercise/c/26240/19541/talk-tube ).
But for most of us, eating is a major source of pleasure. While it's reasonable to hold oral feeding when it's likely a person's dysphagia will improve, abstaining from oral intake entirely can be intolerable for someone who may aspirate for the rest of their time on this earth. It's important to understand that while tube-feedings can be beneficial to health, they are not proven to prevent aspiration pneumonia or prolong life in someone with severe dysphagia. If you or your loved one is in this situation, it's important to be aware of the possibility for improvement, as well as the alternative to go ahead and eat despite the ...
Definition Hirschsprung's disease is a blockage of the large intestine due to improper muscle movement in the bowel. It is a congenital condition, which means it is present from birth. Alternative Names Congenital megacolon Causes, incidence, and risk factors Muscle contractions in the gut help digested materials move through the intestine. This is called peristalsis. Nerves in between the muscle layers trigger the contractions. In Hirschsprung's disease, the nerves are missing from a part of the bowel. Areas without such nerves cannot push material through. This causes a blockage. Intestinal contents build up behind the blockage, causing the bowel and abdomen to become swollen. Hirschsprung's disease causes about 25% of all newborn intestinal blockages. It occurs five times more often in males than in females. Hirschsprung's disease is sometimes associated with other inherited or congenital conditions, such as Down syndrome.
You should know
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