To kick off Scleroderma Awareness Month , twenty-four athletes will swim, bike and run to spread awareness about scleroderma and pulmonary arterial hypertension (PAH) in the Escape from Alcatraz triathlon on June 5, 2011.
What is scleroderma?
Scleroderma is a chronic autoimmune rheumatic disease in which the body attacks its own connective tissue. It is often, but not necessarily, progressive and can range from very mild to life-threatening. Scleroderma is a disease which causes a thickening, tightening or hardening of the skin and internal organs. It can cause serious damage to the lungs, heart, kidneys, esophagus, and gastrointestinal tract of patients living with the disease.
The term scleroderma comes from the Greek - “sclero” meaning hard and “derma” meaning skin. There are two main types of scleroderma - localized and systemic. Localized scleroderma can be morphea or linear. Systemic scleroderma (SSc) can ...
<p><strong>What Is Crohn's Disease?</strong></p>
<p>Crohn’s disease, also known as regional ileitis, is a chronic <strong><strong>inflammatory bowel disease</strong></strong> that causes swelling and ulcers in the lining of the intestinal tract, usually in the small intestine, colon, and/or anal area. Less often, the upper digestive tract may also be affected. The inflammation involves deep layers of the intestinal wall, where ulcers and abscesses may form.</p>
<p>The ulcers may erode the wall completely, creating abnormal passages or fistulas to other parts of the intestine, to other organs such as the bladder, or to the skin. Deep cracks called fissures may also develop in and around the anus. Inflammation may thicken the intestinal wall until the passageway becomes blocked. Some people suffer only one or two attacks before entering into permanent remission; others experien...
When someone is aspirating food and drink, and they don't improve with exercises or drink thickeners, their doctor may recommend they don't take anything by mouth. The person may then need to obtain primary nourishment from an enteral feeding tube, or "g-tube." (see my previous blog at http://www.healthcentral.com/diet-exercise/c/26240/19541/talk-tube ).
But for most of us, eating is a major source of pleasure. While it's reasonable to hold oral feeding when it's likely a person's dysphagia will improve, abstaining from oral intake entirely can be intolerable for someone who may aspirate for the rest of their time on this earth. It's important to understand that while tube-feedings can be beneficial to health, they are not proven to prevent aspiration pneumonia or prolong life in someone with severe dysphagia. If you or your loved one is in this situation, it's important to be aware of the possibility for improvement, as well as the alternative to go ahead and eat despite the ...
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