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Dear Cindy,
Thank you for posting your question. It is certainly a less than common presentation of reflux. However, after raising my daughter with reflux and every mystery symptom in the book, I know that anything is possible!
I wonder how the doctor determined that the head tilting was related to the reflux. Did the doctor do a pH probe and monitor acid levels during one of the head tilting episodes?
I wonder if a neurologist has examined your son. It is important to rule out seizures that may be unrelated to the reflux or foods he is ingesting.
Next I wonder if you have seen a food allergy specialist. Some doctors will do a very strict "elimination diet" to rule out allergies and look at symptoms.
Last, a few children react to the PPI medications with headaches and other symptoms. I wonder if the brand of medication has been changed or if the doctor had him take a medication holiday.
I know this is a great deal of information to think about. Let me know what you think of all of these ideas. Remember, I want you to talk to your doctor about these things and see what makes sense for your little boy.
Be sure to give me an update when you get a chance. It helps me to know "how the story ends" so I can help the next reflux mom!
Best wishes,
Jan Gambino
The Reflux Mom