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Dear Cindy, PLEASE feel free to send me a message anytime-long or short, it doesn't matter! You and your son have been on a wild ride so far. I know it is frustrating not knowing why he is presenting with all of these symtoms and the doctors are even confused. My daughter was the same way. The good news is that by continuing to ask questions and advocate for my daughter, we were able to figure out the root of her problems. Once we knew what the problem was, we could really figure out the best treatment approach and she got better. I know your story will have a happy ending too! Meanwhile, surround yourself with support and keep looking for answers! Please keep in mind that I am a mommy so all of the things we talk about here, you need to discuss with the doctor. You and the doctor know your son best. Food allergies: Before spending all of that money on the allergy testing, I wonder if it is possible to do an elimination diet. You would need the assistance of the doctor and a nutritionist. Your son must go on a strict "allergy free" diet for about 2 weeks. It is assumed that the symptoms would go away if this was allergy mediated. Then one food at a time is added with a break in between. You observe for signs of the head tilting to return. This method gives you a list of safe and unsafe foods to eat. Some doctors and nutritionists do this by offering a nutritional drink with all of the calories and nutrients provided. Another way to test for food allergies is to do an endoscopy with biopsies. The doctor can also rule out other causes of food mediated diseases such as celiac disease, h Pylori and eosinophilic esophagitis. As a mom, I would like some evidence that the acid is indeed causing the headtilt. While a pH probe is not a fun test for a toddler, you and the doctor would have some real data by correlating the probe results with each episode of head tilting. When my daughter had a probe, each and every time she coughed, she was refluxing. Further, with all of that medication on board, it seems that the acid should not be affecting him. Again, the probe would show if acid is breaking through despite the medication. If his acid levels are abnormal during the headtilting, it would mean the medication is not blocking the acid. If his acid levels are normal, it may indicate that the food and not the acid is irritating. Or, it could indicate the need for further neurological assessment. Sometimes parents find that the GI doctor is the case coordinator while the pediatrician may play this role. Who do you feel is your go to doctor to sort out all of the information and test results? Now I have given you a lot of things to think over...Let me know if you need more of an explanation. Take care, Jan Gambino The Reflux Mom