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Dear Regina, I am glad you have found HealthCentral. There is much information and support here. It sounds like you have many doctors working with you on the feeding and reflux issues. Your son has a significant feeding aversion that may be from the reflux. It is important to figure out the severity of the reflux and adjust the medications until the acid has been reduced. Some children who do not respond to medications have reflux symptoms that are really food allergies (milk soy protein intolerance), celiac disease or eosinophilic esophagitis. Therefore, an upper endoscopy may be a good idea to rule out these conditions and see if the reflux is damaging the stomach or esophagus. I am guessing you live in the UK, Canada or Australia since Losec and Propulsid are used in those countries. In the US, there are many feeding clinics and feeding therapy programs in hospitals and clinics. Most have a MD, speech therapist, behavioral therapist, occupational therapist and others to help a child learn to eat. Sometimes there is a physical reason why a child cannot eat such as a swallowing problem (dysphagia), sensory issue, etc. The feeding team will want to know the results of the GI testing because a case of severe reflux without any other problems is enough to cause a child to stop eating. My daughter had to use a feeding tube due to reflux for several years. It is a huge decision to make. You will feel better about making a decision about a tube once you know the severity of the reflux, you have ruled out other medical conditions and you know a physical problem has been ruled out. The tube was very helpful to her treatment but it was not an easy decision. Please keep in touch and let us know how you are doing. We can talk again via this page or you can email me privately on this site. Let me know if you have other questions or concerns. Best wishes, Jan Gambino The Reflux Mom
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