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Dear Madi's Mom, You and Madi have had quite a journey...I understand your hesitation to re introduce dairy products at this point. I am not an expert on FPIES or allergic colitis. My understanding is some patients must avoid foods that trigger foods all of the time. Certainly Neocate is a good choice. You might want to call the manufacturer and ask them to send you a sample of the flavors. I think they have flavor packets too. Your doctor may have this type of sample packet too. In the past, they have offered coupons and information booklets for parents. I talked to the company at a conference last fall and sampled the flavors. I think orange was my favorite...They even have juice boxes with a straw so a toddler can drink on the go. Often, a test such as an endoscopy is needed to confirm a diagnosis of GERD when there is some question about the root cause of the symptoms. During an endoscopy, the doctor can take samples of the esophagus or stomach, called a biopsy and detect food allergies in the upper digestive tract. Colitis/enterocolitis is a lower GI tract issue so a colonoscopy may be needed to confirm the diagnosis. Again, a biopsy would confirm the diagnosis. While an elimination diet has given you valuable information and allowed you to provide a treatment (diet), you and the doctor may still have questions about the diagnosis. Let me know if I have answered your questions. Best wishes, Jan Gambino The Reflux Mom
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