Hello Ava's Mom, Thank you for the follow up message. I am glad you are involved in the 1st Steps Program. It sounds just like the type of program I worked in before I had kids with reflux! I know they will do all they can to work on her muscle tone and help her to move. That is so important. I am glad the GI doctor is looking at causes for the torticollis and swallowing problems. Like I said in the previous post, back arching and torticollis may be a symptom of Sandifers Syndrome. Sandifer S. occurs when a baby or toddler arches or turns to the side to try to manage the pain of a reflux episode. Often medication and other treatments will reduce or eliminate the symptoms. So the doctor probably wants to look at the acid production and see if that is causing at least some of the arching and torticollis. As a parent, I know it is frustrating when it takes so long to get answers and find the right treatment plan. It can takes weeks or months of appointments and tests to diagnose and treat reflux. I am not a patient person and I always want answers right away. None of this wait and see stuff. With my daughters, I found that I needed to be very organized to help the doctors figure out the cause of the problems. I made sure that I kept a notebook of her daily medications and symptoms, appointments, tests, test results and any other info. I also asked for a copy of all of the medical reports, blood tests, ER reports, clinic visits-the binder became rather thick. It was so useful at times. A doctor would ask something and I would say, let me see, here is the report for the doctor. It saves a lot of time and duplication. So keep in touch and let me know what you find out from the testing. Jan Gambino The Reflux Mom