Wednesday, May 30, 2012

10 Things You May Not Know about ADHD

By Merely Me, Health Guide Tuesday, August 10, 2010
So you think you know all about ADHD? You might know a lot about this disorder if you have been diagnosed with it or if you are a parent or caretaker of a child with ADHD. But as much as we think we know, there are always new things to learn due to the incredible amount of research on this topic. ...
ADHD and Stuttering
8/11/10 1:39am

Hi MM, I like you new pic, here.

For a long time I considered attention deficit one of my main issues for over coming depression. I still do think weak attention contributes to the downward spiral. As I get healthier,though, I find a constellation of factors working together to strengthen not just  my attention, but many aspects of having a resilient mind: longer and more frequent periods of happiness, more energy to handle typical set backs, stronger memory, williness to look at the ephemeral without anxiety, seeing ways to help others, having goals beyond a single day, week, month, or year, having supportive friends, engaging in creative activities like you mention. Healthy living leads to more healthy living. Thank you.

Ric

 

Anonymous
SM
8/12/10 1:04pm

Hi,  I will assume that you are an adult with ADHD, out of curiosity as a child were you constantly getting in touble at school or having mood swings like irritability and/or anger, or did you react to disciplinary actions in an extreme way (such as having an emotional breakdown with crying or just totally not listening and being defiant)?  My son has been diagnosed as having ADHD and these are some of the things that I noticed with my son.  I don't know anyone who has ADHD, so this is new to me and I'm trying to better understand some of his behaviors and see if anyone has experienced the same things because I'm starting to think maybe he has been misdiagnosed or something else could be going on.

 

 

Thanks,

 

SM

Nashville, TN

8/12/10 2:41pm

Hi SM,

Thanks for your questions. I was "moody" as a youngster, but was allowed much freedom to become whoever I was supposed to be. I had reading trouble in elementary school. And am still only a moderate reader. My attention difficulties I attribute primarily to past substance abuse. Antidepressants help a lot. No, I don't think I have ADHD, I just enjoyed the article by MM and wanted to comment.

Ric

Merely Me, Health Guide
8/12/10 3:15pm

Hello Ric

 

Just wanted to say thanks for your comment!  Good to see you over here.  I hope more of our My Depression Connection members wander on over.

Merely Me, Health Guide
8/12/10 3:19pm

Hi SM!

 

Welcome to the site.  If your son was just diagnosed then you are in the right place.  We can help you with information, resources, and above all...support.

 

How old is your son may we ask?

 

What is causing you to doubt the ADHD diagnosis?  What else are you thinking this might be?  Who diagnosed him?

 

The thing about ADHD is that it can manifest in a variety of ways...no two children with it will be alike.  And sometimes other diagnoses come with it.  ADHD can have a lot of co-morbid conditions. 

 

Tell us more if you can and we can try to help with information.  Thanks so much for finding us and for your comment.

Anonymous
SM
8/12/10 6:23pm

Hi,

 

Thanks for responding my son is 8 yrs old and I was referred a neuromuscular clinic here in TN, the physician diagnosed him as having ADHD 2 yrs ago.  I was referred this doctor by a coworker.  He also was seeing a social worker that worked at his elememtary school who said he had Oppositional Defiant Disorder.  I think he is suffering from something other than ADHD or in additon to it because his behavior I would describe as switching on and off a lamp.  One minute is fine and then the next he is mean and unhappy.  He also seen a therapist who said he was suffering from depression because he had an incident when he wanted to commit suicide because he got in trouble for using bad language.  When he is happy he is the sweetest lil kid, but when he gets upset he just turns into a completely opposite person.

 

I am starting to believe he may be bipolar.  He has what I like to call a nervous tick where he twists his hard into knots until it actually comes out and leaves bald spots, so I have to keep his hair cut low to prevent that.  The moodiness also makes me think this.  I have taken him to see a child psychiatrist at Meharry Medical Group here in Nashville to get a second opinion.  His first visit was yesterday and we got back in about 3 weeks, but she doesn't want me to give him his medication (Vynanse and Celexa) so she can get an idea of how he is off of the medication and make her own diagnosis.  He takes Vynanse 20mg and Celexa 15mg in the morning and Clonodine 0.1mg at bedtime.  I don't feel like the medicine is working for him so I'm really not opposed to giving it to him.

Anonymous
SM
8/12/10 6:33pm

Proofread, proofread, proofread!!!!

 

I am so sorry for the typos I'm really exhausted right now trying to type this, but I was trying to say he twists his hair into knots where it comes out and makes a bald spot. I also was saying that the child psychiatrist doesn't want me to give him the medicine (Vynanse and Celexa) and that I am not opposed to doing so since I already believe that it is not working for him.  He goes back to see this child psychiatrist in about 3 wks.  Also, I meant to mention that on his father's side of the family there is some mental illness, such as suicide attempts and schziophrenia.  His father was diganosed as having Compulsive Oburst Disorder, that's why the social worker he used to see thought he had the child version of it (Oppositional Defiant Disorder).

Merely Me, Health Guide
8/12/10 7:02pm

Hi again SM! Hey not to worry...I totally understand that feeling of weariness. Sometimes I am lucky to spell my own name right.

 

I am going to give you some information to read since you are wondering about his diagnosis.

 

First of all...here is our information about Oppositional Defiant Disorder which can be a co-morbid condition of ADHD.

 

We also have an entire site dedicated to Bipolar Disorder.

 

You can also visit My Depression Connection.

 

I just wrote about hair pulling not so long ago.  This can be a side effect of some of the ADHD medications.  This may be a link you want to look at first. 

 

You may be right that other things may be going on in addition to ADHD or even instead of ADHD.  You know your child best.  The thing to know, however, is despite his diagnosis...you need to find help for his behaviors whatever they may be calling this.  That is the trick...you need a diagnosis for treatment so that insurance will pay for treatment. 

 

I have heard many other parents talk about the "switch" which suddenly turns off or on.  My son has this...he has autism and also extreme symptoms of ADHD.  It is a mystery as to what can turn that switch...I believe some of it is brain chemicals and wiring and some of it is behavioral and due to triggers in the environment. 

 

It is good that you are tackling this now.  The sooner you can figure out what is going on the better.

 

I wish you the best of luck and please do report back to let us know how things are going.  Any time you wish to write...we are are here to listen.

Anonymous
SM
8/13/10 10:43am

Thank you for all the information you have given, I will take the time to read through it and form questions that I need to ask his doctor at his next appt.  I  really appreciate any help or advice that I receive.

 

 

Sincerely,

 

 

SM

8/13/10 12:31pm

My little guy, diagonsed at 6 and is now 8 years old, also had outbursts, (from about 3 years old on) we called them "meltdowns" with extreme harmful behaviors, like: throwing himself down on cement, hitting, pushing over furniture, biting (himself and others), removing all his clothes, cursing, threatening, kicking, throwing anything he could pick up; he was just so mad he did not know how to express it. He had a lot of irritability, no patience at all, and was very quick to anger for seemingly small problems.   it was all from the ADHD, and he is no longer having these outbursts, either at home or at school since on the Strattera. 

 

 The behaviors -- that feeling "out of control" and with the impuslivity of the ADHD, and no learned coping mechanisms can make some of the ADHD behaviors look a lot like oppositional defiant. It seemed like each and every direction we gave him instigated a tantrum or at the very least- on a good day -an argument.  Sometimes he had 6 (pretty violent) outbursts a day. the psychologist thought we were seeing oppositional defiant disorder, and depression (which runs in the family).  I was not convinced of this. 

 

 

we were not happy with the first psychologist, we saw for help with behaviors, as he recommended a lot of negative reinforcement - taking away favorite toys, electronic games, TV time, for every thing. this made everything worse and escallated the anger. Plus, pretty soon he had nothing to play with.  We found a different one, by going to the CHADD website, that is much more positive, and worked for us; and worked with us as parents.

 

We tried Adderal first with him (worked ok at first, but really damped down his appetite, and he is already very thin and small), then Focalin, but he had sleep problems with the Focalin, and was just not himself, he seemed "sad" and did not talk as much.  Better " focus " at first, but still occasional "meltdowns".

 

So- back to Adderal, but when on it the second time - after a few weeks he had a strange reaction of nearly constant fear (hiding under his desk at school and crying), saying about every 3 or 4 minutes, "I'm scared - there might be monsters around".) This caused the psychologist to say maybe he is scizophrenic- as he thought he might be really seeing monsters.) It was a side effect of the adderal.  He also held onto the hair on top of his head while he slept, and he never did that before the Adderal (and does not do it since the adderal stopped - this caused some  hair thinning before we stopped it, and it grew back). 

 

Then finally Strattera.   The psychiatrist was reluctant to try Strattera as it does not work in many kids this young, but it worked right away on a small dose.  We get it in liquid from a compounding pharmacy, since he cannot swallow pills, and this makes the dosages easier to titrate.  he was on only 10 mg for about 9 months, then up to 15mg, and is now on 20mg - taken before bed.  He sleeps well, has control of himself, can focus, can sit at school to complete his schoolwork, and can sit in church for almost an hour (quietly- with only a pen and paper for his amusement).  He is able to complete his work on time at school, Reading clicked for him the second half of second grade and he is doing much better with Math too, and is very proud of himself.  He has also learned to "derail" his anger by changing the subject when he becomes angry, or doing something silly; and if he does not - we have learned that he cannot resist "knock'knock" jokes.  When we say knock-knock, he will always ask "who's there" and then any silly thing i say breaks that bad mood and anger.  a good trick, at least for now.  He is a really happy kid, he still has trouble with "transitions from a perferred activity, to a non-preferred activity" sometimes, but when given some advance notice, (in 5 minutes its time for ___) usually handles it OK.

 

it was a very tough 2+ years with med changes, behavior support and counseling, all took time, but we are on a good track now. I am glad we did not get any additional diagnosises.   My little guy also has Mosaic Down Syndrome, but a normal range IQ. 

 

I hope you find something that works for you -- as well as Strattera and "knock-knock" jokes work for us! 

Anonymous
SM
8/13/10 2:35pm

Thanks ya, ya for your post it makes feel a lot better knowing that I am not alone.  Everything that you described that you go through with your child is the same with my son as well.  He started out with Focalin and he had the exact same response but also it made him very aggressive and angry like.  Then he was put on Strattera for a while he started off with small doses and moved to eventually a 40mg I believe, and now he is on the Vynanse which completely doesn't work at all.  I have heard of Aderall and Concerta (sorry if I spelled them wrong) so I was going to mention the two to his physician and see what he thinks.  I am still in the process of trying to find him a counselor/therapist.  I was referred to this guy who is in his doctoral program and works under a doctor that we are going to meet, he specializes in behavioral therapy.  I also, have signed him up for the Big Brother, Big Sister program to get him a mentor. 

 

I am glad that I have people to talk to now about our situation who can relate and understand.  This is very stressful and the constant phone calls from his school and/or before and after care program and the suspensions are getting to be too much for me.  I work and I'm afraid I may lose my job from having to leave work early or getting the constant calls.  I hope we get it figured out really soon and find a solution just as you did with your child.

 

 

Thanks,

SM

8/13/10 2:48pm

Hi SM,  Yes, it is good to hear what others are going through and know we are not alone. Please take advantage of your local CHADD chapter, interact with the other parents, and ask for a referral for a behavioral counselor that other parents really like.  the one we had at Fairview Counseling, Miss Kate, really helped with our little guy, with play therapy.  She also helped up as parents work out what we needed to do to support him during his difficult times, and helped us to be on the "same page" with realistic expectations, and setting limits, and supporting each other.  Difficult days and nights can really take a toll on a marriage.  I found that my EAP (employee assistance program) could make the referral and most of the cost was covered by my health insurance, with me paying a co-pay.  this had two benefits: the referral, of course, and the added benefit of my employer knowing that i was doing all i could to handle things, with the tools they provided.  this, i think was beneficial in their tolerating the occasional calls from school, and leaving early when it was necessary. 

 

I wish you luck in your efforts for a good diagnosis(s), and treatment.

yaya

8/12/10 5:36am

As a child I was accident prone but it didn't diminish with age, in fact the older I got the more accident prone I became, especially around certain times of the month I become more clumsy and a walking disaster. Often, I think "How the hell did I manage to do that??". I think a lot of it has to do with co-ordination difficulties and distractibility on top of it.

 

Regards, Michele

Merely Me, Health Guide
8/12/10 3:13pm

Hello Michelle!

 

Thanks for telling us about your experience.  I have read that for women...one PMS symptom can be clumsiness...so add some distractibility and watch out.  I do wonder how many adults with ADHD are accident prone...it would be interesting to find the stats on this.

 

I think for some kids with ADHD...it is the daredevil syndrome...coupled with little to no fear.  I am probably overprotective with my son because he shows very little fear in sometimes dangerous situations. 

 

Thank you for your comment and we would love to hear more about your experiences having ADHD both as a child and as an adult.

 

 

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By Merely Me, Health Guide— Last Modified: 01/07/12, First Published: 08/10/10