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Tuesday, November, 24, 2009
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Is there a difference in always knowing & just finding out

MMT78
MMT78
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MMT78 is Wishing she could get a good nights sleep
Always have Always will

I am a 30 year old woman who has lived with ADHD my whole life. Was...

MMT78

Tuesday, June 16, 2009
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Okay so I have lived with ADHD since I was a child, I have always known that I was different, that my brain didn't work the way all the other kids brains worked!! I am wondering and would like some feed back on whether you think it is harder always knowing you have had it, or finding out as an adult....
  1. Recently Diagnosed
    Eileen Bailey
    Wednesday, June 17, 2009 at 07:43 PM

    Thank you for your post. I am not sure how to answer, as I myself do not have ADHD. I began to learn about ADHD 12 years ago when my son was diagnosed. Since then I have written about, interacted with and learned all I can about ADHD and how it impacts a person's life. But ADHD is different in each person, therefore, there really isn't an exact answer for you. For some people, a diagnosis is a relief, it is an explanation and brings with it a sense that in understanding, management of symptoms will be easier.

     

    I am providing you with some links to some articles that may be of help to you:

     

    Terry Matlen's Diagnosis

     

    Tips for People Newly Diagnosed

     

    Newly Diagnosed - One Man's Story


    Climbing out of the Hole: Where and How to Find Help

     

    Letting Go: Embracing the New You

     

    I hope this information helps.

     

    Eileen

     

     

    Reply
  2. ALWAYS KNOWING.
    Jurine
    Saturday, June 20, 2009 at 01:58 AM
    It has been extreamly hard for me not knowing that I have ADHD . Because growing up all my mom said I was an evil child. But now I know that part of my problome was that I had ADHD.I wish I had known before now.So for me it is harder to be just dignosed it.
    Reply
  3. SO much harder NOT knowing
    Michele
    Friday, July 10, 2009 at 02:58 AM

    Hi,

     

    In my opinion I have to say that it definitely has to be SO much harder having to live most of your life not knowing you had ADD/ADHD.

     

    I often think how my life would be so much different and better if I'd had the opportunity to be diagnosed as a child, with all the knowledge and choices available, instead of finding out at 36 years old. (I'm now 46).

     

    I could never understand the way I was. How I could be so good at some things but totally incompetent in others. Not being able to understand maths, geography and most science, yet excel in English, History, etc.. was incredibly stressful and confusing!!

     

    Being incredibly lazy, especially on my own or having to do things for myself in particular and yet when motivated at the last minute by someone arriving home or a need to get something done, I'd be able to run around like crazy and go, go, go for many hours on end. The opposite ends of the scale all the time, never any in betweens.

     

    I've always been an avid reader since childhood and always think I'd be a genius in certain areas, if ONLY I could remember more than bits here and there of what I've read.

     

    Not understanding how it was possible to be looking at someone and thinking I'm definitely listening to every word they say or are instructing me on what to do, to then find, as soon as they've turned their back to me, I can't remember a damn thing they said, except maybe the first 2 things. How is that possible????

     

    For so many years, I secretly wondered if I might be schizophrenic or something similar because of the thoughts in my head tumbling in on top of each other so often. I knew they were my own thoughts and it was me who was having so many different conversations going on in my head all at the same time or else just constantly flitting from one thing to the next but I didn't know if that's what other people might have been thinking were actually 'voices' to them.

     

    I'd often talk to myself and have debates in my head or try to MAKE myself do something I needed to do but had no interest in and didn't want to do it. To me, it was just the motivated, pushy side of me, trying to make the unmotivated lazy side of me get of my backside and just DO IT!!! I always wondered if THAT's what people meant by hearing voices but it just never seemed to fit, as I never felt that they were other peoples voices in my head but just my very own.

     

    I read a lot about Schizophrenia and even asked people with it about the voices they hear and they were similar to each other but different to what I experience.

     

    Trying SO hard all the time to hide the weaknesses I had and APPEAR just as 'normal', competent, patient and NICE as every one else didn't seem to have any problems whatsoever with. By the time I'd get home from work, it was just too hard to keep it up any longer and my family often suffered from my bad moods because I'd be so irritable by then

     

    Even though my family never belittled me or gave me a hard time about my weaknesses and I often think they may not have even noticed, as I never talked about any problems I ever had, I always believied deep down that there was something definitely 'wrong' with me.

     

    Not understanding why I appeared to have to work so much harder than anyone else just to get little trivial things done, let alone bigger tasks or over-reacted to things or became so overwhelmingly emotional about certain things, that it physically hurt, was very hard to live with.

     

    Always questioning "Why can't I do this", "Why am I like this", "Why do I do these things", "How can I be so logical and yet do such stupid illogical things", "Why can I do things one day easily, then hopeless at it the next", "Why don't I ever learn from my mistakes", "How do I keep losing track of time so easily", "Why am I useless during the day but always get active at night when I should be sleeping" and on and on the questions and constant confusion continued year in, year out!!!!

     

    At least now I have a reason why and how. Doesn't make life any easier to manage the issues of ADHD but at least the shame and constant questioning of my own intelligence, abilities, personality and conflicting ways, as well as not having to always try and hide the real ME is a MASSIVE burden lifted.

     

    At least with always knowing, you've had a reason to explain many things about yourself and your differences to others. Also the choice on whether to seek treatment, trial it, improve or not on it, share your diagnosis, educate people or  just do nothing at all was available to you and still available.

     

    Hope that gives you a little more insight on what not knowing was like for one person at least.

     

    Cheers, Michele

    Reply
    re: SO much harder NOT knowing
    Onan
    Thursday, September 17, 2009 at 01:53 AM

    I almost cried before I had even finished reading your response. Every single word there completely echoes the life I have been living for 25 years. I think about the burden I've put on my 3yr old daughter, my wife and the rest of my family and I think about the same intense burden they put on me with the whispers or screaming "Lazy", "Quitter", "What's wrong with you"

    What's even harder than not knowing is just finding out, and not being able to get the help you need because your an adult. And adults are not supposed to have ADHD, and if you ask for help you're just after a prescription of legal meth.

    Reply
  4. before or after?????
    ADDbuster
    Saturday, July 18, 2009 at 05:29 PM

    OK, i think everyday that goes buy and you do not know whats wrong with you is a disaster. Everyday that you are late in finding out canbe an ugly horrible curse. I

    actually

     

    cannot believe you are asking this, but then I am not in your shoes and only found out at 38 after going to very very tough times (or else i would not know now...OMG). I would

     

    give all I have to have known earlier, it's better to know why you fail rather than fail and not know and keep on banging your head against the unknown.

     

    I think words will never be able to express how much harder it is to find out late, If you lived 200 or so years ago and had bad eyesight and suffered and were maybe ridiculed and

     

    got much less than you deserve. Then you find glasses in your late thirties, how do you feel. You look for days and days around you and you say OMG i never saw all this????

     

    Very bad...........

    Reply
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