Wednesday, June 19, 2013

Tuesday, July 20, 2010 is it ADHD? asks

Q: I was told that my stepson was diagnosed with ADHD but I am skeptical

He is now almost 12 and has been on methadate I guess since his diagnosis.  He does not see a psychologist - only his pediatrician - so he has never been to therapy. He is in an IEP at school and has been since kindergarten after he failed the first time. He is going into 5th grade but it appears to me that he is emotionally and intellectually delayed to the extreme.  Both natural parents seem to be in denial and are content with the ADHD diagnosis but I fear this child is not getting the proper help he needs.  ADHD is so commonly misdiagnosised with autism spectrum disorders.  Autism and mental illness does run in the family and I believe he is autistic. Below are his symptoms:

 

Fluency - difficultly asking a question or telling a story without stammering/stumbling over words or mixing up words and possible meanings. Has a difficult time verbalizing feelings and cannot articulate, organize and prioritize thoughts. Ie - might say something is tall when it would be more appropriately described as long. May say he doesn't feel good but can't tell you what is wrong. Appears to think faster than he can talk. Has difficulty reading, writing and with math concepts. Has difficulty falling asleep without tossing and turning and it does not appear he is sleepy at all upon wake up.

 

Speech - has speech issues with th but has improved on r's. He has been in speech at school since 1st grade.  The overall improvement has been moderate at best.

 

Memory- is more likely to memorize than comprehend and retain long term. Ie in 3rd grade had spelling tests and would memorize the words and get A's but in 4th grade had difficulty spelling 1st, 2nd and 3rd grade sight words.

 

Sometimes confuses emotional pain with physical pain.  Does appear to have anxiety.

 

May recall events to use as a comparison to a current situation but it is difficult for others to see the relationship between his comparison. Gets lost in the details when telling, listening or writing a story.

 

Is in an IEP at school (resource help) so he does get extra help on reading and speech and gets extra time on writing assignments and tests etc.  Maintains pretty much an A and B average with a C every once in awhile. Does not get much help at home with mom but dad will work with him on homework on his day.

 

Craves positive attention but will settle for negative attention. Lacks confidence ie wants constant reassurance on simple tasks, thoughts, etc. over and above the need for normal reassurance. His feelings are hypersensitive.

 

Limited range of interests - video games are paramount and then TV and Bionicles.  He will play and swim outside and with other kids but does not enjoy this for long periods of time. Prefers alone play - may have constant disagreements with other children if engaged in group play to long

 

Has difficulty socializing.  He does try to be social but has claimed he is often picked on and has a difficult time using wit/sarcasm to retaliate. Also he did have a tattling problem (although he has improved on tattling)

 

Takes the spoken word extremely literal. Has difficulty processing sarcasm and can get offended if some one is sarcastic or joking. Sometimes it appears he unintentionally embellish his stories. Ie someone touching him might be explained by him as someone hitting him - but when broken down into details he will change his mind that it was really more just a touch instead of someone hitting him.

 

Coordination - has extremely sharp fine motor skills however gross motor skills are not as sharp. Extremely good at puzzles/lego type toys.

 

Socially and emotionally immature but very independent on day to day tasks

 

Imitates or copies phrases from dad or tv, etc. May use catch phrases over and over again when he is conversing. Ie. whenever talking about dogs he will include a dog is mans best friend.

 

Has a difficult time pulling words and meaning from memory. Ie may call toaster a machine. 

 

Doesn't always facilitate thought provoking conversation or engage appropriately in reciprocal conversation. Ie. Everyone might be talking about a current event Michael Jackson dying and he might respond by asking what would happen if his chicken nugget turned into acid inside him and started oozing out of his body. OR may ask questions that have obvious answers ie Did you feel sad when your dog died.

 

May over do or not time conversational responses correctly. Ie may say thank you way more than necessary. Ie if you put three different foods on his plate to eat he may thank you three times for every serving instead of waiting until you are finished serving and thanking you once. Tends to see different situations more black and white - has a harder time seeing the gray area.

 

Enjoys younger children more than older children.

 

Does not have a bad temper nor is he defiant. However he may have to be asked more than once to do something but it appears that has more to do with lack of retention then disobedience.

 

Very gentle and loving child. Does like to cuddle with family. Very hyper from the time he could walk until now. No sense of danger as a toddler - may run right into ocean...

 

Does not hyper focus anything particular - except maybe video games.

 

Does not have any particular daily routine because his living environment is more disorganized than organized.

 

My question is if he is on the autistic spectrum is his lack of counseling and the medication being prescribed for ADHD effecting his progress or lack thereof. I just haven't seen significant improvement since I have met him and that was nearly five years ago....Thanks for your help

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Answers (2)
Merely Me, Health Guide
7/21/10 2:12pm

Hello there

 

This is quite a lengthy and detailed list.  I have to ask is your question more about your stepson or is more about a beef with his parents about how they are raising him?  I guess I am confused about the arrangements...is this child under your care?  Have you discussed your concerns with the parents or anyone else?

 

You are right in that there can be a great overlap of symptoms and behaviors between ADHD and autism.  Sometimes it can be hard to tell what is going on.  ADHD has a lot of possible co-morbid conditions including learning disabilities, depression, and anxiety. And some children who have an autism spectrum disorder may also exhibit symptoms of ADHD. 

 

It is possible that another diagnosis may have been overlooked but if he is almost twelve it doesn't seem as  likely that the school system or others would not have picked up on autistic traits or behaviors.

 

Many of the things on your list are quite postitive.  You say he is getting good grades as in mostly A's and B's.  He is interested in things a lot of kids are interested in.   You report that he doesn't have a bad temper nor is he defiant.  I don't hear you talk about any behavior problems.  You say he is very gentle and loving. It is more rare than not for someone having either ADHD or autism to not have any behavioral issues.   So this is a huge plus.

 

He sounds like a good kid who maybe has some issues with language, processing, and social skills.  You say he has an IEP...this is good...are these issues being addressed with his plan?

 

Without seeing him, nobody can say whether or not this is autism.  He would have to be seen in person by a diagnostic team, skilled in making such a diagnosis.  For my son to be officially diagnosed with autism it took a team of therapists, doctors, and teachers to examine his behaviors for several days and after interviewing me as well as having him undergo other medical tests such as checking his hearing, etc.  I am of the opinion that autism is greatly overdiagnosed these days.  People read things and they hone in on certain behaviors which may or may not be relevant.  Yet it is also true that some children will fall through the cracks and not get a proper diagnosis because there can be such overlap of symptoms between disorders.

 

If you feel that this child is not getting the help he needs...you need to talk to the parents.  If you are involved in this child's care then perhaps you can talk to teachers or others who work with him on a daily basis to get their opinion.  I would start there. 

 

We have a lot of information here about ADHD as well as autism

 

Feel free to ask any other questions you may have.  I know the labels can be very confusing.  Hope this helps some.

 

Thank you for your question.

 

 

 

 

 

 

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7/21/10 4:17pm

Thank you for your reply. I guess you could pick up on my irritation with the natural parents. The child does not reside with me and his father - he resides with the mother. The mother feels that he is a normal ADHD kid (whatever that means).  She also has limited time to devote to parenting.  The father- my husband has bipolar disorder. He does speak with his sons teacher but often hears only what he wants to hear.  He has indicated that he would like to have his son reevaluated and would be willing to facilitate it. However, he still has not.  I don't really have a say in anything - only the ability to make suggestions to my husband - who is in denial and feels more sorry for his son then anything else. My thing is I feel for the kid.  He will be going into middle school and puberty and knowing this child (who is very developmentally delayed) I believe he will not be able to handle it.  I feel people often take an autistic diagnosis more seriously than an ADHD one. Also here in the state I live in you get financial help with spectrum disorders (this might entice the parents to look into therapy).  I am not really caught up in labels I just think if he is not properly diagnosed he will not get the help he will need in the future. Its easy to get help in elementary school - not so much after that. He is a nice boy but he is also a walking target for bullies and such. I will continue to press forward in hopes to positively impact this childs life. Again thank you for your feed back. 

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Merely Me, Health Guide
7/21/10 4:36pm

Hey there

 

Okay...this is much more clear picture.  I can see your worry.  Is the child being bullied presently?  You are right that middle school can be especially hard.  Do you feel that bipolar disorder may also be a worry for him?  These conditions really overlap.  The other possibility is Aspergers Syndrome. Or he may just have some developmental delays and ADHD.  It really would be impossible for anyone to know what he has without seeing him in person.

 

The best you could do is to give your husband some information about these conditions and tell him of your worry.  Other than that...there is not much you can do.

 

I hope things all work out somehow.  Let us know what happens.

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7/22/10 8:27am

Thanks for your response. He has complained about being picked on for quite some time but in elementary school picking on someone is more just name calling and nothing physical at this point (which name calling still hurts feelings) The catch with this child is he complains about everything so the parents have a difficult time determining what is meaningful and what is not or what is embelished.  I don't believe he does this intentionally because I see other delays that make me feel that he just doesn't process things normally.  If he is truly ADHD it could be considered attention seeking behavior. However, I think he really can't process whats going on. As far as the bi-polar, I don't think he has that (yet at least) I am very good at recognizing it because my stepdad of 25 years is bi-polar and so is my husband.  However, my husbands sisters son was diagnosed (after a myraid of therapist and such) with Aspergers/PDD.  He acts very similar to my husbands son except her child has rage issues and he doesn't seem to be as academically challenged as my husbands son. So this definately runs in the family.  I was told he should have a neuro/psych/social exam. I relayed this info to my husband but nothing done yet. The child is moving a couple hours away now with his mother (who is not willing to invest time in this because she is fine with the ADHD diagnosis and just keeps uping his meds) so I don't have a lot of faith that this issue will be addressed. Its unfortunate but I believe the childs social and academic life will have to bottom out before anybody does anything. In middle school I am certain he will be mainstreamed completely if he does not get a diagnosis of a spectrum disorder. I appreciate you giving me a forum to be able to air my concerns.  It allows me to get things off my chest. I am a mother who is devoted to my son and I can't imagine sweeping this under the rug. Its hard when you would do anything for your kids and you see people who won't. This is a perfect example of there are none so blind as those who see. Thank you again if anything happens in the near future I will be sure to post.

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6/14/11 6:40pm

The answer is SPD sensory processing disorder, but it is kinda common for ADHD and SPD to co exsist. I have a son with SPD and he has been going to Prov. To OT first thing you do is get a sensory screen kinda like the conner test.  Either way you should look at it as an extreme possibility.  Good Luck

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By is it ADHD?— Last Modified: 06/14/11, First Published: 07/20/10