Wednesday, May 30, 2012

Sunday, January 04, 2009 shorrocks70 asks

Q: I am desperate in seeking answers to the possible effects of Adderall Xr and Adderall immediate rele

Hi, I am seriously desperate for others input in the matter of extended release amphetamines and the immediate release.  Around over a year ago, my doc and I gave an extended release of Adderall a try, and I didnt really notice anything different.  Then this past early December we tried Vyvanse, and it was a 3 week nightmare.  So we went back to the immediate release Adderall, with an instant improvment, but we also tried adding a dose of XR in the day to see how it would work.  That happened over XMAS, and it was - again - a nightmare.  It is like the XR makes me literally retarted!!, I spin around with like 5 projects in my mind, and sometimes in my hands, I cant think, I forget everything in the world.  Im like in slow motion to accomplish something, yet I do get ideas of what to do, I just cant complete a thing.  I also experienced a terrible bought of Fibromyalgia symptoms, the muscle cramps and severe pain for days.  I stopped the XR right before Xmas day, because it was the only thing I could think to do, and within a few days, I am not completely retarted, and I can actually get something done, thats on the Immediate release, of course.  This is all driving me nuts, it just seems like I am so super sensative to so many drugs, including ALL of them, that I dont fit the typical profile, but, I find it hard to beleive that I am the only one that has alot more problems on any bit of an XR???  Its been tried, tested and true.  Now I am faced with running out of my Immediate release, due to the DR agreeing that I shouldnt take any XR, and now I face the problem of traveling an hour, if okayed, to pick up a new script!!  Unfortunately I also face the darn rebound of the stuff, and so while Im on the IR, I am way more bitchy, and cant stand that either!! I feel so screwed!!   The others types of ADD meds do not work, and have been unsuccessfully tried.  I just dont know what to do.  I also have a million physical problems, and despite asking if I should just go off the Adderall again to save the trouble of physical things being attributed to that, my doc, just doesnt believe  it to to be the case,(honestly, I agree, the IR actually seems to make the heart better, and my BP is fine)  Now Im heading toward Brain MRI and Nerve testing, and a Vascular specialist.  AHH - Im losing my mind - In the past the Cardiologist said its gotta be the Adderall, and despite going off, I continued with many boughts of issues, but not life threatening.  Im afraid that the Vascular is just gonna go the easy route of "its the Adderall"  And we will again find that not to be the case, and yet I will have a far more difficult life for it.  And a delayed prognosis of what is really going on with me.  Why cant the XR just work well for me and not make me nuttier????  Am I really that SPECIAL??  Whats with the XRs???  Theres gotta be more than the release, if its smoother right??  Seriously.  Any serious imput would be appreciated, and please know I do NOT misuse this stuff.  Its for a well tested case of ADD, and Depression, because of a life of the ADD not treated.  I am 38.  Thanks, Stacey

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Answers (2)
Terry Matlen, ACSW, Health Guide
1/ 5/09 3:55pm

Hi Stacey,

 

I'm sorry to hear of your difficulties in using an XR. Actually, I've not heard of your experience before. Typically, if someone does well on the immediate release, they also do well on the XR. I'm wondering if it could have anything to do with the XR dosage you're getting and if it's matching up to what you take with the immediate release.

 

But meds can be tricky, as we are all different and react differently do medications. There are some other XR meds for ADHD- perhaps you should talk to your doctor about Daytrana, long acting Ritalin, Concerta, Focalin XR, etc.

 

If they simply don't work for you, then you'll need to figure out a way to make the short acting Adderall your best alternative. Rebound can often be tamed by the timing of meds and over-lapping dosages. Side effects of irritability can also be helped this way. Or perhaps your doc might want to add another med to help with moodiness, if necessary.

 

As for your medical problems, it's always important to weigh risks and benefits of taking ADHD meds. If they are, indeed, interfering with your medical health, you should really abide by the doctor's recommendations or consider a second opinion.

 

Hope this helps!

Terry

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12/ 7/11 3:19pm

What happened when you tried the Vyvanse?  You mentioned 3 weeks of hell but didn't go into detail. My 16 year old son was switched from Focalin to Vyvanse 50mg and started experiencing headaches, stomach aches, and body pain 3 hours after taking the first dose. Each day his symptoms got progressively worse so I stopped the medication after the third dose. By then his headaches were migraines and his body pains were head to toe;he hurt so bad he could hardly move. It's been a week since stopping the Vyvanse and his symptoms still haven't resolved. He's been to the ER and to his doctor twice in the last week and none of them know what to do to help him; they won't even admit that his symptoms are related to the Vyvanse. At this point his doctor won't even see him because he doesn't know what to do; I was told to take him to the Children's Hospital ER. I just wish I knew for sure if all of this was from the Vyvanse and how long it will take before he feels better because the doctors sure don't know anything about what's going on! Does this sound like your experience with Vyvanse at all?

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By shorrocks70— Last Modified: 12/07/11, First Published: 01/04/09