Strange reactions to allergy shots... So frustrated I just want to scream...

ohsoallergic Community Member
  • Anybody heard of such oddball reactions to allergy shots?  I need to know what I can do now.  Starting allergy shots was the worst decision of my life.  I've been off the allergy shots for 8 months (after 10 miserable months of shots), and I'm still having the problems that started during the shots.  It's like the shots made my system just go completely haywire, and I've never heard of that before.  Apparently my GP hadn't either.  I am 31 years old, mother of 3, and I am NOT a hypochondriac.  I really need someone to believe me and tell me what to do next.

     

    This is kind of a long story- I live in a small town and there is only one doctor's office here.  He is a GP, and he took a class to be able to do allergy shots.  He did my allergy testing, found out I was allergic to everything.  I had never tried any prescription allergy meds.  I just hated taking benadryl because it made me tired.  During the testing, I told the doc that my throat itches whenever I eat bananas or melons, and my hands itch when I peel cucumbers or potatoes.  So he wrote me a scrip for an Epi-pen.  Said it was a ragweed allergy (I am apparently HUGE allergic to ragweed.)

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    Anyway, the next month my serum came in and we started shots.  My second week, I started feeling funky, throat felt a little tight, and I was kind of dizzy.  Nurse went and got the doc, who came into the room LAUGHING at me.  Laughing, he said, because the dose was SO small that I couldn't possibly be having a reaction.  But he gave me a shot of benadryl, told me to come back the next week, and to start taking benadryl before I come in from then on.  So I did.  The bigger the doses got every week, the worse I felt.  For two days after the shot every week, I felt like I had the flu.  I just felt horrible.  Even had diarhea.  Where they gave me the shots, I would get these huge welts that covered the whole back of my arms- huge, red, hard, hot welts.  The throat tightness got to the point where it just never went away.  My tongue felt too big for my mouth, the back of the roof of my mouth got puffy and started causing a clicking sound when I talk.  The area under my tongue got bigger and it looked like a small double chin.  I felt the constant need to burp, even though I didn't really need to.  Trouble swallowing, and it felt like it was hard to breathe.  I even went to the ER once.  The same doc gave me a Kenalog shot (which fixed everything!  I felt great!)  And then referred me to an ENT for a laryngoscopy.  Well of course, he didn't find anything, because the Kenalog fixed it!!  The very next day, I had to go back for my allergy shots again, and it all started to come back.  Very frustrating.  Eventually, the doctor doubled my dose of Singulair to 20mg per day and told me to keep on coming in for the shots.  It helped a little, but not much.

     

    I continued to tell the allergy shot nurse about all the symptoms, and the doctor eventually stopped coming in to talk to me altogether.  I think they all thought I was crazy, or making it all up.  Finally, sick of being blown off, I had my husband take a picture of the welts on my arms after the shots.  When I showed the picture to the allergy nurse, she was genuinely surprised at seeing the welts, even though I had been telling her about it for months!!  At that point, after 10 months of misery, I decided that it was foolish of me to continue putting my life in this doctor's hands every week when he clearly wasn't taking me seriously, so I just stopped going in. 

  •  

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    Now, 8 months after my last allergy shot, I still have the symptoms.  Only now, I'm not really sure what's causing it.  I don't feel like I have the flu anymore, but that's the only thing that has gone away.  Sometimes my throat and tongue will swell up for no apparent reason.  I am noticing a pattern of swelling with Advil and sometimes with caffeine.  But sometimes there is no cause I can figure out.  I would love to go get another Kenalog shot to make all this calm down, but I don't want to talk to that doctor and risk having him look at me the way he did before (that "yeah, ok, whatever" look he was so good at).  At this point, I have just about resigned myself to living like this... never leave the house without my benadryl... my Epi-pen... and my inhaler (oh, yeah, did I mention I have had asthma since age 2?)  I still click when I talk, I still always feel like I need to burp.  And as a bonus, now I seem to have developed an allergy to sunlight!  Sometimes when I'm out in the sun without sunscreen for just a few minutes, I get hives where the sun hits my skin!  Unreal!  Have you ever heard of someone getting this much worse after starting allergy shots?  I am so tired of feeling like this all the time, but I don't know what to do.  Maybe my GP was right.  Maybe I am crazy- I don't know.  Anybody have any ideas, input, anything?  Even knowing there is one person out there who has had a similar experience would help... I feel totally alone in this.

Published On: May 29, 2008
80 Comments
  • James Thompson, MD
    Health Pro
    Jun. 13, 2008

     

    Hi Ohsoallergic,

     

    I am a board certified allergist out of Chicago and nearby suburbs. It is very unfortunate your experience with allergy shots was so complicated. I think it is very important to have allergy shots supervised by a board certified allergist. Allergy shots may be life-threatening when a severe reaction occurs. It is therefore...

    RHMLucky777

    Read More

     

    Hi Ohsoallergic,

     

    I am a board certified allergist out of Chicago and nearby suburbs. It is very unfortunate your experience with allergy shots was so complicated. I think it is very important to have allergy shots supervised by a board certified allergist. Allergy shots may be life-threatening when a severe reaction occurs. It is therefore important to get allergy care from skilled providers.

     

    Accredited allergy training focuses on the importance of a detailed history and physical exam. The history and physical exam findings allow the allergist to properly interpret allergy skin test (or blood test) results.

     

    In addition allergists are trained on:

     

    -How to initiate allergy shots (important decisions must be made on dose and concentration as well as what allergens to use)

     

    -How to increase the doses (with consideration of quantity to be given each time in addition to interval of time in between shots)

    -How to monitor progress and make adjustments if there are problems

     

    -How to prevent the progression or recurrence of local or systemic reactions

     

    -How to approach high risk situations that may arise (for example: addressing new drugs ordered by another doctor that may increase the risk of a severe allergic reaction; considering other medical problems that may impact allergy shots; advising what to do if pregnancy occurs)

     

    -How to decide whether allergy shots should be stopped when of the risk of injury out-weighs the potential benefit.

     

    A minimum of two years is required to qualify for board certification in allergy and immunology. A board certification exam must be passed in order to achieve certified status.

     

    I advise you to get a full evaluation from a board certified allergist. You can locate one from the American College of Allergy, Asthma and Immunology website. It will be worth the money spent on gas. Good health and avoidance of potentially fatal reactions are invaluable.

     

    Many allergists will allow infrequent visits to their office by sending extracts to the primary doctor's office (with explicit instructions on how to proceed with shots). The allergist supervises any adjustments that may be required as allergy shots are given. We send hundreds of vials to doctors in Illinois and surrounding states that are more conveniently located (their offices are closer to the patient) for giving weekly to monthly allergy shots.

     

    If you are in an HMO or similar insurance entity you will require a referral. Otherwise you may be able to go to a specialist without a referral. Call your insurance provider to clarify whether a referral is needed.

     

    You may also have oral allergy syndrome and chronic urticaria and angioedema which are discussed on this web site (click on the hyperlinks).

     

    You really need to see a qualified allergy specialist ASAP.

     

    I hope it all works out for you,

     

    J. Thompson, MD

    • ohsoallergic
      Jun. 14, 2008

      Thank you so much, Dr. Thompson, for your advice.  It's very nice to be taken seriously by a doctor about this.  I will check out those links right away and hopefully find an allergist within a few hours driving distance.  Maybe he can help me out with my rosy cheek problem too... I've had that for years (very embarrassing) and always wondered...

      RHMLucky777

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      Thank you so much, Dr. Thompson, for your advice.  It's very nice to be taken seriously by a doctor about this.  I will check out those links right away and hopefully find an allergist within a few hours driving distance.  Maybe he can help me out with my rosy cheek problem too... I've had that for years (very embarrassing) and always wondered if it was allergy related, but my GP didn't have a clue.  I just really appreciate you taking the time to help me out.

       

      And thank you to everyone else who has posted their stories here.  I'm sorry you've had bad experiences, but it does help to hear that I'm not alone.

    • Anonymous
      nat3
      Oct. 01, 2008

      I received one round of shots and got a flu like response starting with facial pain like you'd get with a sinus infection followed by 5 days of illness that reminded me of being on interferon. In that I have radio interviews coming up for a book I wrote I'm going to put off starting the next "diluted" round. Have you treated patients who got this sort of serum...

      RHMLucky777

      Read More

      I received one round of shots and got a flu like response starting with facial pain like you'd get with a sinus infection followed by 5 days of illness that reminded me of being on interferon. In that I have radio interviews coming up for a book I wrote I'm going to put off starting the next "diluted" round. Have you treated patients who got this sort of serum sickness response to allergy shots?

    • James Thompson, MD
      Health Pro
      Oct. 06, 2008

      Hi Nat3,

       

      I have not had this experience with my patients. Serum sickness like reactions are very uncommon in the setting of allergy shots. I don't know if reducing the dose will be effective if in fact the reaction is immunologic. Your experience is very unusual. Let me know how it goes. I cannot comment any further, not knowing the details of your allergy...

      RHMLucky777

      Read More

      Hi Nat3,

       

      I have not had this experience with my patients. Serum sickness like reactions are very uncommon in the setting of allergy shots. I don't know if reducing the dose will be effective if in fact the reaction is immunologic. Your experience is very unusual. Let me know how it goes. I cannot comment any further, not knowing the details of your allergy and medical history, specific shot doses and extract selection etc. I assume you are under the care of a board certified allergist (if not, find one).

       

      Good Luck!

       

      J. Thompson, MD

    • ames
      Dec. 10, 2015
      it is definitely the shots, ive researched and tested it by going on and off them since 2001. If it started strong, id get rashes .... by the year or two in, alot of wheezing and itching with flu symptoms 1 - 3 days after any of the larger , stronger shots with neck pain and flu symptoms. And chills ! Now 2 out of the 3 doctors did lower dosages, but eventually...
      RHMLucky777
      Read More
      it is definitely the shots, ive researched and tested it by going on and off them since 2001. If it started strong, id get rashes .... by the year or two in, alot of wheezing and itching with flu symptoms 1 - 3 days after any of the larger , stronger shots with neck pain and flu symptoms. And chills ! Now 2 out of the 3 doctors did lower dosages, but eventually it would get strong again and id have the flu symptoms. it has taken me 3 years this time to get to almost maintenance and the chills and flu symptoms are back, every week unless new vial the first shot . I think its just the response of your immunity trying to metabolize whats being shoved into you and doctors should not be lying to patients and telling them it isnt normal, or doesnt happen. Im still better off becuz without shots, id be coughing nonstop and b on alot of albuteral
    • Mel
      Mel
      Dec. 14, 2015
      I'm a research nurse and had been on allergy shots - I elected to start weekly in March and completed about 5 months of therapy when in retrospect I started to develop symptoms. I had wheals which I mistook for insect bites.. despite being in unusual places. I developed redness and itching around my waistband or anywhere else that clothing caused pressure on...
      RHMLucky777
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      I'm a research nurse and had been on allergy shots - I elected to start weekly in March and completed about 5 months of therapy when in retrospect I started to develop symptoms. I had wheals which I mistook for insect bites.. despite being in unusual places. I developed redness and itching around my waistband or anywhere else that clothing caused pressure on my skin. It was usually transient and I was taking Zyrtec daily. In the Fall I reached a tipping point, my doses were getting into the therapeutic range. I developed cramps, and then diarrhea and then shortly broke out in welts. I was never ill with fever etc.. The diarrhea quickly subsided w/ Imodium and I was able to stop it, but the hives worsened. I had welts on my legs, torso and back and genitals. It then moved to my face with lip swelling. Anywhere that I have pressure, clothing/sleep position I develop welts. My breathing felt a little tighter, but no wheezes. I now understand when someone says that they want to crawl out of their skin. I had stopped the injections with the diarrhea. I've been taking zyrtec 10-20 every day, Benadryl 12.5 to 25 every 6 hours and I still have symptoms. My board certified allergist could not find anything in the literature about this and was not clear that it was related to my shots, but in retrospect my symptoms developed with escalating drug doses and now I can't seem to calm down my immune system. I was required to get a flu shot while all this was going on and it only served to worsen the symptoms. I feel that these companies don't do any post marketing surveys and MDs don't report this so how does this info. get to the public in terms of risk? I see others on this site w/ similar stories. I never fully understood when they said that the skin is an organ, but I sure know that it is very much so with my never ending hives and angioedema. Any suggestions anyone?
  • stormy123
    Sep. 14, 2016
    Thank you so much for sharing! I had a total of 2 shots and felt like I was coming down with the flu each time. I was beginning to think it was all in my head! I'm sad I have to stop the injections but glad I am not alone. :)
  • Kaptt
    Jun. 04, 2016
    My story started 4 years ago with what I thought was a serious nasal cold that never went gone away. Did all the tests and was diagnosed with sinusitis probably due to allergies even though I've never been bothered by allergies in the past. Went to an allergist was tested and started allergy shots due to dust mite allergy. After 18 months of having these shots,...
    RHMLucky777
    Read More
    My story started 4 years ago with what I thought was a serious nasal cold that never went gone away. Did all the tests and was diagnosed with sinusitis probably due to allergies even though I've never been bothered by allergies in the past. Went to an allergist was tested and started allergy shots due to dust mite allergy. After 18 months of having these shots, was on the maintenance phase of a shot once a month, I went into anaphylactic shock while waiting the 30 minutes. Rushed to hospital and went into shock again in the hospital. Stopeed the shots and my health has progressively gotten worse, now seem to have asthma and am at my wits end. No one seems to have a clue as to what I shoul do now, am very frustrated!
  • Estefaniav21
    May. 27, 2016
    I had the similar reactions. I had no swelling , but I would get flu like symptoms and headaches hours after the shots. I had flu like symptoms for 3 months , and the headaches I figure it out was due to to the shots since happened at the same time week after week, and I am not s person that have headaches. One night I could not sleep because my I felt that...
    RHMLucky777
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    I had the similar reactions. I had no swelling , but I would get flu like symptoms and headaches hours after the shots. I had flu like symptoms for 3 months , and the headaches I figure it out was due to to the shots since happened at the same time week after week, and I am not s person that have headaches. One night I could not sleep because my I felt that something was tight on my throut , I never had an anaphylaxis reaction , so I thought maybe was part of the flu symptoms. All this time I explained my symptoms to the assistants at the office and they said: there is the Sahara dust in the area, you probably are getting the flu ( I live in Florida , the flu is so common). Also I was still on the lower dose, and the symptoms should me minimal and again no effect on the arm. The arm looked normal. After, that night that I could not sleep ,I google the symptom and I figure out it was an anaphylaxis effect. I call the doctor to have an appointment to talk to her directly not her assistants. She told me a was the 10%or 5% of the population that have an adverse reaction to the shots. She told me to stop taking the shots and wait for three months to see if the reactions were from the shots or not and then see what can we do different. I stopped taking the shots and no more headaches and flu symptoms. I did not went back. She knew her specialization , I just wished I talk to her earlier. Find a Doctor that knows what they are talking about and cares more about the patient than the money they get from the shots.
  • choocoolooks
    Apr. 30, 2016
    My teen son makes these awful throat-scratching sounds ,at nights mostly,. and during the occasional crowded quiet room meetings. ( UUGH . so annoying).He is always sniffling, muffled chesty cough and his allergies are mostly to environmental stuff. dust ragweed. After he was tested positive for the above allergies, I began questioning whether to treat him...
    RHMLucky777
    Read More
    My teen son makes these awful throat-scratching sounds ,at nights mostly,. and during the occasional crowded quiet room meetings. ( UUGH . so annoying).He is always sniffling, muffled chesty cough and his allergies are mostly to environmental stuff. dust ragweed. After he was tested positive for the above allergies, I began questioning whether to treat him naturally or go with the suggested allergy shots. I am not a big fan of prescription medication:, ironically I work with drugs all day long; So stumbling upon what i just read about your experience, I am definitely not going the drug route. I will continue to pursue ways to detox his system and probably get a script (wish it was still OTC) for SSKI drops to help draw that mucous from his lungs. Thanks for that scary story. That is my confirmation.
  • lsather
    Apr. 19, 2016
    My friend is also allergic to everything and she got her first shot last week. Upon getting her shot she developed large lumps under her shin and pain has been shooting down her arm that the shot was put in.Her tendon all the way down her arm is severely swollen and so painful she had to take a pain pill which she hates doing. Friday they gave her two shots...
    RHMLucky777
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    My friend is also allergic to everything and she got her first shot last week. Upon getting her shot she developed large lumps under her shin and pain has been shooting down her arm that the shot was put in.Her tendon all the way down her arm is severely swollen and so painful she had to take a pain pill which she hates doing. Friday they gave her two shots one in each arm and the already bad arm is 10 times worse and now the other arm is swelling and starting to hurt she is getting numbing in her fingers. None of this was around until she got the allergy shots!
  • doriscuev
    Mar. 27, 2016
    Hi Soallergic: I want to let you know that I went thru the same hell like you. In addition to all you mentioned, I got very sick with a very severe sinus infection and a horrible bronchitis. Just like you, I shared my concerns about the bad side effects to the doctor and nurse, only to be told that it was all in my head and how could I react that way to a...
    RHMLucky777
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    Hi Soallergic: I want to let you know that I went thru the same hell like you. In addition to all you mentioned, I got very sick with a very severe sinus infection and a horrible bronchitis. Just like you, I shared my concerns about the bad side effects to the doctor and nurse, only to be told that it was all in my head and how could I react that way to a very small dosage of serum. I was on allergy shots for five months, and after 3 courses of antibiotics to get rid of the sinus infection, I stopped the treatment. The last allergy shot took place about a month ago with severe reaction. I felt I could not breath. My throat felt tight. Right now I feel pretty well without these allergy shots. The sinus infection is gone. I decided to go for a second opinion and meet with another allergists and he mentioned that the previous allergist should have changed the treatment. The new allergist also suggested to be retested for allergies. I declined for now and I decided to give a break to my body and boost my immune system and I might resume the treatment with a different and more sensitive doctor. I am sorry what you went thru back in 2008 and living in a small town, I am sure it was hard to find another doctor. I live in NYC and we have plenty of doctors here, so I have that advantage to try different places. I hope this post will help someone.
    • miqs_29
      Mar. 29, 2016
      Hi, I went through strange hell like symptoms from the past 7 months now. It all started in September 2015, I'm not hypochondriac at all but now my family thinks that I'm. It all started with vomits in the morning and feeling of low energy in the body. I got myself checked did all possible blood tests, did ultrasound and found 1 adrenal myolipoma above my right...
      RHMLucky777
      Read More
      Hi, I went through strange hell like symptoms from the past 7 months now. It all started in September 2015, I'm not hypochondriac at all but now my family thinks that I'm. It all started with vomits in the morning and feeling of low energy in the body. I got myself checked did all possible blood tests, did ultrasound and found 1 adrenal myolipoma above my right kidney. But my bothersome symptoms were throat related. I took alot of tension of that myolipoma and thought it to be cancer. So i went through alot with alot of tests and doctors opinion. Strangely i began to notice throat tightness and sore throat, i was not able to swallow. And it went on and on. Did x ray and found that my neck muscle is stiff. I went to 4 different ENT Specialists and they all prescribed me with antibiotics and some anti allergic medicines which i took regularly but no improvement in my symptoms. Then started my asthma symptoms and i found difficult to breath all the time. It made my life worse and affected my work badly. I needed answers to my illness but no doctor was able to cure me. 4-5 months passed through this hell. Then till recently i did my vitamin b-12 and complete blood test. I was deficient with vitamin b-12 which is the most important vitamin in the body. Then now I'm taking daily dose for this vitamin. At the same time i did my worst mistake of my life that i went to an allergist. He did skin tests and found that i was ellergic to certain food and grass, dust etc etc. he quickly injected 1 allergy shot in my arm and later gave me Slit oral drops which i took under my tongue. It took me 7 days to realise that my life was becoming more hell with alot of symptoms so i stopped quickly. Now that i have stopped allergy treatment, its been 4 days and still my symptoms are there. Now im scared that whether my immune system is affected completely? Or these symptoms will go away ? As you have experience of leaving allergy treatment may be you can tell me better. With all of you who are suffering out there, my advice will be to stop going from doctor to doctor and just check for simple tests like which vitamin you are deficient of ? Which nutrition you lack in your body, try to change diet and see the resluts. Try to take 2gram of vitamin C and 400iu of vitamin E which will boost your immune system, try to take some good multivitamin as well. Try drinking orange juice. All the diseases start from the gut. So knowing which food you are allergic to and try to avoid that for a few months and slowly take them back in your diet till you feel well. These are my experiences. Must check for thyroid tests Must check for vitamin B12, vitamin D3, Calcium, and minerals like sodium, potassium and megnesium levels in blood Must check complete blood CP AND ESR tests. And finally i would say research how to boost your immune system.
  • leahapgar1963
    Mar. 13, 2016
    I believe your allergic reaction to bananas. cucumbers, and celery are related to latex based products.I stopped eating these if raw, and have very little reaction if cooked at all. I am highly allergic to latex,spandex,Adhesives on bandages and tapes. Try using the DYE FREE benedryl , I'm allergic to their dye and would rash badly from it I hope this helps..Blessings
  • Bosj20
    Jan. 01, 2016
    Did you end up getting better? I have a very similar story. Not all of the same symptoms but I noticed problems with the shot told the nurse and she said you dose just probably needs to get lowered. The doctor didn't listen and my life is turned upside down! I'm recording a lot of this including me trying to get better. I have found a great place with people...
    RHMLucky777
    Read More
    Did you end up getting better? I have a very similar story. Not all of the same symptoms but I noticed problems with the shot told the nurse and she said you dose just probably needs to get lowered. The doctor didn't listen and my life is turned upside down! I'm recording a lot of this including me trying to get better. I have found a great place with people who listen and are at the start of getting me better. The doctor I went to didn't even under the immune system or anything to do with inflamation. I know if I was taken off or taken down I would have been fine. I will write more but wanted to reach out. I'm a normal person with a good head on my shoulders and the last one to complain. This has been a nightmare! I can't go anywhere and have been wearing mask everyday for just over a year. I wish the doctor just listen or at least ask questions or acted like he gave a shit! I will write lots more describing what happen but wanted to reach out!
  • Bosj20
    Jan. 01, 2016
    Did you end up getting better? I have a very similar story. Not all of the same symptoms but I noticed problems with the shot told the nurse and she said you dose just probably needs to get lowered. The doctor didn't listen and my life is turned upside down! I'm recording a lot of this including me trying to get better. I have found a great place with people...
    RHMLucky777
    Read More
    Did you end up getting better? I have a very similar story. Not all of the same symptoms but I noticed problems with the shot told the nurse and she said you dose just probably needs to get lowered. The doctor didn't listen and my life is turned upside down! I'm recording a lot of this including me trying to get better. I have found a great place with people who listen and are at the start of getting me better. The doctor I went to didn't even under the immune system or anything to do with inflamation. I know if I was taken off or taken down I would have been fine. I will write more but wanted to reach out. I'm a normal person with a good head on my shoulders and the last one to complain. This has been a nightmare! I can't go anywhere and have been wearing mask everyday for just over a year. I wish the doctor just listen or at least ask questions or acted like he gave a shit! I will write lots more describing what happen but wanted to reach out!
  • jeansnead
    Oct. 12, 2015
    I have been having a reaction every year during ragweed season for about the last 5 years. What happens is that my left arm and shoulder begin to ITCH very seriously, with a burning sensation as well. At times it itches so bad, I cannot control the urge to scratch. I end up with scratches, bruising, and little red welts on my arms. Once, I almost called the...
    RHMLucky777
    Read More
    I have been having a reaction every year during ragweed season for about the last 5 years. What happens is that my left arm and shoulder begin to ITCH very seriously, with a burning sensation as well. At times it itches so bad, I cannot control the urge to scratch. I end up with scratches, bruising, and little red welts on my arms. Once, I almost called the EMS, it was so bad. I tried topical ointments for itchy skin, and even Benadryl, but nothing has helped much. I am used to taking Chlor-Trimeton a lot for the remaining symptoms of my ragweed allergy - mostly just an itchy throat. I can only guess, but I think it's related to the shots I had. The only problem is I had the shots about 25 years ago. Is this some kind of delayed reaction to the shots?
  • cams424
    Oct. 06, 2015
    I've been taking allergy shots for about 6 months now,for cat-dog (combined) and for dust mites from a board certifies allergy and asthma specialist.My allergic symptoms never got better and now they that I've gone up in the strength of the shots for the 3rd time,they are much ,much worse.I got them yesterday and my throat and sinuses are so swollen today.My...
    RHMLucky777
    Read More
    I've been taking allergy shots for about 6 months now,for cat-dog (combined) and for dust mites from a board certifies allergy and asthma specialist.My allergic symptoms never got better and now they that I've gone up in the strength of the shots for the 3rd time,they are much ,much worse.I got them yesterday and my throat and sinuses are so swollen today.My arms were red and itchy with large bumps yesterday but the next few days I know I'll suffer much more with the swollen throat tongue and sinus.I can't take much more and if my throat closes any more I'll suffocate.I think I'm just about through with these f----- allergy shots.
  • Maggie Bayne
    Sep. 07, 2015
    Before beginning to take allergy shots this year, I searched for information about the negatives and side effects, but found little. I have completed my 16th week of shots, feeling worse along the way. All I knew before was: wait 30 minutes, have an epi-pen handy and all will go smoothly. I have had red welts, although comparatively few and none that lasted...
    RHMLucky777
    Read More
    Before beginning to take allergy shots this year, I searched for information about the negatives and side effects, but found little. I have completed my 16th week of shots, feeling worse along the way. All I knew before was: wait 30 minutes, have an epi-pen handy and all will go smoothly. I have had red welts, although comparatively few and none that lasted over 24 hours. But the overall "sick" feeling has made me wonder what the heck is going on. I've been told twice (by injecting nurse) that it must be a "virus" since it was only noticeable after 24 hours. I began to wonder if there could be some other factor. The shots are a wonderful solution - provided they work. However, it seems unlikely that one program of serum could possibly be individualized enough to help. Finding this website has truly opened my eyes about problems. For now, I plan to "hold off" resuming the shots. I took a similar set of shots many years ago with relatively few problems and found years of relief. This current scheduled series follows a different path resulting in questionable outcome. Thanks to other readers who contributed their stories!
    • LeslieCockhill
      Sep. 07, 2015
      You're not alone. It's so good to know that, isn't it? I had my 5th set of allergy shots over two weeks ago, supervised by a Fellow of the Royal College of Physicians and Surgeons. Unfortunately I was getting sick with the flu at the time. Although there are more details too numerous to go into here, the allergy shots were the last straw. I ended up in emergency...
      RHMLucky777
      Read More
      You're not alone. It's so good to know that, isn't it? I had my 5th set of allergy shots over two weeks ago, supervised by a Fellow of the Royal College of Physicians and Surgeons. Unfortunately I was getting sick with the flu at the time. Although there are more details too numerous to go into here, the allergy shots were the last straw. I ended up in emergency several times over the next few days, only to be discharged because "all your blood work is looking pretty good!" I went home and got sicker with a new round of waxing and waning symptoms. Finally there was a brief respite, I was admitted to a respiratory ward for two days where at the end,..."all your tests are looking pretty normal" were the words I was discharged with. 4 hours later, I was back in hospital with chest pain and a hypertensive crisis. Today, I feel very grateful that I live in Canada and have myself worked in the health care system. The next night in the ER (I was admitted overnight) I saw an amazing internal medicine specialist who diagnosed me by history in 10 minutes. It likely helped that he treated me 4 years ago for another illness and that we had been former colleagues many years prior. Being heard and getting a diagnosis that made sense to me was immediately calming. So, I'm now home recovering from a nasty "Post Viral Syndrome with autonomic instability and neurological manifestations" thingy. Of course we are anxious, anybody who is sick would be... until they know what is going on. In all this I learned.... we all need medical advocates, we need to continue to speak our true stories, over and over, until we find the right person. A medical professional (or naturopath, massage therapist, chiro, physio... Etcetera) who is curious, smart and up to date. And someone who can compassionately convey to us that they "have our backs."
  • godschosen11970
    Aug. 24, 2015
    I have an allergy to two different types of house dust mites. Because nothing works for me my allergist suggested I take shots. I started the shots in June. I did fine then all of a sudden I started breaking out in hives in my injection arm. So they lowered my dose and changed arms. The next week the injection arm got worse. I received one more shot then I...
    RHMLucky777
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    I have an allergy to two different types of house dust mites. Because nothing works for me my allergist suggested I take shots. I started the shots in June. I did fine then all of a sudden I started breaking out in hives in my injection arm. So they lowered my dose and changed arms. The next week the injection arm got worse. I received one more shot then I started breaking out in hives on other parts of my body. My allergist told me that the shots wouldn't cause that type of reaction. Even though they stopped the shots last week in still breaking out in hives. I'm miserable even though I take three different types of antihistamines. I hope it stops eventually!!!
    • ames
      Dec. 10, 2015
      it is definitely the shots, ive researched and tested it by going on and off them since 2001. If it started strong, id get rashes .... by the year or two in, alot of wheezing and itching with flu symptoms 1 - 3 days after any of the larger , stronger shots with neck pain and flu symptoms. And chills ! Now 2 out of the 3 doctors did lower dosages, but eventually...
      RHMLucky777
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      it is definitely the shots, ive researched and tested it by going on and off them since 2001. If it started strong, id get rashes .... by the year or two in, alot of wheezing and itching with flu symptoms 1 - 3 days after any of the larger , stronger shots with neck pain and flu symptoms. And chills ! Now 2 out of the 3 doctors did lower dosages, but eventually it would get strong again and id have the flu symptoms. it has taken me 3 years this time to get to almost maintenance and the chills and flu symptoms are back, every week unless new vial the first shot . I think its just the response of your immunity trying to metabolize whats being shoved into you and doctors should not be lying to patients and telling them it isnt normal, or doesnt happen. Im still better off becuz without shots, id be coughing nonstop and b on alot of albuteral
  • mezz0sopradiva
    Aug. 22, 2015
    I have been getting allergy shots for over a year now. I have had my dosages cut back and the step up rate changed twice already. I need to take an antihistamine before my shots, and then I ice my shot sites during the wait period afterwards. I always stay at least 30 minutes after my shots to be sure I am not having a reaction. I am allergic to so many things...
    RHMLucky777
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    I have been getting allergy shots for over a year now. I have had my dosages cut back and the step up rate changed twice already. I need to take an antihistamine before my shots, and then I ice my shot sites during the wait period afterwards. I always stay at least 30 minutes after my shots to be sure I am not having a reaction. I am allergic to so many things that I have not considered stopping my shots, but I do make sure to ask them if my dosages needs to be changed if I notice the slightest problem with my shots. Even an elevated heart rate is reported. I also stand and wait while the nurses update my chart whenever I do report a problem. The allergy center I use has excellent immunologists so I am confident that I will get better eventually, if I remain compliant with my treatment schedule. I would fire my immunologist in a heartbeat if I felt he was not giving me the best care RATHER than stopping my treatment.
  • serene.night.1
    Aug. 01, 2015
    I am allergic to antihistmines and have developed allergies in middle age. I also have trouble taking steroids as for some reason they upset my stomach and cause gerd. So I was desperate and did the allergy shots, because absolutely nothing works. I am allergic to dust, and pet dander, dispite, oddly having cats and dogs all my life. After my first shot I developed...
    RHMLucky777
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    I am allergic to antihistmines and have developed allergies in middle age. I also have trouble taking steroids as for some reason they upset my stomach and cause gerd. So I was desperate and did the allergy shots, because absolutely nothing works. I am allergic to dust, and pet dander, dispite, oddly having cats and dogs all my life. After my first shot I developed a visible rash on my back. I called the allergists office and reported it, and the doctor said the shots shouldn't cause that to happen. They wanted me to go back for more, but I said no way. If I get this reaction after one small dose, no way I'm going to increase dose, especially when the doctor did not believe it could be the shot. I wasted a lot of money on shots, but I know if I have a bad reaction and a doctor doesn't take it seriously I stop seeing him.
  • MrsDonald71711
    May. 30, 2015

    I have a crazy story to so don't feel bad sweetie. I went for my allergy testing a couple weeks ago and broke out in a rash. They said they never saw that before. I went back 2 weeks later which was last Thursday to start my shots. The Doc said 2 shots every other day. Which is 30 per month and he said up to 2 years(wow, that is a lot of shots).anyways, the...

    RHMLucky777

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    I have a crazy story to so don't feel bad sweetie. I went for my allergy testing a couple weeks ago and broke out in a rash. They said they never saw that before. I went back 2 weeks later which was last Thursday to start my shots. The Doc said 2 shots every other day. Which is 30 per month and he said up to 2 years(wow, that is a lot of shots).anyways, the nurse administered the first shot in my right arm and insisted I do the 2nd shot. Well we never made it that far, immediately I broke out in a rash everywhere and they gave mr benadryl and said come back next week to try again with a smaller amount. Well, since the first shot I kerp getting thus rash and that Monday I started getting sick, like the flu. I went to doc said I will not be doing these shots and he said I had a reaction, we would build my immunity and try in two weeks. Is he crazy or something? They gave me a shit of steroids and said I would feel better the next day (Which by the way was a lie) I am worse off now, with a fever, bad cough and congestion in my chest and cant breathe. I feel its getting worse and not better and likr I have the full blown flu. What is going on. I am scared snd confused and this fool wants me to still take the shots si here it is a week and a half after one .04 cc shot U am so very sick I feel like U am gonna die. Someone please help me.

    • sunflower44
      Feb. 14, 2016
      I had these same types of systems. Got my first allgery shot last week one in the left arm and one in the right. Starting having reactions immediately after having them doctor said no more shots. Does these reactions go away? It has when a week now doctors did test said I had no health issue heart and lungs are fine so I wonder if it just messes up my immunity....
      RHMLucky777
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      I had these same types of systems. Got my first allgery shot last week one in the left arm and one in the right. Starting having reactions immediately after having them doctor said no more shots. Does these reactions go away? It has when a week now doctors did test said I had no health issue heart and lungs are fine so I wonder if it just messes up my immunity. They said I was having panic attacks when I went to the hospital. Not doing anymore shots and hope these problems go away
    • tamah1969
      Mar. 15, 2016
      I took my 7 yr old last Wednesday to get her 1st 2 shots and she has been sick with the same symptoms. Fever for 5 days straight now. Vomiting and diarrhea and severe headaches. Today we had to take her to the ER for the 2nd time. She now has ear infections in both ears. No more shots for her!!!!! I am not going to put her through this anymore!!!!!!! She was...
      RHMLucky777
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      I took my 7 yr old last Wednesday to get her 1st 2 shots and she has been sick with the same symptoms. Fever for 5 days straight now. Vomiting and diarrhea and severe headaches. Today we had to take her to the ER for the 2nd time. She now has ear infections in both ears. No more shots for her!!!!! I am not going to put her through this anymore!!!!!!! She was fine before the shots and a day later she is feeling bad. She is suppose to get 2 shots twice a week for 2 years! I don't think so!!
  • ilovesun
    May. 26, 2015
    After 3 weeks on allergy shots, I developed Shingles. Everyone was baffled because I'm "too young" to get shingles (39). A week later, I woke up with arthritis pain in my right index finger. A week after that, I have carpel tunnel like nerve pain in my left hand that developed overnight, followed a day or two later with shingle-like skin pain on my left elbow....
    RHMLucky777
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    After 3 weeks on allergy shots, I developed Shingles. Everyone was baffled because I'm "too young" to get shingles (39). A week later, I woke up with arthritis pain in my right index finger. A week after that, I have carpel tunnel like nerve pain in my left hand that developed overnight, followed a day or two later with shingle-like skin pain on my left elbow. I've also been battling extreme fatigue off and on since the shingles. I have been taking shots for 5 weeks at this point and I've stopped. I have a doctor appointment today to test my autoimmune markers. My Allergist says the shots do not cause any of these symptoms but, I'm sorry, these are too much of a coincidence when the only difference in my life, is the allergy shots. My allergies are very annoying but not enough to risk further injuring myself with potential autoimmune issues. I have a co-worker who took allergy shots with her daughter and they both developed autoimmune diseases a couple of years after starting the shots. One has RA and the other, MS. Unless your allergies are debilitating, I would stop the shots until you get a diagnosis for the symptoms. It's not worth destroying your body because the doctor says it's not possible. Anything is possible and even if things are "rare" they have to happen to someone. My only request for my doctor today is to humor me and then to respect my decisions. It's my health and my body.
    • serene.night.1
      Aug. 01, 2015
      That's terrible. I'm sorry that happened, but I totally understand what it feels like to have a doctor say something is impossible. My doctor always tells me "It should not happen" when I get an allergic reaction to his medication. It is so frustrating, because it is happening. You are not alone.
    • mbod1234
      Oct. 07, 2015
      I went for allergy shots 5 th week I had severe arm pain the following day I mean I couldn't move it lift it or sleep. I went back week 6 told of the reaction their response was "maybe we hit a nerve, sometimes that happens! I agree to get the shot next day my opposite arm had radiating pain from shoulder to finger tips! I mean severe pain! Took 4 days to go...
      RHMLucky777
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      I went for allergy shots 5 th week I had severe arm pain the following day I mean I couldn't move it lift it or sleep. I went back week 6 told of the reaction their response was "maybe we hit a nerve, sometimes that happens! I agree to get the shot next day my opposite arm had radiating pain from shoulder to finger tips! I mean severe pain! Took 4 days to go away only to be followed by wrist pain and extreme hand swelling. I had to purchase a wrist guard to keep it immobile to have less pain. Next the pads under my toes began to ache it hurt to walk. I quit shots but still am feeling the negative effects. Shoulder pain neck pain arm pain hand wrist pain the swelling is incredible. The allergy shots were the only thing I did differently this summer. I'm hoping the effects go away. I was a healthy middle aged woman now I feel like an old lady. I should mention the allergists office said oh sounds like you had a systemic allergic reaction and wanted me to continue shots with a lower dose! NO WAY I said. Proceed with caution if you're considering shots!! I wish I never did it.
    • stefana126
      Nov. 11, 2015
      I am going through the same issues. I had allergy shots for 25 weeks and as the weeks went by I felt my body getting weaker. It's 3 months since I've stopped the shots. I have an auto-immune deficiency, joint pain through my body (especially my knees and shoulder) I am so tired and my Dr says, it's not from the shots. I wasn't like this 6 months ago before...
      RHMLucky777
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      I am going through the same issues. I had allergy shots for 25 weeks and as the weeks went by I felt my body getting weaker. It's 3 months since I've stopped the shots. I have an auto-immune deficiency, joint pain through my body (especially my knees and shoulder) I am so tired and my Dr says, it's not from the shots. I wasn't like this 6 months ago before I started taking them. I was tested for arthritis, and 30 other issues they all came back negative. The only thing that was positive was my IGA's (immune) My iron, vitamin B and white blood cell was high. I managed to fix those but not my immune. My body couldn't handle the shots so my white blood cells attached my joints. All I can say, If anyone feels any body pain get off of the shots. 25 weeks of shots has caused me nothing but pain. I never got any allergy relief. I'm only hoping this pain will subside in the future
  • Suzettes11
    May. 02, 2015
    I've been getting allergy shots for a few months now... I've been ok until recently , this past week I've started to break out and I feel run down and sick I'm thinking because the increase of the dose I dont think I'm going to continue ... I'm just hoping that I feel better after stopping the shots...any suggestions?
  • Dolfina
    Mar. 29, 2015
    I was googling if anyone was ever ill from allergy shots and imagine my surprise to discover other peoples' experiences. I have had more than one board certified super duper as considered by the medical profession allergists and it is always wise to check out their backgrounds; however, once you begin receiving shots, you will interact with your MDeities' P.A....
    RHMLucky777
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    I was googling if anyone was ever ill from allergy shots and imagine my surprise to discover other peoples' experiences. I have had more than one board certified super duper as considered by the medical profession allergists and it is always wise to check out their backgrounds; however, once you begin receiving shots, you will interact with your MDeities' P.A. or nurse. I am fortunate that my nurse said to wait in the room for at least a half hour and apply ice packs to the shot sites. One time when the area reddened more than usual, she insisted I wait longer as she said if it became hard I would be sent to the hospital--no fooling around with reactions to shots. It's less than a year and my allergies seemed much less until my last two shots---I developed a sore throat, headache and fever with chills. I thought I had suddenly come down with the flu in spite of having a flu shot. My chest became congested complete with cough and body aches for 4 days and I couldn't do my normal busy life at all. I am going to start taking a tablespoon of pure virgin edible coconut oil as a friend of mine was unsuccessful with her years of shots and is now allergy free. She also gave up dairy which I haven't done yet but I will not continue with anything that can cause such a severe reaction--my normal temp is 96.5 (yup, I'm alive) and it was 99.5 for 4 days. Today it's 97.5 which is definitely almost well but still ache all over---nothing should do that to you!
  • vicki countryman
    Feb. 16, 2015
    I was tested for allergies in 2012 and found out that i am allergic to just about everything that grows out side in the spring, summer and fall. Any thing from almost every grass that grows, many trees, pollen, rag weed, the skin and urine from animals with fur. I Was happy to finally know the things that caused allergens to react the way they were. So I started...
    RHMLucky777
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    I was tested for allergies in 2012 and found out that i am allergic to just about everything that grows out side in the spring, summer and fall. Any thing from almost every grass that grows, many trees, pollen, rag weed, the skin and urine from animals with fur. I Was happy to finally know the things that caused allergens to react the way they were. So I started Shots and had to stop. I wish the best to all of you. Things are hard but there is hope. Hang In there.♥
    • Kathi  MacNaughton
      Health Pro
      Feb. 17, 2015
      Sorry the shots didn't work out for you, Vicki! I empathize with being allergic to "everything". I'm in the same boat. Allergy shots can work great for some people, but I had two different rounds back in the 80s or 90s and they didn't do much for me either. So... your best bet is just to work really hard at eliminating as many of your allergens as you can from...
      RHMLucky777
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      Sorry the shots didn't work out for you, Vicki! I empathize with being allergic to "everything". I'm in the same boat. Allergy shots can work great for some people, but I had two different rounds back in the 80s or 90s and they didn't do much for me either. So... your best bet is just to work really hard at eliminating as many of your allergens as you can from your environment. When you're allergic to so many things, it's not realistic to think you can totally avoid your triggers, but any actions you do take will have some kind of positive effect. So, just keep working at it! And get a good antihistamine that will reduce your symptoms as much as possible. To your health, Kathi
  • giantjoneses
    Jan. 15, 2015
    I had a similar experience. My arms swelled the size of a soft ball my first shot and they didn't believe me. I called and they said it was normal to have swelling. The next day I got so dizzy I couldn't even drive myself home From my child's dr appointment. They said it wasn't related. But my arm swelled worse the next day and subsided at the same time the...
    RHMLucky777
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    I had a similar experience. My arms swelled the size of a soft ball my first shot and they didn't believe me. I called and they said it was normal to have swelling. The next day I got so dizzy I couldn't even drive myself home From my child's dr appointment. They said it wasn't related. But my arm swelled worse the next day and subsided at the same time the dizziness went away. So after my next shot my arm swelled up to the size of almost 3 dollar bills wrapping around my arm!!!!! Very hard to the touch and HOT to the touch. I took pictures this time for record. I also got crazy nauseated Nd had diarrhea. I didn't even call, I just went straight to the office the next morning. They were closed :/ luckily there was office staff and I showed them and asked them to call somebody. Their eyes were as big as saucers. They made me an appointment to come in the next day. The Dr was in shock. After he saw the pictures he believed everything I was saying as well as the nurses. Yet he didn't think that me being nauseated was related. Whatever Doc. They lowered my dose the next time. My arm still blew up but much better. The next time he started me on steroids. 2 the day of the shots. Two the day after. It worked!!! Last week I did the same. Had the shots on Tuesday. By Wednesday the golf ball sized swelling was gone. Thursday? My arm flared back up but gone by Friday. I had my shots two days ago. My arm swelled up. Today? My arm is better but still swollen. It's usually gone by the late morning, and I took my steroids. I'll be interested to see the swelling tomorrow. And interested to see what happens next week as the strength is increased. Also, since starting shots I have had this cough. I think it may be allergy asthma caused by the shots. But my Dr is pretty good. He is constantly thinking on what we can do to make it better. He now believes me as wells as the nurses. But I do get teased as their problem child. Lastly, my arms itch ALL week and over the holiday for 2 weeks when the office was closed! My arms start itching 30 seconds after my shots, which they didn't believe me at first.
    • Kathi  MacNaughton
      Health Pro
      Jan. 16, 2015
      Hello giantjoneses... So sorry to hear of your troubles & that your healthcare professionals didn't take you serioiusly! Good for you, though, in continuing to advocate for yourself. Great idea to take pictures and to visit the office in person. As health care consumers, we MUST be pro-active. Professionals these days are often busy and pressured to process...
      RHMLucky777
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      Hello giantjoneses... So sorry to hear of your troubles & that your healthcare professionals didn't take you serioiusly! Good for you, though, in continuing to advocate for yourself. Great idea to take pictures and to visit the office in person. As health care consumers, we MUST be pro-active. Professionals these days are often busy and pressured to process as many patients as possible. It's our job to look out for ourselves and insist that they slow down long enough to really listen to our reports and to give us the answers we need. Keep advocating, Kathi
    • gdgirl
      Feb. 19, 2016
      I got the shots for 3 years. My arm swelled up like a golf ball most times. My family thought it was creepy. My allergies did not go away. After 3 years I was wheezing trying to get up my stairs and going to urgent care at all times. Kept telling my dr I thought I was having reactions to the shots or something more. It was finally when I noticed facial pain...
      RHMLucky777
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      I got the shots for 3 years. My arm swelled up like a golf ball most times. My family thought it was creepy. My allergies did not go away. After 3 years I was wheezing trying to get up my stairs and going to urgent care at all times. Kept telling my dr I thought I was having reactions to the shots or something more. It was finally when I noticed facial pain that hurt really bad while jumping on our new trampoline. I told the nurse and she ordered a CT scan right away. Turns out I had a cyst pushing on my eyeball between the eye and nose. They said it was build up from my sinus surgery. I had to go to the big city at 4 am for surgery. It was very scary. Every time I had a flare up I was put on Prednisone( about 3-4x a year). I gained a lot of weight from it and almost anything made me cry. I told my dr again that I felt it was food related. He got ticked off and said " if you think its a food related problem go see dr so and so in a irritated voice. So I went to the asthma/food allergy dr and within 10 mins he said " you have aspirin sensitivity and nasal polyps. Those shots wont help you. Get off of them now. I did and I feel better except when my nasal polyps flare up. I have had way less flare ups without the shots and way less prednisone!
  • Double_D
    Dec. 08, 2014
    My son has suffer from eczema for 15 yrs, his entire life. He played football, baseball he was just an active kid. I thought by his eczema spreading a little more it was more then just eczema. So I scheduled him an appt to see the Allergy and Asthma specialist. They did the allergy test that's required, the result were he was allergic to the environment. So...
    RHMLucky777
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    My son has suffer from eczema for 15 yrs, his entire life. He played football, baseball he was just an active kid. I thought by his eczema spreading a little more it was more then just eczema. So I scheduled him an appt to see the Allergy and Asthma specialist. They did the allergy test that's required, the result were he was allergic to the environment. So they did blood test to see if was it something internally, which was negative. A week later he started the allergy shots. In the beginning, he was doing well, but a month later he started getting these hives and puffy eyes he started getting sensitive to being outside and non stop itching, which he never had problems before the shots. I talk to allergy doctor she claim it was food that broke him out. My son is not allergic to food! So she prescribed him some steroids for his allgeric reaction. At this point,I was going to discontinue his shots because he was going through things he haven't experience before. But the allergy doctor convinced me not to. Meanwhile, My son went through six mouths of allergy shots before I said enough was enough. It seems like the allergy shots were causing more harm then good. It's been two months since his last shot and he continues to have those same reactions. How can I detox that medicine out of my son system?
    • Kathi  MacNaughton
      Health Pro
      Dec. 12, 2014
      I would encourage you to get a second opinion from a different board-certified allergist or immunologist, preferably one who specializes in working with children. While these severe reactions to allergy shots are not usual, clearly there are a number of people who do experience these unusual side effects. As a mom, you have both the right and the responsibility...
      RHMLucky777
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      I would encourage you to get a second opinion from a different board-certified allergist or immunologist, preferably one who specializes in working with children. While these severe reactions to allergy shots are not usual, clearly there are a number of people who do experience these unusual side effects. As a mom, you have both the right and the responsibility to advocate for your son. I'm sure there is an answer, if you can connect with the right healthcare professional. Take care, Kathi
  • Mystique
    Oct. 21, 2014

    I had a throat tightness reaction about 10 mins after the first shot (cat dander, grass, etc) then in the week following a finger on the hand (same arm as the shot) swelled up. The swelling went down after a couple of weeks then another couple of fingers swelled up. Then I had pain and what was later diagnosed as tenosynovitis in the same hand, pain and carpal...

    RHMLucky777

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    I had a throat tightness reaction about 10 mins after the first shot (cat dander, grass, etc) then in the week following a finger on the hand (same arm as the shot) swelled up. The swelling went down after a couple of weeks then another couple of fingers swelled up. Then I had pain and what was later diagnosed as tenosynovitis in the same hand, pain and carpal tunnel. Kept going witb the shots, doctors assured me it was not related. It progressed, both hands and a foot were involved, it had only been 6-7 weeks of the shots at thay stage. Doctor ran a test for autoimmune causes and it came back mildly positive with vit d deficiency and mild anemia. Had a few more shots, my symptoms got worse. The blood tests were repeated and the autoimmune markers had risen. I stopped the shots. I was told that this was coincidental and it was not the shots that were causing this. Perhaps it was already underlying they said. The allergist didnt want to hear about it and I refused to pay the bill for the vials. Surprisingly once I told them of my reaction they also insisted that it doesnt cause autoimmunity. ..but never sent me another bill...hmmm. so now my autoimmune type thing had gone up amd down its been 5 years and im not able to work with severe pain in my hands shoulders feet, headaches, neck pain, vomiting, etc. I have been given a diagnosis then they reviewed and named it something else. If you are thinking of doing immunotherapy because allergies are annoying just DON'T, it is not worth the risk. The doctors will not help you then, you just get passed from specialist to specialist taking serious drug after drug (can cause cancer) and not to mention the social and financial implications. DO NOT MESS WITH YOUR IMMUNE SYSTEM. Do not trust doctors  completely....its your body not theirs and if the textbook says its rare then it DOES happen to some people, want to be one of them? Please don't do the shots. 

  • miagi21
    Sep. 06, 2014

    My situation is somewhat similar.  My allergies in the area were unbearable in the spring time, to the point of where I would have to miss work for 2-3 days.  Tired of dealing with it, I started allergy shots on October 2013.  They worked great because spring of 2014 I had no seasonal allergies.  

     

    However, towards the summer, I started...

    RHMLucky777

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    My situation is somewhat similar.  My allergies in the area were unbearable in the spring time, to the point of where I would have to miss work for 2-3 days.  Tired of dealing with it, I started allergy shots on October 2013.  They worked great because spring of 2014 I had no seasonal allergies.  

     

    However, towards the summer, I started to get muscle knots near the injection site (but no hive).  I told the nurses, and they kept thinking they went too deep with the injection, and tried different angles every week.  After about 5 weeks of this, I ended up having an anaphylacticreaction.  My ear drums felt swollen, felt like burping, skin felt hot, and I got hives across my body.  I went to urgent care and they gave me three injections - steroid, benedryl and epi.  


    After that reaction, I stopped taking the shots all together, but I ended up having chronic conditions afterwards.  Every morning I get ear pressure very similar to that I experienced during the anaphylaxsis.  I also get these strange red bumps around my body that hurt to the touch.  I went to my allergist and family doctor and was put on a week's worth of steriods, but it was mostly for the ear pressure.  They both still think the red bumps are bug bites, but at this point I disagree completely (haven't really been outside at all).  

     

    After the steriod dose was finished, all the symptoms came back and I'm still currently living with it.  The symptoms are not life debilitating, but I don't know if they will get worse.

    While I don't have answers, hopefully someone out there and read the truth of what can happen to your after allergy shots.  The only "negative" side effect that the doctors will tell you is localized reactions at the injection site, or possible anaphylaxsis.  They WILL NOT tell you that there is a possibility of chronic symptoms that may last a life time.

     

     

  • Anonymous
    allergy
    May. 14, 2014

    I am currently on allergy shots given by a professional. I have not had any reactions at all. These shots are very sucessful if administered by a professional. Your biggest mistake in my opinon is not going to an allergist for these. 

     

  • Anonymous
    CAROLYN DOUTHITT
    May. 03, 2014

    I HAVE BEEN TAKING ALLERGY SHOTS FOR MONTHS AND THE ONLY COMPLINT I HAD WAS ITCHING IN MY ARMPITS. I WENT IN ON A MONDAY TO GET MY TWO SHOTS AND THE NEXT MORNING I WOKE UP AND KNEW SOMETHING WAS WRONG. I HAD A HUGE LUMP AT INJECTION SITE WHICH WAS RED AND WARM TO TOUCH. I FELT LIKE I HAD THE FLU BUT I DIDNT. I HAD A HEADACHE AND MY BLOOD PRESSURE WAS EXTREMELY...

    RHMLucky777

    Read More

    I HAVE BEEN TAKING ALLERGY SHOTS FOR MONTHS AND THE ONLY COMPLINT I HAD WAS ITCHING IN MY ARMPITS. I WENT IN ON A MONDAY TO GET MY TWO SHOTS AND THE NEXT MORNING I WOKE UP AND KNEW SOMETHING WAS WRONG. I HAD A HUGE LUMP AT INJECTION SITE WHICH WAS RED AND WARM TO TOUCH. I FELT LIKE I HAD THE FLU BUT I DIDNT. I HAD A HEADACHE AND MY BLOOD PRESSURE WAS EXTREMELY HIGH. I WENT TO MY GP AFTER A COUPLE OF DAYS OF HIGH BLOOD PRESSURE AND GENERALLY NOT FEELING WELL. THEY DID ALL KINDS OF LABS AND CARDIAC TESTING,NOTHING SHOWED UP. I KNEW THIS HAD SOMETHING TO DO WITH THESE ALLERGY SHOTS.I WAS PUT ON BLOOD PRESSURE MEDS AND I STOPPED THE ALLERGY SHOTS. AFTER A FEW WEEKS I STARTED TO FEEL NORMAL AGAIN, MY BLOOD PRESSURE WENT DOWN AND I HAD TO COME OFF BLOOD PRESSURE MEDS AS IT WAS MAKING MY PRESSURE TO LOW. MY PULMONOLOGIST INSISTED I START SHOTS AGAIN. THEY STARTED ME AT A LOWER DOSE BUT I AM KEEPING A JOURNAL. AFTER I GET THE SHOTS THE NEXT DAY I HAVE A HEADACHE, MY HEART IS POUNDING,ITCHING AT INJECTION SITE AND FLU LIKE SYMPTOMS, SPIKE IN BLOOD PRESSURE. I KNOW IT IS THE ALLERGY SHOTS AND I AM GOING TO STOP THEM.I HAVE SEVERAL AUTOIMMUNE DISEASES AND THIS MAY BE A CONTRIBUTING FACTOR. IM GLAD ITS NOT JUST ME BECAUSE THEY WERE MAKING ME FEEL LIKE IM CRAZY. THANKS FOR LISTENING.

  • Anonymous
    olya_ch
    May. 02, 2014

    I have a reaction too, after the shot (yellow dose) I get a huge swollen red bump on my arm. In couple of hours I feel dizzy. The worse happens in a couple of days when I start being sick (flu like symptoms for almost a week including fever). It happened to me already 5 times this year (and it is only May). Right now I am considering quitting shots as it is...

    RHMLucky777

    Read More

    I have a reaction too, after the shot (yellow dose) I get a huge swollen red bump on my arm. In couple of hours I feel dizzy. The worse happens in a couple of days when I start being sick (flu like symptoms for almost a week including fever). It happened to me already 5 times this year (and it is only May). Right now I am considering quitting shots as it is impossible to go down with a flu every third week. I have few ideas on this problem. When the shot is administered my immune system starts to fight it off. It is so prone and willing to kill the allergen that it forgets to kill anything else why I do end up with flu.  

  • Anonymous
    chicagomama
    Apr. 08, 2014

    I  have  had  two shots,  and I  stopped immediately  after the second. I  went to the ER  after the second shot when i  felt  my throat closing.. it never closed  up all the way and I was monitored them released.  it has been almost two months since my last shot and my throat  randomly gets tight,...

    RHMLucky777

    Read More

    I  have  had  two shots,  and I  stopped immediately  after the second. I  went to the ER  after the second shot when i  felt  my throat closing.. it never closed  up all the way and I was monitored them released.  it has been almost two months since my last shot and my throat  randomly gets tight,  mouth  gets dry  and I can't swallow,  and I also feel like my heart is racing ( randomly ) I've been to the doctor 3  times,  and have been told  each time it isn't possible  for the shot to  still be in my system,  or possible  for it to cause these  problems.  this can't be true. I  haven't felt " normal"  in two months and I'm losing my mind. 

    • Double_D
      Dec. 09, 2014
      HI, MY SON HAD BEEN WITHOUT HIS ALLERGY SHOTS FOR TWO MONTHS NOW. I WANT TO KNOW ARE YOU STILL FEELING THE SIDE EFFECTS AFTER 5 MONTHS NOW?
  • Anonymous
    BC
    Mar. 21, 2014

    I'm about to stop my shots too.  I've only been on for about 10 months and everything was fine until the last shot a week ago.   I can deal with the softball sized, hard, beyond itchy, red welt, but the last shot gave me such pain in my upper back, just on the surface of my skin, I had to take my bra off at work!!  I have had shingles before...

    RHMLucky777

    Read More

    I'm about to stop my shots too.  I've only been on for about 10 months and everything was fine until the last shot a week ago.   I can deal with the softball sized, hard, beyond itchy, red welt, but the last shot gave me such pain in my upper back, just on the surface of my skin, I had to take my bra off at work!!  I have had shingles before and that's exactly what it felt like.  Whenever I go in and tell them (and show pictures) of my reactions, the nurse always says "but you're on such a low dose".  I give up.

    • beatlesgrl23
      Jul. 14, 2014
      Did you ever figure out what happened?I am having the same experience. A rash broke out the day after my shot a month ago. My dr's have told me it was an allergic reaction to something the first time and gave me prednisone. That made it worse. I went back and was diagnosed with shingles and was given an antibiotic and famvir. It went away. I went back for my...
      RHMLucky777
      Read More
      Did you ever figure out what happened?I am having the same experience. A rash broke out the day after my shot a month ago. My dr's have told me it was an allergic reaction to something the first time and gave me prednisone. That made it worse. I went back and was diagnosed with shingles and was given an antibiotic and famvir. It went away. I went back for my first allergy injection since this diagnose this last Thursday. The same rash came out Friday. This time I went to my ENT dr. He says it's just a coincidence and I have a skin infection. I swear the shots have something to do with this. I just wondered if you found out anything.
  • tentonrock
    Mar. 20, 2014

    I did allergy shots for 3 years. ten years later I still deal with the increased sensitities that they caused. I am much better than I was but I am still more allergic than before the shots. If you are having bad effects from the shots you shouyld stop them. I had to deal with chronic fatigue and rashes amoung other things. It did improve over time but I have...

    RHMLucky777

    Read More

    I did allergy shots for 3 years. ten years later I still deal with the increased sensitities that they caused. I am much better than I was but I am still more allergic than before the shots. If you are having bad effects from the shots you shouyld stop them. I had to deal with chronic fatigue and rashes amoung other things. It did improve over time but I have never returned to normal.

  • frymommy
    Mar. 11, 2014

    Okay, so I realize this post is very old but I want to share my story/fears. 

    I have been getting allergy shots for 3-4 years and my life just keeps getting worse. My interstitial cystitis is racing out of control, I seem to be more allergic to everything, and I have problems with dizzy/lightheadedness. I totally blame the shots and I am quitting right...

    RHMLucky777

    Read More

    Okay, so I realize this post is very old but I want to share my story/fears. 

    I have been getting allergy shots for 3-4 years and my life just keeps getting worse. My interstitial cystitis is racing out of control, I seem to be more allergic to everything, and I have problems with dizzy/lightheadedness. I totally blame the shots and I am quitting right now. I am worried the damage is already done but I have to cling to the hope that once I'm done with this toxic junk I will slowly gain my life back. I think the shots either cause autoimmune problems or make them much much worse. 

    • bayou
      Feb. 10, 2015
      I am on my 2 vial of allergy shots. The first 4-5 months I had decreased sinus rhinitis symptoms and no issues. Once we started the 2nd vial, everything has gone down hill. I have itching under my skin, all over my body, frequent urination, bright red rash on arms, armpits, torso, breasts and thighs. Swelling at shot sight. Pins and needle feeling on arms and...
      RHMLucky777
      Read More
      I am on my 2 vial of allergy shots. The first 4-5 months I had decreased sinus rhinitis symptoms and no issues. Once we started the 2nd vial, everything has gone down hill. I have itching under my skin, all over my body, frequent urination, bright red rash on arms, armpits, torso, breasts and thighs. Swelling at shot sight. Pins and needle feeling on arms and torso. I take allegra and benedryl. I am meeting with the head allergist and his nurse practitioner in 2 days. I have been told I may have to stop treatment. I think the allergy shots have stirred up childhood allergies. I just wanted to help my sinus issues. Will let ya'll know what we decide after my appt.
  • Anonymous
    Caring Consumer
    Jan. 07, 2014

    I have been on shots for almost four years now and have not experienced this but I believe you.  I am no doctor but think they should have diluted your dose and been telling to you take antihisitmines each time you go in.  Maybe they should be giving you the K medicine you referred to instead.  My Dr. continues with the same size dose or lowers...

    RHMLucky777

    Read More

    I have been on shots for almost four years now and have not experienced this but I believe you.  I am no doctor but think they should have diluted your dose and been telling to you take antihisitmines each time you go in.  Maybe they should be giving you the K medicine you referred to instead.  My Dr. continues with the same size dose or lowers if you have any reaction.  Once your body is used to the dose, they can up it.  Again.  I am no doctor but this is what I know happens in the office I go to.  Your doctor should be reported to the board.

  • cg
    cg
    Dec. 26, 2012

    SO I JUST WANTED TO SAY I AM 6 WEEKS INTO MY ALLERGY SHOTS AND SINCE ABOUT THE 4TH SHOT (TWO A WEEK) I HAVE HAD FLU LIKE SYMPTOMS, HEADACHE, WEIGHT GAIN, NECK ACHE AND TIGH CHEST AFTER ALL OF MY SHOTS EVEN WITH AN ANTIHISTAMINE IN MY SYSTEM I HAVE HAD SOFTBALL SIZE WELTS ON BOTH ARMS. i CALLED THE ALLERGIST AND ASKED THE NURSE IF HEADACHE, NECK AND SHOULD PAIN...

    RHMLucky777

    Read More

    SO I JUST WANTED TO SAY I AM 6 WEEKS INTO MY ALLERGY SHOTS AND SINCE ABOUT THE 4TH SHOT (TWO A WEEK) I HAVE HAD FLU LIKE SYMPTOMS, HEADACHE, WEIGHT GAIN, NECK ACHE AND TIGH CHEST AFTER ALL OF MY SHOTS EVEN WITH AN ANTIHISTAMINE IN MY SYSTEM I HAVE HAD SOFTBALL SIZE WELTS ON BOTH ARMS. i CALLED THE ALLERGIST AND ASKED THE NURSE IF HEADACHE, NECK AND SHOULD PAIN WERE A SIDE EFFECT AND THEY SAID NO. SO I WENT IN FOR MY 6TH ROUND AND NOW I CAN HARDLY HOLD MY EYES OPEN I NEARLY FALL ASLEEP DRIVING THE FATIGUE IS SO SEVERE I HAVE HAD TO MISS WORK NOT TO MENTION ALL THE HEADACHE MEDS I HAVE BEEN TAKING BUT THEY JUST KEEP ASSURING ME I AM COMING DOWN WITH A VIRUS OR I GUESS I AM MAKING IT UP. MY HUSBAND ALSO CLAIMS THAT I AM VERY IRRITABLE MUCH MORE WITH EVERY SHOT SO I HAVE DECIDED I WOULD RATHER CONTINUE INHALERS, ALLEGRA, AND NASAL SPRAY THAN BE SUBJECT TO THIS PAIN AND SUFFERING. HAS ANYONE ELSE HAD THESE ISSUES OR ANYTHING SIMILAR?

     

    • Anonymous
      fight
      Apr. 29, 2013

      ANY doctor that laughs at medical symptoms is a doctor to NEVER see again.

    • Anonymous
      Lanya
      Apr. 10, 2014

      Yes! I have had a similar reaction. I had my first allergy shot last week, and my neck, shoulders, and upper back got very achy and stiff for two days, as if I had gotten the flu in just those muscles. No problems at the actual injection site. When I went back the next week, I told the doctor and nurses about my symptoms and they said they never heard of anyone...

      RHMLucky777

      Read More

      Yes! I have had a similar reaction. I had my first allergy shot last week, and my neck, shoulders, and upper back got very achy and stiff for two days, as if I had gotten the flu in just those muscles. No problems at the actual injection site. When I went back the next week, I told the doctor and nurses about my symptoms and they said they never heard of anyone having that kind of reaction. They gave me another shot this week but cut the dosage in half, and I still had the stiff neck and aching muscles, but at about half the strength. I also almost passed out about an hour after the shot. The rest of the day, my tendons and ligaments felt very loose and an old ligament injury in my back even started to bother me again. I am afraid of the way my body is reacting, and I think I am going to discontinue the shots.

  • Anonymous
    feel your pain
    May. 09, 2012

    I only read the last few posts but please, please go to a different doctor! I did this when I was in high school and the shots help with outdoor things such as grass and trees and ragweed. Food allergies can not be treated. You have to avoid the foods. I am now allergic to oranges and for the firts 14 years of my life I wasn't. My allergy to oranges sounds...

    RHMLucky777

    Read More

    I only read the last few posts but please, please go to a different doctor! I did this when I was in high school and the shots help with outdoor things such as grass and trees and ragweed. Food allergies can not be treated. You have to avoid the foods. I am now allergic to oranges and for the firts 14 years of my life I wasn't. My allergy to oranges sounds exactly like what your describing when you eat/touch certian foods. This will kill you if you do not find out what is causing it. I got to the point that taking 2 benydrl did not help me. This was a while they were trying to figure out what I was allergic to. Anyway, Please go see a specialist.

     

  • Alley
    Mar. 08, 2012

    Hello,

     

    I was searching the internet because of fears I have about my allergy immunizations. I had allergy shots for 4 years which completely relieved what felt like 98% of my allergy symptoms; however, upon having a baby, they came back full force and much worse. That doctor sounds completely incapable of administering shots. I would report him to whomever...

    RHMLucky777

    Read More

    Hello,

     

    I was searching the internet because of fears I have about my allergy immunizations. I had allergy shots for 4 years which completely relieved what felt like 98% of my allergy symptoms; however, upon having a baby, they came back full force and much worse. That doctor sounds completely incapable of administering shots. I would report him to whomever you possibly can. No doctor should ever laugh at a patient EVEN if they were a hypocondriac. Also, no doctor should EVER ignore symptoms. I have had to had an epi shot twice at the allergists for less severe symptoms than you posed and the majority of your systems are "typical" server allergy symptoms (welts/hives, swelling, throught tightness). I would immediately look into taking zyrtec, claritin, or allergra. Since you know you are allergic and these are now over-the-counter, these can help with the allergy symptoms over a longer period than benadryl. Most people I know take claritin because it does not make them drowsy like zyrtec. Hopefully you have gone to an allergist since your post, but if not, I hope you do so immediately. Having no medical background, I would guess that maybe your immune system is just having a meltdown so it is now acting more severely to your typical daily allergys. Or perhaps there is something more servere going on with your immune system. Either way, please seek treatment :)

  • Anonymous
    Rebecca
    Dec. 14, 2011

    Have you seen an allergist?  The GP is likely not going to be able to figure this out. See an allergist at least for your new symptoms and they can test to see all what you  might be allergic to now. They may need to refer you to another specialist if symptoms persist but your GP sounds like an idiot and a liability and I would recommend finding a...

    RHMLucky777

    Read More

    Have you seen an allergist?  The GP is likely not going to be able to figure this out. See an allergist at least for your new symptoms and they can test to see all what you  might be allergic to now. They may need to refer you to another specialist if symptoms persist but your GP sounds like an idiot and a liability and I would recommend finding a new one even if it means having to travel a little further.

     

  • Hive Madness
    Apr. 24, 2010

    I totally understand everything that you're going through. I too am allergic to everything environmental, trees, grass, weeds, pollen, as well as cats, dogs, and other small animals, AND wheat, cow dairy, soy, peanuts, and tree nuts. My food allergies actually weren't diagnosed until May 2009, and it's important to note that I had never had an allergic reaction...

    RHMLucky777

    Read More

    I totally understand everything that you're going through. I too am allergic to everything environmental, trees, grass, weeds, pollen, as well as cats, dogs, and other small animals, AND wheat, cow dairy, soy, peanuts, and tree nuts. My food allergies actually weren't diagnosed until May 2009, and it's important to note that I had never had an allergic reaction to any of the foods that I am allergic to.  I would eat a peanut butter and jelly sandwich for lunch every day of my childhood and never had any reaction. So I began allergy shots at the beginning of June 2009 after having been miserable from environmental allergies for most of my life.  Everything seemed to be ok with my treatment, no side effects or anything, UNTIL the middle of January 2010.  Mind you, because I had never had a reaction to any of my food allergies, EVER, I continued to eat dairy, soy, and wheat, though not as often, (I decided to avoid nuts completely because of their very high association with anaphylactic shock).  Yet in mid-January, when I began my second to highest dosage of antigens, my hands began to itch severly, though they showed no signs of redness or swelling.  About two weeks later, on my third shot of the vial, and after having started to break out in hives on a daily basis (mostly relegated to my hands and feet), I experienced anaphyactic shock later that evening.  I went to see a GP at our student health the next day (I moved to IL in September 09 to start graduate school) and she was terrified.  She ordered me to stop the shots immediately and then referred to a local allergist for further consultation. Over the course of the next several weeks, the hives began to spread and grew much much larger.  I had blood testing done and tested positive in the ANA screen choice test twice, though after seeing a rheumatologist, they didn't find any further abnormalities.  My allergist back home, who is very well respected, swears that the shots haven't done anything to me and wants me to continue to taking them.  Yet the hives still haven't gone away, and have now spread to most of my body, as well as too my face! But here's the real kicker.  I decided to cut wheat, soy and dairy out of my diet, just to see if the hives would go away, and although they haven't completely disappeared, they have subsided substantially.  I actually think that I am now reacting to foods that I was never allergic to before, like corn and chocolate, and possibly shell-fish, and I really want to believe that the allergy shots are doing this to me.  The antigens are made to strenthen the immune system, and I believe that my immune system has become ultra sensitive because of the shots and now reacts by causing hives whenever it senses that something is trying to attack it, in a MAJOR way. I'm so upset because I don't feel like any of the doctors that I've seen have really given this a thought; it's almost like I'm a case in point of what can go wrong with this sort of therapy and they're afraid to admit that.  Now I'm afraid that my entire life is going to have to change because I have to be uber-careful with what I eat, and could possibly develop further allergies to things I've never had problems with before.  I don't want to hear some sorry excuse from another doctor, saying "Oh, you can develop allergies at any point in life..." to which I refute, why now? Why at 25 when I've never had a problem ever before? Why all of these reaction to everything at once?  And why when I'm on the shots? On Jan. 27th I ate a piece of bread and was fine. On Jan. 28th, I was experiencing anaphylaxis.  And the hives are always within a day or two of my injection.  I'm think I may stop the shots for a month or two and see if anything improves.  I know that there is answer out there for all of us suffering from these strange reactions, there has to be!

    • From NYC
      May. 01, 2010

      OMG that's scary. i just got the result of my tests back today. the doc told me that i have a severe allergy to dog dander and minor allergies to dust, egg white, peanut, chicken. he recommends me to start taking the weekly shot that a few of you mentioned. the conversation went like "you need take the shot" and i said "ok so do i need to take it every year...

      RHMLucky777

      Read More

      OMG that's scary. i just got the result of my tests back today. the doc told me that i have a severe allergy to dog dander and minor allergies to dust, egg white, peanut, chicken. he recommends me to start taking the weekly shot that a few of you mentioned. the conversation went like "you need take the shot" and i said "ok so do i need to take it every year now?" he said "actaully every week for a couple years from now" and i was "..." then like 3 secs after i said "what?" i wasn't sure if he was dead serious so i checked online '"shot every week" "allergy"' and here i am... he was serious. so yeah after reading all these comments i sure won't take the weekly shot... i believe it will do nothing! this is so messed up! i hate you allergy!

    • Glute
      May. 13, 2014
      I tested positive for multiple food allergies before I started taking allergy shots. I've started reacting to my allergy shots and agree that the immune system starts trying to attack everything. I've done a lot of reading and believe all this is caused by intestinal permiabity,"leaky gut". It's the only good explanation I've found. Food leaks into the blood...
      RHMLucky777
      Read More
      I tested positive for multiple food allergies before I started taking allergy shots. I've started reacting to my allergy shots and agree that the immune system starts trying to attack everything. I've done a lot of reading and believe all this is caused by intestinal permiabity,"leaky gut". It's the only good explanation I've found. Food leaks into the blood supply and the immune system responds by creating antibodies and eventually causes autoimmune disease. The clean eating "non processed" diet is hard but worth it.
    • pumpkee
      Sep. 13, 2014

      You are NOT alone.....I did not have food sensitivities until I start getting allergy shots. Skin tests cannot show sensitives to wheat, dairy, etc. My body started reacted about 4-6 mo after getting shots to certain high histamine and gluten/fermented foods like never before!! 

  • Anonymous
    B2
    Jul. 22, 2009

    I feel so bad for you, and I think your doctor is HIGHLY irresponsible. Allergy treatment is nothing to take lightly; especially when you are treating a highly allergic individual. I think you need to get treatment from a BOARD CERTIFIED Allergist.

     

    I am having similar problems, except they believe me, since I have had two anaphylactic reactions while...

    RHMLucky777

    Read More

    I feel so bad for you, and I think your doctor is HIGHLY irresponsible. Allergy treatment is nothing to take lightly; especially when you are treating a highly allergic individual. I think you need to get treatment from a BOARD CERTIFIED Allergist.

     

    I am having similar problems, except they believe me, since I have had two anaphylactic reactions while receiving shots. I have numerous severe allergies including several food allergies.  I am forced to drive a 5 hour round trip every week for 2 shots because there is nobody in my area who is willing to give me shots due to my high risk. I don't even get a shot from all of my vials each week because I have 4 vials and a limit of 2 shots per visit. To make matters worse, they shoved me WAY back on my venom and will only give me 1/2 a dose. I was told by 2 board certified allergists that if I should get stung by a bee, I will likely not survive. I work in paleontology and am in the field most of the summer. It all has been very discouraging.

     

    My whole ordeal began last December when my asthma just went bonkers over the holidays. I was really sick, and we were 1,600 miles from home! My GP sent me to the University Hospital for testing. I had an anaphylactic reaction during testing--they think it was from the bee. The skin test for bee is only 1/1000 of a bee sting.

     

    Anyway, the symptoms you have described are nearly identical to mine. It takes a whole day to get my shots, and I am in bed for most of the following day with flu symptoms and SEVERE joint pain. I lose two days every week to allergy treatment. Turns out, my joint problems from the past 5 years have been caused by allergies--who knew???

     

    I can totally relate to your situation. I am also concerned for your safety; it imperative that you avoid any medical personnel who does not listen to you or take you seriously. It could be fatal.

     

    I would really like to talk with you more--just for the mutual support and validation. Not sure how to pull that off.

    • Anonymous
      Mom & son aller...
      Nov. 20, 2009

      I am so happy to have found this blog.  My son & I have allergey shots weekly, & I just can't get to the maintenance point.  After my shot last night, I had my typical local reaction at the injection sites.  Unfortunately, whichever arm the ragweed is injected in, I now have swelling that spreads over the next 24 to 48 hrs a span...

      RHMLucky777

      Read More

      I am so happy to have found this blog.  My son & I have allergey shots weekly, & I just can't get to the maintenance point.  After my shot last night, I had my typical local reaction at the injection sites.  Unfortunately, whichever arm the ragweed is injected in, I now have swelling that spreads over the next 24 to 48 hrs a span of 6 to 8 inches.  The swelling almost always stops at my elbow.  I also have diarrea, stiff joints, scratchy throat, & feel like I'm coming down with the flu.  By next week when I go in for my next shot, I'll just start feeling better.  The thing is, I don't know what's worse.  This or my typical allergies which includes all of the above & canker sores & lesions throughout my sinus cavities!  As well as severe sinus infections every fall (& sometimes spring).  I've had 2 surgeries on my sinuses which have helped.  I'm only 35 & feel like I've had such a lifetime of illness.  Of our 2 children, our oldest is already showing signs of being just like me & I just can't bear to see him suffer as I have.  Do I stick out the allergy shots with him as he doesn't react as badly as me (but he does have local reactions & headaches every week); or do we stop shots for safety & see what other options exist over time?  We both take generic of zyrtec daily too...

  • Anonymous
    jsee1218
    Jul. 15, 2009

    I have been getting allergy shots for over a year now (I'm allergic to every grass, tree, and weed in my area) and I've encountered some strange reactions that we seem to share.  I've had joint pain (sometimes very severe), fatigue, and itchiness in my armpits and my groin area.  My latest experience happened just this week.  On Monday I got...

    RHMLucky777

    Read More

    I have been getting allergy shots for over a year now (I'm allergic to every grass, tree, and weed in my area) and I've encountered some strange reactions that we seem to share.  I've had joint pain (sometimes very severe), fatigue, and itchiness in my armpits and my groin area.  My latest experience happened just this week.  On Monday I got my allergy shots as per usual, and by Tuesday afternoon my arms were covered in red, itchy bumps that spread quickly.  I went in to see my allergist today and he said there was no way it was related to my allergy shots.  He said it could be anything from chicken pox (I've already had this, and been vaccinated against it) to poison ivy to bug bites.  He prescribed me a steroid cream, but I just didn't feel right so I made an appointment with my PCP (primary care physician).  My PCP said that it was definitely an allergic reaction to something and after I told him about the other incidents he suggested that perhaps it is serum sickness.  He prescribed me a very powerful antihistimine (which is working wonderfully, thank God!) and suggested that if things weren't better by tomorrow, I should come by and get a shot of Cortisone.  I find it very disturbing that my PCP is more concerned about my allergic reaction than my Allergist is!!!  He was also concerned about the method of treatment.  Instead of slathering cream all over my arms and thus becoming a sticky mess, he made sure to give me pills.  I will be having a long, long discussion with my allergist next Monday (my 6 month checkup appointment) about serum sickness and my reactions to these shots.  If he doesn't give me satisfactory answers, I'll be taking my business elsewhere! 

    Remember everyone, you are not forced to see just one person.  If you're not happy with your treatment, find someone you are happy with.  It may cost more, but your health is so much more important than money.  Since allergy shots can become extremely dangerous, you want someone who will take you seriously and who is concerned about your symptoms, not someone who dismisses them as bug bites!

    • Anonymous
      Itchy in az
      Feb. 27, 2012
      I too have had very similar symptoms including flu like symptoms, whole body itching, chills, weight loss, sweaty palms and random body and joint pain for the last several months. This seems to have started after initation of allergy shots about 3 months ago. I had a complete physical with complete blood analysis with my general practioner. This was at my request...
      RHMLucky777
      Read More
      I too have had very similar symptoms including flu like symptoms, whole body itching, chills, weight loss, sweaty palms and random body and joint pain for the last several months. This seems to have started after initation of allergy shots about 3 months ago. I had a complete physical with complete blood analysis with my general practioner. This was at my request after all my crazy symptoms. After looking back at the last three months, and looking at my symptoms and days of allergy injections, I am pretty confident that the allergy shots are related to my symptoms. I will discuss this with my GP and allergist and for now discontinue the shots. If you have been told these symptoms can't occur from allergy shots, your physician may be wrong.
  • Anonymous
    Anonymous
    Jun. 14, 2009

    Sounds like the shots triggered an autoimmune response. Many Lupus patients get rashes when they are in the sun for even a minute. Maybe you should see a rheumatologist. 

  • Anonymous
    Michelle McDowell
    Jan. 24, 2009

    I had shots as a kid, but my asthma and allergies got out of control again last year when we got a cat.  I never was allergic to cats that I know of.  My mom and sister always were, but not me.  Now, I break out in hives every time I brush against a cat.  Today, I got my allergy shots (I get two; one for cats, one for pretty much everything...

    RHMLucky777

    Read More

    I had shots as a kid, but my asthma and allergies got out of control again last year when we got a cat.  I never was allergic to cats that I know of.  My mom and sister always were, but not me.  Now, I break out in hives every time I brush against a cat.  Today, I got my allergy shots (I get two; one for cats, one for pretty much everything else you can think of) and my left arm is swollen, red, hot and hard to the touch.  It's itchy and uncomfortable, but none of these things are nearly as annoying as my TONGUE!  My tongue is too big for my mouth!  This is not the first time I've had this allergic reaction, but it's the first time I've had it to the shots.  I don't know if they gave me the wrong dose, or if playing volleyball tonight (strenuous exercise can supposedly bring about a reaction) that made these things happen, but I hope I never experience this again.  I sound like Sylvester the Putty Tat!!  I'm hoping this was just a reaction to playing volleyball after the shots, but I'm definitely telling my doctor about this tomorrow morning so they document it and make sure I get a smaller dose next time.  I feel for you if you have gone through this more than once.  The tongue thing is super annoying!!  Good luck to you.

    • nat30
      Feb. 07, 2009

      I was the above poster Nat3 but had to create a new account. I had CFS for many many years and have now overcome that and written a book how to recover from fatigue.

       

      The deal with my allergy shots....I found...is that my immune system reaction is exagerated so that's why I got so sick. I ended up starting and stopping twice and my immunologist said to...

      RHMLucky777

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      I was the above poster Nat3 but had to create a new account. I had CFS for many many years and have now overcome that and written a book how to recover from fatigue.

       

      The deal with my allergy shots....I found...is that my immune system reaction is exagerated so that's why I got so sick. I ended up starting and stopping twice and my immunologist said to wait 2 months to start again.

       

      I contacted a CFS expert (also immunologist) to get her advice to pass on to my allergist. I'd seen her quoted on line but it was an old quote. She told me this (thought I would share this with you Dr. T so you can also use the info)


      "I have about 20% of my CFS patients on allergy immunotherapy, but have found I have to start very very slowly 1:1,000,000 starting vial, after first testing to be certain they do not react to the diluent (which has some trace phenol). I advance by 0.05cc weekly as tolerated (about 10 shots per vial) = so it takes a full year to get to full strength. If a person can get to the clinic twice a week for shots it can go a bit faster, but when I get to the 1:10,000 to 1:1000 range I often find I have to repeat doses for several weeks, waiting for the down regulating cells to kick in.

      Your allergist is also an immunologist, so he or she will get this. The T reg cells and the cytotoxic T cells which are involved in down regulating the IgE producing B cells are not as functional as they are in normal controls. They do work, but at half speed.

       

      I wish I could point to a terrific placebo control study and say "see here! " My group has published studies on poor cytotoxic T cell function, cytokine Th2 shift, etc, but we have not published the allergy experience. So I can only speak from my experience. Several thousand patients worth of experience, though!

       

      I hope you can work through the allergy wall (that's a 1:10,000 dilution to you!) In the end it is worth it."

       

      So I should be starting up again sometime soon and I'll let you know how it goes. I've literally tried everything in the book and my diet is pristine (no chemicals or processed foods) and I don't have ANY bad habits. I've been tested for food allergies and I also did an elimination diet last year for 6 months, no wheat, dairy, corn, or peanuts. If I had to sit in the dark in a yoga position and eat gravel for months I would do it!!!!!! I've tried everything to get well and I really want this to work because it's my last shot...pun intended!!!!

       

       

       

  • Anonymous
    Anonymous
    Jan. 16, 2009

    It sounds as though you may a other problems in addition to allergies.  Sun sensitivity and rosy cheeks are symptoms of systemic lupus erythematosus (SLE or "lupus") which is an autoimmune disease in which your body is allergic to itself.  In addition to being evaluated by a board certified allergist, you also need to be evaluated by a board certified...

    RHMLucky777

    Read More

    It sounds as though you may a other problems in addition to allergies.  Sun sensitivity and rosy cheeks are symptoms of systemic lupus erythematosus (SLE or "lupus") which is an autoimmune disease in which your body is allergic to itself.  In addition to being evaluated by a board certified allergist, you also need to be evaluated by a board certified rheumatologist.  There are a number of tests that can be done to diagnose lupus, but even if your labwork all comes back negative, you may still have the disease. 

     

    There are a whole host of autoimmune diseases, so if you do not have lupus, you may have a related illness.

     

    I have had a lifelong struggle with severe allergies and other symptoms.  My new allergist recently referred me to a rheumatologist who began treating me for lupus.  I have had lupus symptoms since age 11, but my labwork always came back negative, so the doctors would just blow off my case.  Now it seems that many people with lupus have negative labwork.  So find a doctor who will treat your symptoms, not your test results.

     

    Lupus can manifest with a number of symptoms that come and go because the disease tends to have flareups then go into remission for awhile.  Do some online searching at www.webmd.com and other reputable websites, including the one for the Lupus Foundation.

     

    Good luck!  I hope you get some answers and some relief!

  • Anonymous
    greeneyes
    Jan. 06, 2009

    I took my 4th shot and the next day I had a weird reaction, I felt as if I took the thing I was the worst at being allergic which was a cat and I felt as if I rubbed a cat all over my face my eyes were swollen shut and itching, the back of my throat was itching bad and I sneezed and sneezed, and my face swelled up and I could not get my jewelry on.  Then...

    RHMLucky777

    Read More

    I took my 4th shot and the next day I had a weird reaction, I felt as if I took the thing I was the worst at being allergic which was a cat and I felt as if I rubbed a cat all over my face my eyes were swollen shut and itching, the back of my throat was itching bad and I sneezed and sneezed, and my face swelled up and I could not get my jewelry on.  Then I got a really bad sinus infection and had to go to the doctor, that was 2 weeks ago and I am still sort of miserable. So I opt not to take the shots for awhile.

  • Anonymous
    a concerned parent
    Nov. 05, 2008
    You are not alone. My daughter had similar complaints after pollen allergy shots. She took them for about 2 years and always ended up with a hard, hot solid bump at the site of the injection for several days after the shots. She also complained of joint pain, swelling, and tiredness. As she was an athlete, it took a while before she could definitively say it...
    RHMLucky777
    Read More
    You are not alone. My daughter had similar complaints after pollen allergy shots. She took them for about 2 years and always ended up with a hard, hot solid bump at the site of the injection for several days after the shots. She also complained of joint pain, swelling, and tiredness. As she was an athlete, it took a while before she could definitively say it was the shots and not her activities, and she finally stopped the shots. My husband sometimes wonders if the shots sensitized her to more things or if they helped stop them from getting worse. She has since tested very allergic to all fresh fruit, raw vegetables, and tree nuts. You may still be feeling sick because you are also allergic to related allergens hidden in your food that you don't realize are there (look at all the food groups associated with birch, ragweed, grass, mugwort). Our daughter has always complained about a lot of different foods, but I thought it was just being a picky eater. It depends on how the food is cooked as to when the allergens in the food get destroyed(e.g., celery is bad no matter how cooked, onions vary). I now realize the symptoms are not just swelling, itchy throat, trouble breathing, flushed skin,coughing, but could also be stomach upsets, headache, diarrhea, vomiting, and general queasiness. It is important to get a good allergist. Our daughter is away at college now in a small town with no board certified allergists so she sincerely empathizes with you. Luckiy, her allergist at home responds to e-mails and she schedules appointments with him when she is home during breaks. We are still discovering new things every day. Hope you find the source of your problem. Good Luck.
  • massue
    Jun. 11, 2008

    I really feel for you, reacting like you are to these allergy shots.  You know, this is a very specialized field.  I would not want to rely on a GP, especially with the reactions you have had, and his attitude with blowing off the reactions.  I drive 2 1/2 hours to get to my allergist, but he works WITH my GP and for the allergy shots, I drive...

    RHMLucky777

    Read More

    I really feel for you, reacting like you are to these allergy shots.  You know, this is a very specialized field.  I would not want to rely on a GP, especially with the reactions you have had, and his attitude with blowing off the reactions.  I drive 2 1/2 hours to get to my allergist, but he works WITH my GP and for the allergy shots, I drive 25 miles, one way.  The only other place here locally to get the shots, is with a PA at our local clinic.  I don't like him so figure I would rather drive 50 miles twice a week than deal with him.  

     

    I had Kenalog injection in May 2007.  Within two days I was running fever, chilling, aching, visual problems, and totally out of it, and took a month to get over it.  Researched and learned others had same reaction.  It's something they use as a preservative in the Kenalog solution.  Which makes me very cautious about anything injectable now.   I think it set me up for the response I had in September to Plum I had eaten that was undoubtably treated with some sort of preservative or insecticide.  I have been tested at Allergist office but chemical testing would need to be done in Denver.  I haven't pushed for that.  Singulair, Zyrtec, Nasonex is what they put me on.

    After seven months, found the Zyrtec is why I was sleeping 10 to 12 hours every night, but I also was fuzzy and sleepy all day and lacked motivation and focus.  GP took me off Zyrtec and put me back on Allegra, which I must take in a.m. as I can't sleep if I take it at night.  It's all a matter of how you feel when you take whatever they think you need.  If the reaction is worse than the allergy symptoms then why bother?  

     

    My allergies symptoms were much worse when I recently went to MO/IA where pollens I react to are much worse.  I started taking Benadryl at night.  I feel like a walking medicine cabinet but I am feeling much better than I have for years and years!  I find when I am outside very much, the allergy symptoms are worse.  I'm still doing the allergy shots and will not stop until I either get relief or get very sick from them.  Good luck with whatever you decide to do!

    • lj mathis
      Jan. 08, 2013

      Please call 1-888-671-2873. They have an exclusive aloe product is suppose to cure immune problems.  I have just started it. expensive but worth a try. God bless.

    • SwampQueen
      Nov. 01, 2013

      I also live in a small town with few resources.  I can't tollerate allergy shots and have been feeling so bad that I can't do my normal activities.  The dose of allergens is so low they said it wouldn't be the allergens.  So they gave me a shot of the preservative with no allergens in it and my symptoms all came back within 3 hours.  I am...

      RHMLucky777

      Read More

      I also live in a small town with few resources.  I can't tollerate allergy shots and have been feeling so bad that I can't do my normal activities.  The dose of allergens is so low they said it wouldn't be the allergens.  So they gave me a shot of the preservative with no allergens in it and my symptoms all came back within 3 hours.  I am allergic to what they called the "preservative" that stops the serum from becoming contaminated.  I would try to find someone who specializes in allergy and immunology and have your records sent to them.  Also, why aren't you taking other antihistimines besides Benadryl?  Allegra, zyrtec, claritin, etc. are non-drowsy antihistimines. 

  • Anonymous
    Anonymous
    Jun. 10, 2008

    It sounds to me like you have severe allergic reactions and your doctor is not qualified to be administering the shots.  The throat tightness and tongue swelling are very serious side effects that need to be monitored and could be life-threatening.  I would consider traveling to another city to see another doctor.

    • ohsoallergic
      Jun. 10, 2008

      Thank you for your comment, I have been considering doing just that, but gas has sure gotten expensive.  I've been taking benadryl when the swelling gets bad enough to bother me, but I haven't had to use the Epi-pen yet.  I have NO desire to start getting the allergy shots again, but an allergist would probably be the way to go instead of another...

      RHMLucky777

      Read More

      Thank you for your comment, I have been considering doing just that, but gas has sure gotten expensive.  I've been taking benadryl when the swelling gets bad enough to bother me, but I haven't had to use the Epi-pen yet.  I have NO desire to start getting the allergy shots again, but an allergist would probably be the way to go instead of another GP, right?  Wonder if I can do that without a referral from my GP...

    • Anonymous
      Anonymous
      Jun. 10, 2008

      Usually you need to get a referral to see an allergist.  I have been getting allergy shots for 5 years now.  After I started getting the shots I did notice that  I had some joint pain and fatigue right after getting the shots and I let the nurse know about it, but she said that it was not in any way related to the shots.  Now five years...

      RHMLucky777

      Read More

      Usually you need to get a referral to see an allergist.  I have been getting allergy shots for 5 years now.  After I started getting the shots I did notice that  I had some joint pain and fatigue right after getting the shots and I let the nurse know about it, but she said that it was not in any way related to the shots.  Now five years later, I decided to do a search on the internet to see if there was any relation between the allergy shots and joint pain and sure enough it has been reported and is actually an allergic reaction.  Needless to say that I am now considering stopping the shots altogether. 

       

      The red welts and itching are normal in the beginning, however to a certain extent.  I am super allergic to everything under the sun, but the largest welt that I ever got on my arm was probably only 2-3 inches in diameter.  I never experienced the throat tightness or swelling in my mouth.  Like I said those are severe reactions and need to be treated by a qualified physician.  Through the allergist, we are supposed to sit in the lobby for at least 15 minutes after receiving the shot so that the nurse can check for reactions.  For me, most of my reactions didn't show up until after I had left the office so I would have to call the next day to report them.  They have specific instructions on their message that if they are severe reactions, you need to go to the ER immediately, which is why I am surprised that your GP doesn't seem to offer appropriate treatment.

       

      I hope that you get the help that you need. After 5 years of shots I no longer need to take pills everyday, but after yesterdays shots I don't think that I can handle the joint pain anymore...

    • Audrey
      Apr. 18, 2012
      Wow that is super weird you mentioned joint pain! I've been getting my shots for a few months now and every time after the shot I experience joint pains in my hands and wrists. I really feel like these shots are making it worse for me now especially with it being pollon season. I had 2 reactions after my shots where they gave me some liquid antihistamine and...
      RHMLucky777
      Read More
      Wow that is super weird you mentioned joint pain! I've been getting my shots for a few months now and every time after the shot I experience joint pains in my hands and wrists. I really feel like these shots are making it worse for me now especially with it being pollon season. I had 2 reactions after my shots where they gave me some liquid antihistamine and felt better, but now just after the last shot I had a huge hard lump showed up under my skin, it's also red and very itchy. I really hope when I talk to the allergist tomorrow he will have a cure. I can't even eat any food without some reaction, it's like as soon as I started these shots my allergies have overreacted.