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Friday, August, 22, 2008

Strange reactions to allergy shots... So frustrated I just want to scream...

by  ohsoallergic
Thursday, May 29, 2008
ohsoallergic

ohsoallergic

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Anybody heard of such oddball reactions to allergy shots?  I need to know what I can do now.  Starting allergy shots was the worst decision of my life.  I've been off the allergy shots for 8 months (after 10 miserable months of shots), and I'm still having the problems that started ...

  1. Untitled Comment
    Anonymous
    Tuesday, June 10, 2008 at 02:24 PM

    It sounds to me like you have severe allergic reactions and your doctor is not qualified to be administering the shots.  The throat tightness and tongue swelling are very serious side effects that need to be monitored and could be life-threatening.  I would consider traveling to another city to see another doctor.


    reply
    re: Untitled Comment
    ohsoallergic
    Tuesday, June 10, 2008 at 03:06 PM

    Thank you for your comment, I have been considering doing just that, but gas has sure gotten expensive.  I've been taking benadryl when the swelling gets bad enough to bother me, but I haven't had to use the Epi-pen yet.  I have NO desire to start getting the allergy shots again, but an allergist would probably be the way to go instead of another GP, right?  Wonder if I can do that without a referral from my GP...


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    re: re: Untitled Comment
    Anonymous
    Tuesday, June 10, 2008 at 04:03 PM

    Usually you need to get a referral to see an allergist.  I have been getting allergy shots for 5 years now.  After I started getting the shots I did notice that  I had some joint pain and fatigue right after getting the shots and I let the nurse know about it, but she said that it was not in any way related to the shots.  Now five years later, I decided to do a search on the internet to see if there was any relation between the allergy shots and joint pain and sure enough it has been reported and is actually an allergic reaction.  Needless to say that I am now considering stopping the shots altogether. 

     

    The red welts and itching are normal in the beginning, however to a certain extent.  I am super allergic to everything under the sun, but the largest welt that I ever got on my arm was probably only 2-3 inches in diameter.  I never experienced the throat tightness or swelling in my mouth.  Like I said those are severe reactions and need to be treated by a qualified physician.  Through the allergist, we are supposed to sit in the lobby for at least 15 minutes after receiving the shot so that the nurse can check for reactions.  For me, most of my reactions didn't show up until after I had left the office so I would have to call the next day to report them.  They have specific instructions on their message that if they are severe reactions, you need to go to the ER immediately, which is why I am surprised that your GP doesn't seem to offer appropriate treatment.

     

    I hope that you get the help that you need. After 5 years of shots I no longer need to take pills everyday, but after yesterdays shots I don't think that I can handle the joint pain anymore...


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  2. Empathy
    massue
    Wednesday, June 11, 2008 at 10:22 AM

    I really feel for you, reacting like you are to these allergy shots.  You know, this is a very specialized field.  I would not want to rely on a GP, especially with the reactions you have had, and his attitude with blowing off the reactions.  I drive 2 1/2 hours to get to my allergist, but he works WITH my GP and for the allergy shots, I drive 25 miles, one way.  The only other place here locally to get the shots, is with a PA at our local clinic.  I don't like him so figure I would rather drive 50 miles twice a week than deal with him.  

     

    I had Kenalog injection in May 2007.  Within two days I was running fever, chilling, aching, visual problems, and totally out of it, and took a month to get over it.  Researched and learned others had same reaction.  It's something they use as a preservative in the Kenalog solution.  Which makes me very cautious about anything injectable now.   I think it set me up for the response I had in September to Plum I had eaten that was undoubtably treated with some sort of preservative or insecticide.  I have been tested at Allergist office but chemical testing would need to be done in Denver.  I haven't pushed for that.  Singulair, Zyrtec, Nasonex is what they put me on.

    After seven months, found the Zyrtec is why I was sleeping 10 to 12 hours every night, but I also was fuzzy and sleepy all day and lacked motivation and focus.  GP took me off Zyrtec and put me back on Allegra, which I must take in a.m. as I can't sleep if I take it at night.  It's all a matter of how you feel when you take whatever they think you need.  If the reaction is worse than the allergy symptoms then why bother?  

     

    My allergies symptoms were much worse when I recently went to MO/IA where pollens I react to are much worse.  I started taking Benadryl at night.  I feel like a walking medicine cabinet but I am feeling much better than I have for years and years!  I find when I am outside very much, the allergy symptoms are worse.  I'm still doing the allergy shots and will not stop until I either get relief or get very sick from them.  Good luck with whatever you decide to do!


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  3. Attention: It's not a mental issue
    James Thompson, MD
    Friday, June 13, 2008 at 12:33 PM

     

    Hi Ohsoallergic,

     

    I am a board certified allergist out of Chicago and nearby suburbs. It is very unfortunate your experience with allergy shots was so complicated. I think it is very important to have allergy shots supervised by a board certified allergist. Allergy shots may be life-threatening when a severe reaction occurs. It is therefore important to get allergy care from skilled providers.

     

    Accredited allergy training focuses on the importance of a detailed history and physical exam. The history and physical exam findings allow the allergist to properly interpret allergy skin test (or blood test) results.

     

    In addition allergists are trained on:

     

    -How to initiate allergy shots (important decisions must be made on dose and concentration as well as what allergens to use)

     

    -How to increase the doses (with consideration of quantity to be given each time in addition to interval of time in between shots)

    -How to monitor progress and make adjustments if there are problems

     

    -How to prevent the progression or recurrence of local or systemic reactions

     

    -How to approach high risk situations that may arise (for example: addressing new drugs ordered by another doctor that may increase the risk of a severe allergic reaction; considering other medical problems that may impact allergy shots; advising what to do if pregnancy occurs)

     

    -How to decide whether allergy shots should be stopped when of the risk of injury out-weighs the potential benefit.

     

    A minimum of two years is required to qualify for board certification in allergy and immunology. A board certification exam must be passed in order to achieve certified status.

     

    I advise you to get a full evaluation from a board certified allergist. You can locate one from the American College of Allergy, Asthma and Immunology website. It will be worth the money spent on gas. Good health and avoidance of potentially fatal reactions are invaluable.

     

    Many allergists will allow infrequent visits to their office by sending extracts to the primary doctor's office (with explicit instructions on how to proceed with shots). The allergist supervises any adjustments that may be required as allergy shots are given. We send hundreds of vials to doctors in Illinois and surrounding states that are more conveniently located (their offices are closer to the patient) for giving weekly to monthly allergy shots.

     

    If you are in an HMO or similar insurance entity you will require a referral. Otherwise you may be able to go to a specialist without a referral. Call your insurance provider to clarify whether a referral is needed.

     

    You may also have oral allergy syndrome and chronic urticaria and angioedema which are discussed on this web site (click on the hyperlinks).

     

    You really need to see a qualified allergy specialist ASAP.

     

    I hope it all works out for you,

     

    J. Thompson, MD


    reply
    re: Attention: It's not a mental issue
    ohsoallergic
    Friday, June 13, 2008 at 08:09 PM

    Thank you so much, Dr. Thompson, for your advice.  It's very nice to be taken seriously by a doctor about this.  I will check out those links right away and hopefully find an allergist within a few hours driving distance.  Maybe he can help me out with my rosy cheek problem too... I've had that for years (very embarrassing) and always wondered if it was allergy related, but my GP didn't have a clue.  I just really appreciate you taking the time to help me out.

     

    And thank you to everyone else who has posted their stories here.  I'm sorry you've had bad experiences, but it does help to hear that I'm not alone.


    reply

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