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I continue to be overwhelmed by the inhumanity of this disease as well the lack of truth. About every commercial on the air puts out a public perception that the worst and most painful part is that your loved one won't know you...the truth is that doesn't even hold a candle to grief or pain felt when no one, the hospital or the facilities have an alternative for the last stages of the this disease. We actually treat our pets and wild life better then people. My mother in the last 12 weeks has spent 6 weeks in two different hospitals with complete med changes, none of which addressed the aggression/violence. what the meds have done have put her in a comatose with drooling condition 12 hours a day, and when she does come out of her med stooper she is distraught and angry. I don't have AD today, but I will say that I know her and if she didn't have AD she would still want to hurt herself or someone else just for the pain and lack of dignity tacking place. Its Criminal, wake up America, the worst information needs to get out now, and when she finally gets relief from this hell I promise I will fight until I die for some solutions for dignity, and real solutions.
Every word you say is true. There is so far to go in order to get a handle on this disease so that those who suffer from it can have their lives continue with dignity. My heart is with you. I know you are trying everything. Those "happy" commercials have to break your heart.
We went through a great deal with my dad's dementia, but we didn't have to go through what you are doing now. I hope you can find some way to a little serenity.
Carol
I spent 6 hours with my Mom and her sisters as well as one of my sisters yesterday at the assisted living place she's been for 5 years. The blessing of day was while my mothers medication had her almost comotose (due to her behavior issues) all day. We sat outside with Mom and listened to the sisters tell stories of there childhood, Mom even smiled and laughed occasionally which we liked to believe that she heard or connected in her way.
When I arrived home and picked up my mail I received the "eviction" letter from the assisted living place she's been Living in for 5 years, giving us a date when her contact was up with them. While I understand this is for legal clarifiction, I could not have been more disgusted that no one (staff or management) showed me the courtesy after all these years to pull me aside and let me know that this was coming. I went through all the emotions of grief in about 30 seconds. I am bitter that our society after 104 years since the discovery of Alzheimer (1906) has not cared enough about humans to work harder at treating and caring for our elders. I will say as a country we only care about anything if it takes money out of pockets. When the former President (Reagan) was crippled with alzheimers the media showed him walking with Nancy. He lived until 90 probably with full time 24 hour care and no truth came out about the brutallity of this disease. With all that clout and power you would think they would have been more concerned about spreading the word about the disease rather than focusing on beefing up his reputation as President a decade later. In conclusion after reading the AD article in the Ecomomist I was happy to see an article that really said in short that we don't know anything and we have not invested enough time, money, or effort for discovering prevention treatment or care for this tragedy world wide. I'm guessing now, that because the cost of the my baby booming generation aging, that something may begin to happen.
P.S. Your tax your dollars have spent more than $86,000.00 dollars on my mother since january or this year. Now do you think the worst thing about AD is they might not know your name or who you are when you go to visit... wired truth
You said a mouthful, wired. And you are right. It's about money. A sad fact but money speaks louder than human tragedy.
I'm so sorry about this letter - that is cruel. Now that her meds are working better, maybe there will be a better way. It's wonderful you could feel she was connecting. My sister and I were doing a similar thing (talking about the past and looking at old pictures) as Mom was dying. She stirred as though she heard and finally decided to let go and join those who went before her. It was an important moment for my sister and me.
Please keep in touch and let us know how you are doing.
Carol
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