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Tuesday, November, 24, 2009
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Alzheimer's Caregiver Lament -- I can't take her out because she eats with her hands.

Bob DeMarco
Bob DeMarco
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Bob DeMarco is a CareGiver and Blogger

I am a caregiver. My mother, Dorothy, is 92 years old and suffers...

Bob DeMarco

Wednesday, November 11, 2009
View All of Bob DeMarco's Posts
The positive effects of socialization, initiative, and motivation on the part of Alzheimer's sufferers and their caregiver should not be overlooked. I believe these are as important as the medication......   My name is Bob DeMarco, I am an Alzheimer's caregiver. My mother Dorothy, now 93 years...
  1. Eating With Hands
    Joseph
    Thursday, November 12, 2009 at 05:20 AM

    Hi Bob, I'm somewhat new to this site and pleased to see that with you and Bill, I'm not alone as a male caregiver or care coordinator, as things currently stand.  My mother with "unspecified dementia" has some other eating habits that are a challenge for dining out.  She has a habit of knocking over her drink due to constant fidgeting with other objects on the table.  Worse perhaps, is when she spits out a mouthful of food onto her plate or napkin.  On a recent occasion, she had been eating prime rib that I had carefully cut up for her into small bites with some Brussels sprouts.  Ten minutes into the meal, she leaned forward and spit out a golf ball sized lump of well chewed food.  This completely ruined the meal of a person dining nearby. To be fair, I do have to be considerate of others when dining with mom in public.  I don't want her to be embarrassed by someone else's misunderstanding about her behavior.  She is confused enough without dealing with potentially awkward public situations.  The outdoor meal at a fast food restaurant is a very good suggestion.  I will certainly give it a try, although mom is likely to want to dine in a much nicer establishment!  It will have to wait until warmer weather, though.  Good post! -- Joe             

    Reply
    re: Eating With Hands
    Bob DeMarco
    Thursday, November 12, 2009 at 03:13 PM

    Hi...thanks for commenting.

     

    Did you know that 41 person of Alzheimer's caregivers are men? Not there is a well kept secret.

     

    Boy oh boy, you have your hands full with your mom. I had not heard that problem before but I am sure it is out there.

     

    If I found myself in you shoes I would have to do some serious thinking to come up with any kind of workable solution. Good luck.

     

    Weather wise, I am down here in south Florida which is a big advantage for getting my mother out. However, if I take her out and the temperature falls under 70 I Have to put gloves on her.

     

    It isn't easy.

     

    Bob DeMarco

    http://www.alzheimersreadingroom.com

    Reply
    re: re: Eating With Hands
    Joseph
    Sunday, November 15, 2009 at 06:49 AM

    Thanks for your answer to my reply.  I did see the AARP male caregiver article that shows guys at 40-41%.  That is a surprise to me, but there's no reason to dispute it.

     

    I just wanted to point out that some issues are legitimate for not taking a parent with dementia into a public dining situation.  I liked your fast food suggestion.  However, I'm in the Pacific Northwest and outdoor daytime temperatures are in the mid forties right now!  Florida, on the other hand, would be great this time of the year! -- Joe

    Reply
  2. finger food..
    Bill Hirdman
    Sunday, November 15, 2009 at 10:00 PM

    Hi Bob,

     

     My name is Bill, Hi to you too Joe!

     

     I can find many reasons to not take mom into public. I pretty much ignor everyone of them when it comes to my mom. If I do get the chance to take her to a restaraunt, if I feel she will bother others I will face her towards me. I do this anyway but I also let the sever and maybe others next to us about moms illness. I guess I should have said use to.. Mom has other problems and this keeps us from going out.

     No, I don't want to offend others and I don't. But I do treat my mom like a lady no matter what!

     I am finding more male companions as caregivers, at first it was hard on me. Still is but now I get insight to how other males deal with thier situations.

     I have found myself helping other more and more, I have drifted away from this site some but am glad I checked in tonight.

     Just remember, your mom still deserves the best! no matter what!

     Hope to chat with you more.

    HUGS

    Bill

    Reply
  3. Alzheimer's reading room
    Bill Hirdman
    Sunday, November 15, 2009 at 10:07 PM

     Just got back from the reading room.   WOW.. Great information there. Thanks for sharing it with us.

     I can never get enough reading on this disease.

    I also just watched the "memory bridge" on PBS.  memorybridge.org

    cool stuff going on this world.

     Bob, Thanks for sharing your time with us.

    Reply
  4. Untitled Comment
    Debbie
    Monday, November 16, 2009 at 03:05 PM

    Bob - your atitude is enlightening. I wish I could be more like you. But then my Mom (only 71) is currently in Home Hospice as she has breast cancer that has spread to her bone, pancreas, liver and lungs.  The dementia has gotten so much worse and becasue of the anxiety, she is now medicated so much it is so sad to see.  It is either medicate her or she is anxious and cryng and shaking. Then there was the getting up and wandering at 0230 in the morning and taking everything out of the drawers and cupboards, tearing up her bed....  I'm at my wits end and it has only been 3 months since it has gotten this bad. This morning I went to her room to find that she had gotten up in the middle of the night and peed on the carpet. Bathroom is right there - she is just lost.  Yes, day to day is how we are living now.

    Reply
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