Thursday, May 31, 2012

Dementia - When The Angels Come

By Joseph Wednesday, September 01, 2010

This day has been coming for a long time.  The closer it got, the less aware that mom seemed about it's arrival.  Mom has suffered with vascular dementia for about two years.  This type of dementia has it's challenges, but appears to be less damaging than Alzheimer's.  There are no "good dementias", but clearly some types are more difficult to live with than others.  I'm grateful that mom's dementia was manageable, for the most part.  The medications took a while to dial in, but mom's Psychiatric Mental Health Nurse Practioner was truly a professional who had good instincts and a lot of experience to guide her.  It made a big difference in mom's mental health.

 

Mom was able to stay in an assisted living community because her medications were adequate to control serious behavioral issues.  At one point, it seemed that mom might have to move into a dementia unit.  Fortunately, she was spared that locked down level of care.  Her life was far from normal, but she was calm enough to live among the other residents.  She was largely ignored, but found a few kind elders who accepted her obvious mental shortcomings.  God bless those few people who are willing to befirend someone who is a bit imperfect.

 

August 31st began at 5:55 AM for me, when the phone rang and a Hospice nurse advised me that mom was starting the dying process.  She said that mom might only live about four more hours, but that such predictions were hard to make with any certainty.  She apologized for calling so early, but said that she wanted me to have an opportunity to spend time with my mom if that's what I wanted, too.  I got dressed, grabbed something to eat and hurried over to the assisted living facility.  Mom was asleep and under the influence of morphine.  She had several pressure sores that were all less than a week old, except for one on her foot.  Her life was ending and her body was giving in.  Her eyes were partially open, as was her mouth and her breathing seemed labored.  She wasn't awake in a way that anyone would recognize.

 

I contacted my wife at work and my two daughters, asking them to come and join me.  I agreed that mom was actively dying and that her condition could change very suddenly.  Oddly, it didn't seem to change much in over six hours.  It seemend that mom might even survive the night, so I suggested that I might go home and get a few hours sleep while my wife and daughters kept mom company.  I ate a hamburger that my wife had brought to me and made plans to leave for a while.  I decided to closely check out mom before leaving and turned off the television.  Over the drone of the oxygen machine, I detected some irregular breathing patterns that I had been warned about by a nurse earlier in the day.  I decided not to leave and to spend the evening with mom and my family.

 

I moved my chair in closer to mom's bed and reached for mom's right hand.  I gently squeezed it and softly stroked her wrist.  I quietly told her that it was me.  Her eyes had a fixed gaze with no particular focal point.  In less than three minutes, mom took a few gulps of air, completely closing her mouth twice and her breathing ended with a slow exhale.  It was over just that quickly.  I rose to my feet, kissed her forehead and switched off the oxygen machine.  The room filled with silence and I glanced up at the digital clock atop the chest of drawers.  It was 4:40 PM.  I sat back down and we reflected quietly on the preceeding few minutes.  Mom was lying motionless, but looked very peaceful.  I removed the oxygen tubing from her nose and checked for a pulse.  There was none that I could detect and there was no evidence of shallow breathing.  I pressed her call button and closed the chapter on this part of my life.  At age 89, mom was gone and my parents were both now a part of my past.

Christine Kennard, Health Guide
9/ 1/10 6:38am

Joseph

 

Thank you for this beautiful and moving sharepost about your Mom's death.

 

People who work in healthcare ask did she/he have 'a good death'? Your Mom, you and your family were all together at the end and she had a good death. I hope this will give you comfort in the months and years to come.

 

All my very best wishes to you all

Christine

9/ 6/10 12:05am

Thank you, Christine.  Mom wasn't alone when the angles came.  The love of family handed her off to the love of God.  It truly was a good death.  Best Wishes,  --  Joe  --

Carol Bradley Bursack, Health Guide
9/ 1/10 8:17am

Hi Joe,

Blessings to you and your family. You have been an awesome son. Your parents are still part of your life - through you and you children, they live on. In your heart, they live forever.

 

You knew this time would come, but it's still hard. I did find a beauty in attended deaths, as I felt my loved one's release from physical pain. However, there was much pain as well. Yes, you will feel a void after all of his time as a caregiver.

 

Please keep in touch as you feel able.

Carol

9/ 6/10 12:10am

Thank you, Carol.  It wasn't easy, but saying goodbye never is.  Life is temporary and death is eternal... so next time, we'll be together longer!  Packing up her belongings isn't easy.  I've had to take a few long pauses.  The assisted living employees have been really nice.  I'm glad that they thought so much of my mom.  Best Wishes,  --  Joe  --

9/ 1/10 10:53am

Joe,

 

I am very sorry that your lost your Mom. It is good that you, your wife, and your daughters were there for her death. It is so touching.

Now she rests in peace and the people at the home all know that you are the caring son. You have done the best for her. She was lucky to have you there.

You have my condolences.

Please continue to post here as we all need to share our past/present experiences.

 

Take care,

Nina

9/ 6/10 12:17am

Thank you, Nina.  I was a daily fixture at the assisted living place and everyone knew who my mom was.  Mom was asking for me every morning when she woke up.  My being there daily gave her comfort and kept her from feeling abandoned with strangers.  She bonded with a few people there during her year plus stay.  It was good for her to have a routine and things to look forward to each week.

I'll post again... after a little time away.  Best Wishes,  -- Joe  --

9/ 5/10 2:09pm

ear Joe,

 

I'm saddened by your loss of your mother.  You're right: she raised a fine, fine son, and she had the benefit of knowing this -- she could see it daily, whether she was consciously aware of it or not, as she accepted with grace your kind ministrations to her every need.

 

I only come onto this site on the weekend, if then, but I came on today looking for word from you about how things were going.

 

I hope you are doing okay.  It's hard on us, being the ones left behind.  But reflection enables us to keep going, knowing our people are always with us, inside us.

 

Warm good wishes to you and yours,

CJ

9/ 6/10 12:27am

Thank you, CJ.  I'm doing fine - thanks!  The funeral was Friday afternoon and getting that behind me was difficult.  I came home in the early afternoon and took a nap.  I needed some time to relax and refresh myself.  About four hours later, I got up and resumed my day noting that the break had made me feel a lot better.  Going to bed in the middle of the day may be weird, but it was good medicine for me!  I awakened less sad, feeling like it was all just a bad dream.  I'm taking it easy while packing up mom's belongings.  Easier days are ahead now.  Best Wishes,  --  Joe  --

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By Joseph— Last Modified: 10/12/10, First Published: 09/01/10