Thursday, May 31, 2012

THEY ARE NOT LOST TO YOU !

By susan Sunday, November 09, 2008

Some encouragement for all of you out there who have a loved one who are suffering with this heartbreaking disease! My mom suffered with alzheimers for almost 10yrs. and we lost her in April of 08. I always believed that when I looked into her beautiful blue eyes that looked as thou she just gazed at me with a far away lost look that I believed somehow, someway, she my beautiful dignified,most intelligent mom was still in there even though she for whatever reason that we couldn't understand medically or emotionally couldn't respond to us . Especially I would say the last 2 years! But I won't turn this into a book about my mom which I could easily do! My message to all of you is .......Please talk to your loved ones like you did before they ever got sick, tell them what's going on in your lives, talk about their life and loved ones  and things that made them happy because they can hear you and they do understand you! Don't treat them as if they and their minds aren't their because you couldn't be more wrong! Now for the true miracle the few weeks before my mom passed away . She had previously been hospitalized told she wouldn't make it, then bedridden barely eating, didn't really say full sentences or make alot of sense for a long time.Then all of a sudden had the best  appetite  we ever saw her have, she was moving herself around in a wheelchair, saying not only words but sentences... it was unbelievable! When she took a turn for the worst after that the didn't open her eyes for 4 days it broke my heart thinking I would never see her beautiful blue eyes again or hear her voice as I sit here crying! But you know what ...their are 4 of us 3 girls and 1 boy and my mom opened her eyes and tried to speak to each and every one of us! She knew exactly what was going on! It's as if her illness was gone should I say illness of her mind, she couldn't have been more coherent and I know of others with the same experiences ! So what I am trying to share with all of you is that I have always believed from my heart is factual they are still with you so let that give you some comfort knowing that they understand everything you say to them so share your joys and accomplishments with them, show them pictures, treat them with the same respect you always did when they were in the right frame of mind because they still are! They just can't show or speak  back towards the final stages! I only hope I have helped one person thru my heartbreaking experience!  

11/ 9/08 6:29pm

Susan....I am sorry to hear of your Mothers passing. I am a person with vascular dementia and want to thank you for the heartfelt words you have spoken. You show the true meaning of Love and Respect and I know your words will comfort many. I thank you again.

 

Sandy

 

11/10/08 7:26am

I am so sorry for you loss and I thank you for sharing it with us. it has given me hope at a very crucial time in this disease. My husband is entering the phase of not knowing where he is and who is here. Yesterday I had gone out early before he woke up to get groceries thinking hw would sleep late as is his ususl pattern and would not know I was gone. I returned home and he had woken up earlier then normal. I knew something was different but did not know what. We talked and I told him I had gone to get groceries but I hadn't been gone long. He said it was Okay he hadn't known I had left. About two hours passed when he started screaming my name, I rushed into his room and ask him what was wrong, he was calling my name and said he thought I had left him and he was frightened this has not happened before. I know we are entering the worst stage of this disease that steals our loved ones from us. I've known this day was coming I had just prayed not yet, unfortunately this disease dosen't have a typical pattern and each day is so uncertain, I wake up everyday praying for one last day of him knowing me. I know he always will but I also know he will not always be able to tell me. I do and will continue to love him and talk to him as I always have, I do not know exactly what I will be facing in the future. Halloween night he told me that he was going to die from congestive heart failure, he told me the pain was worse and it was getting harder to breathe. I know in my heart he is trying to say good bye. I believe a person with the illnesses he has the alzheimers, congestive heart failure and COPD just the major ones knows when their time is ending. I feel that in his own way he is trying to prepare me for what is coming in the very near future.

I am thankful for you that you had that precious time and she left you with such wonderful memories. I hope I can be as strong as you and that I too will have that. I love this man he is the love of my life and I hate seeing him suffer so. If it is time I can let him go as I know he will be out of pain and out of this horrible disease that is robbing him of his dignity. Thank you Connie

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By susan— Last Modified: 12/18/10, First Published: 11/09/08