I am experiencing some loss of brain function. A brain replacement is presently unavailable – they can’t find the proper donor, it isn’t covered by my insurance, and I don’t want to become someone entirely different than my current self.
I do need the help of professionals, caregivers and friends to compensate as best I can for my loss of functionality. I can use help from technology. What I don’t need is for others to think of me, to treat me as if I’m missing something…..missing what? My brain? Me? My humanity? My need to be love and accepted for who I am? My needs for dignity and privacy, for a personal sense of self, to understand and appreciate every moment of my life – especially today?
I do not mean to imply the loss of a limb or the loss of limbs isn’t traumatic and life changing. I do mean to imply that the loss of some cognitive function while traumatic is not life changing in the sense I am any less a complete and full person every day of my life.
Richard
March 15
