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Results that I have read, and reports that I have received from people who attended the semi annual world international conference (and fund raiser) on Alzheimer's Research confirmed for me I can still make sound decisions based on my own thoughts and feelings.
Good news for me; sad, confusing, and misleading news for all of us who live in cogitative decline. The eternal optimists, the career researchers, the public relations specialists (all of whom I remain confident are well intended) see failure after failure as positive progress. The cheerleaders of various theories of what causes Alzheimer's disease "spin" the disappointing results. In addition, the drug companies continue trails on drugs that promise more than they have delivered in previous trials.
It is not fair to people to have dementia. It is not fair to caregivers. It is just not right to continue this effort to blow up this bubble of hope that we are getting closer and closer to a cure, to a world without Alzheimer's; that we are so close we should spend much more money to get their faster. That we are so close all should have hope we too will have the progress of our symptoms slowed, stopped, perhaps even reversed.
No one claims to know for sure, no group of experts claims to know for sure what causes our symptoms, why some have some symptoms sooner or latter while others have other symptoms sooner or later, why some have more symptoms and some have less, why some symptoms advance faster in some but not others. No one claims to know exactly why or how symptoms are caused.
Yet, many talk and act as if these are all known, and then turn to their attention and our hopes to pills to fix us.
I now know for sure why I did not go to Chicago to this conference. It is bad enough reading about what was said, how it was said, what was ignored, what was emphasized, and what was not. It would have been worse for me sitting there listening to it. I too still harbor some deep flickering hope that I want them to be right. I want to live in the world without Alzheimer's. I want to be cured. I want my symptoms to be slowed, diminished, and stopped in their tracks.
A large part of my remaining cognitive ability knows this is not going to happen. A small part of my spirit still hopes I am wrong.
Richard
I to pray for a cure, I don't have it my husband does, I am his primary care giver he is 66 I am 56. I had a closed head injury 19 years ago and know the possibility is great for me to develop this disease because of that. Already been there with loss of memory for two years and still have short term memory loss. I want to know if I can be tested and if something can be done to prevent it. I also question the link to his exposure to agent orange in Vietnam and know that it has caused many of his other illness. He severe PAD and lost both legs, the government knows what this chemical has done but will not release all the information. Where do you go and who do you talk to? Connie