Thursday, May 31, 2012

frustrated and need help

By Hazel Saturday, November 29, 2008

this is my first time reaching out to others. My husband has had alziemers for five years, and Icould use some suggestions on how to make him understand answers to his questions. I feel I am repeating myself several times with no success and increased frustration for both of us. Any help would be greatly appreciated.

 

Hazel

Anonymous
Em
11/29/08 7:29pm

Not sure what stage he is at, but I'm finding that communication is pretty one sided mostly, it's annoying, funny and heartbreaking, among other things to engage in conversation with Alzheimer's afflicted people.

11/29/08 11:36pm

Hello Hazel and Welcome to our community.  You really should check out or Caregiver Center.  Check this out:

 

Caring for a loved one with Alzheimer's Disease is a full-time job, and you'll need helpful tips and lots of support to give your loved one the best care and protect your own health at the same time. Here you'll find guides that'll make caring for your loved one a little easier, written by caregivers who have been where you are.

 

Some of the specific cares in our center that might be of interest to you:

When It Comes to Decision-Making for Individuals With Alzheimer's Disease, Simpler is Better

 

Dealing with Disorientation: Using a "Reminder Board"

 

Dealing With Mood Disorders and Behavior Changes in Alzheimer's Patients

 

I suspect others will answer you post very soon, but hope this gets you started.

 

All the best, sue

Dorian Martin, Health Guide
11/30/08 9:06am

Hi, Hazel,

 

I found that in my mom's case, I really had to simplify my use of language (especially as her Alzheimer's progressed). Often early on in conversations, I'd use complex sentences and try to have discussions that had several topics all mingled. I found that I had to cut back to the most basic of sentences to help her follow along. That might mean asking several questions instead of one all-encompassing question. For instance, I might have previously asked in one conversation, "Mom, do you want any cookies and are you warm enough and shall we sit here?" Mom could no longer follow this type of sentence pattern, so I'd have to ask three different questions and let her respond to each question.

 

Plus, know that as Alzheimer's progresses, your husband will have increasing difficulty with short-term memory. So you may find yourself repeating yourself constantly while he has no recollection of the conversation. What you may find helpful to get him off a subject is using a technique called "bridging" in which you move verbally move the conversation from one topic to a different topic that will take his mind in another direction. (You often see this technique when politicians are interviewed by journalists and instead of answering the question, they move their response to a topic that they do want to talk about). For instance, your husband might keep asking, "When are we going to eat?" repetitively and you keep answering the same way and getting annoyed. Try to use a bridging technique so that when he asks the question again, you might say something like, "We'll eat soon, but I wanted to remind you of when we took that trip to New York City." Then you launch into stories about that trip or relatives you might have seen or something that is completely off the topic of food. That may cause him to focus on these other topics (and take his mind off when he'll eat).

 

Let me know if this makes sense. And please take care and keep us posted!

 

Dorian

11/30/08 9:46am

Hi Dorian I just read you response to Hazel. I wrote her and welcomed her to this site and have encouraged her to keep talking you all have helped me so much.

 

I am also taking your advise as it is getting increasingly difficult to reach Ray and I have to keep answering the same questions. The bridging is an awesome Idea which I will begin using today. Thank you so much.

 

We have a new home health care nurse and I think this one is going to be great she is younger but seems to have a better idea of how to handle him. Thursday he had his first maniac episode. He got up very early which is unususal for him and was dressed and ready to go some place but got angry because he wasn't sure where he was going. Usually when he becomes angry I can talk him down but not this time. I did something I had never done before. I got my purse and left the house. My next door neighbor is an RN I went and told her what was happening and she told me to go for coffee. You can see Rays room from the front window so she positioned her husband outside where he could watch him to make sure he didn't try to leave or harm himself. I got a call from them telling me he had undressed and went back to bed and fell back asleep and it was as if he had been sleep walking only in a wheelchair.

 

I returned home to find him asleep I woke him to take his meds and he went back to sleep at ten I had to wake him again for his breathing treatment. He didn't actually wake up and start his day until after eleven. I had checked his vitals everything was in normal range and when he finally woke it was as if he remembered nothing. He is back to his same sweet loving self. I was so releaved I feared I would have to have him hospitalized for him becoming so angry and his first episode of violence. He didn't hurt me physically but he really scared me. He has been the same as before. My guard is up now as I know he is moving into a different stage. He ask me before he started getting bad if he ever hurt me to promise I would have him hospitalized. I pray it dosen't come to that but now know it is a very real possibility.

 

Again thank you for the wonderful suggestion. Your friend Connie

12/ 1/08 9:15am

connie, I WANT TO THANK YOU FOR RESPONDING TO MY LETTER. i AM HAVING A VERY HARD TIME TAKING CARE OF MY HUSBAND. I find myself losing my temper, and then I feel trrible after words. I take my husband to daycare twice a week, which helps me a lot. This morning was rough, because he didn't want to go. He was going to run away. That really scared me. My husband has had alziemers for five years. He is on medicine, but I see him getting worse. He had me up all nite. I do get very tired. He was just tested and didn't do well on the testing.He is in the third stages. He doesn't always know the kids. Sometimes he thinks I am one of our daughters. Your letter is a lot of help to me. I feel I have a new friend. Any dvice is greatly appreciated.

12/ 1/08 9:49am

Hi Hazel

 

Your email to me got sent to a friend that forwarded it to me. I am really sorry you are going through such a rough time. It sounds as if our husbands are about at the same stage.

 

I am very glad you have the respite care. You need the time away. Hazel it's very difficult not to get upset and angry with our husbands even though we know they have this disease. We are the prime targets for all their anger and feelings. We are the ones here 24/7 and so that's why we catch it all. I find myself counting to ten before I respond for the 100th time to the same question. Have you tried the bridging yet? Try to change the subject when he gets on a sensitive issue or keeps making demands. It's OKAY to walk away for a minute to get yourself together don't keep beating your self up over something you cannot control.

 

You have to learn to pick your battles. If it's important having to do with like medicial, hygiene, eating or medication try staggering all of these. It is hard but you can regain control. You cannot get him on a schedule but you can make your schedule more manageable for yourself.

 

My granddauther is the only one I have to help me besides the Home Health Care Agency. Saddly the rest of the family has said it is just to hard to see him like this. Well DUH these folks need to get a clue it is hard and they are just making it harder for the alzheimers patient and the care giver. Yes their memory fails when they don't come around but you need to try to get them if possible to see that you are still there and can use their support.

 

Please feel free to ask me anything if I can help I will be happy to. I hope the little I have told you will help some. I am on the computer from about 2:00am Texas time until around 8:00. I am not a professionial just another wife sharing the trials of our husbands having Alzheimers. I check my mail periodically during the day. Please write and keep venting it helps. You can vent to me. I was were you are until I found this site. You have to talk and it really helps to talk to someone who is going through the same things you are. I will be here for you. The more you say the easier it will get, you won't be judged. That was one of my biggest fears that I would say I am so angry at him and someone would tell me I am horrible. That will not happen on this site I promise. Take out your frustrations on the keys of your computer.

 

Your friend Connie

 

Please write any time

 

My husband also has Congestive Heart Failure. He has started waking me before he will go to sleep, he is afraid he is going to die in his sleep.

12/ 1/08 4:53am

Hi Hazel

 

I am so happy you found this site it is filled with so many wonderful caring people. Keep talking to everyone you are not alone. My husband also has alzheimers. You will find many that share your same or similiar situation. You may even find the hidden angel in your computer. I am not teasing you the people here become very close.

 

This site has been the glue holding me together when I was at a loss for what to do. They have the best team of experts to answer your questions about your huband but they also support you. The thing you have to remember even though your husband has the disease you are the one in the line of fire and you are the one stressed and worn out and at your wits end. Many people are here to support you, help you and to give you a shoulder to lean on Keep talking it really helps.

 

If there is ever anything I can do plese write or if you just want to share write, I am living in the same situation and I am on the computer everyday it is my link to the outside and people that care and want to help.

 

Again any time day or night get on this site and just start talking someone will always respond. Take care and know dear friend you have found a place filled with wonderful people.

 

Your new friend.

Connie

12/ 7/08 4:36am

HI Hazel how are you doing? I haven't heard from you in a while and I have been worried about you.

 

How is your husband have you been able to check out any Home Health Care agaencies. I finally got into a gooed one.

 

My husband is not doing well his blood pressure is up and the nurses have been here everyday. If it goes two points higher he has to go to the hospital. He has a lot of congestion in his chest. They keep asking if he is in pain and he is denying any but I know he is he just dosen't want any more pain medication. He rarely gets out of bed and is talking even less. He has that deer in the headlights look almost all the time now.. He is recognizing fewer and fewer people and is staying frightened. This is very hard.

 

Hazel please start talking more. It really will help you. I know it may seem a hopeless situation but there is help here. We want to be your friend and help you through this. You have come to a site that many are going through the same things you are. It dosen't make it any easier for your situation other then knowing you are not suffering alone.

 

If I can help I will. If you want to talk I will listen and write you back. Your friend in Texas Connie

12/14/08 2:01pm

I have tried to write before without success. This is a test run. Let me know if you get it.i

12/15/08 5:26am

Hi Hazel yes I got your mesage. my home email is texasrosem@yahoo.com if you would like to write me there it might be easier. Which ever one you chose to use is fine. How are you I have been worried and wondered what and how you have been doing.

 

My husband is hanging in there. He's not any better but he's not worse so that is good. We have home health care now and that helps a lot.

 

Please write and let me know how you are. Your friend Connie

12/15/08 11:48am

Hi Connie, I have been trying to write to you, but have had a little trouble with the computer letting me. I am so glad to hear from you. I have been having a lot of bad days. My husband thinks there are people in the house trying to steal his things. He spends hours going through drawers, and taking things out that are important and hiding them. He went to daycare today so I was able to rearrange things, but I know when he comes home he is going to be furious. Last nite he didn't sleep all nite. He was up going through the drawers al nite, so have to say I am exhausted. I am so frustrated, because I don't know how to handle this situation. I believe he allucinates a lot. If you can give me any advice I would certainly appreciate it. thank you. I am glad your husband hasn't gotten any worse. I think I am going to bring in home care a couple days a week also.                                  Your friend, Hazel

12/15/08 11:53am

Hi Connie, I have been trying to write to you, but have had a little trouble with the computer letting me. I am so glad to hear from you. I have been having a lot of bad days. My husband thinks there are people in the house trying to steal his things. He spends hours going through drawers, and taking things out that are important and hiding them. He went to daycare today so I was able to rearrange things, but I know when he comes home he is going to be furious. Last nite he didn't sleep all nite. He was up going through the drawers al nite, so have to say I am exhausted. I am so frustrated, because I don't know how to handle this situation. I believe he allucinates a lot. If you can give me any advice I would certainly appreciate it. thank you. I am glad your husband hasn't gotten any worse. I think I am going to bring in home care a couple days a week also.                                  Your friend, Hazel

12/16/08 6:12am

Hi Hazel try my home email okay. texasrosem@yahoo,com. It's easier and private. How long has it been since you took your husband to the doctor? It does sound like he is hallucinating, mine does he thinks he is back in Vietnam. He is on medication for it and it worked well for quite a while. I think the dosage needs to be raised. Please make sure you have secured any weapons, medications and anything else he could use to harm his self or you. This is not meant to scare you but you have to be realistic alzheimers patients will do things they normally would never have done before. Do you sleep in the same room? If you odn't hang a bell above his door so it wakes you when he is roaming the house. Check to see what he is doing before you lay back down. Please do get home health care and respite care in home for you. You have to take care of your self. Try putting bells over outside doors too so if he leaves the house you will know it. Hopefully after you change some things you will sleep better. If you odn't have seperate rooms fix him up a room that is plesant with as few a things as possible, use things he knows so the change won't be to hard on him. Down size all areas of your house. Easier for you to clean less for him to get into. I know this sounds like a lot and it's not fair to you but unfortunately this is the only way you can get some rest and have some peace. Your only other option is nursing home care ar alzheimers home care. I hope this helps. Oh don't forget the kitchen, remove knobs from the stove so he can't turn it on and knives and forks from the drawer to top shelves. the less he has access to the better. It will simplify your life. It wil take a while but like I said it will give you peace keep him safe and make cleaning easier. Ask someone to help you.

 

please again try my email address. Write as often as you can. I am here for you. Your frind in Texas. Connie

By Hazel— Last Modified: 12/17/10, First Published: 11/29/08