Saturday, May, 17, 2008

This is harder than anything else I've dealt with.

by  stressedcaregiver
Thursday, April 24, 2008
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My husband and I have been caring for his aunt for over a year now. When we first got the call that she was in the hospital due to a stoke for not taking her medication. Then we found out she had dementia, so we moved back to where she lived to care for her. Once we got to town we f...

  1. home care
    ninamarczynski
    Thursday, April 24, 2008 at 12:50 PM

    Have you considered home care? A few hours per day would give you a break.

    About guardianship, do you realize that one day you or her niece would have to be her guardian to take care of her? Power of attorney is very important in the end because your aunt will someday not be able to make sound decisions.

     

    My husband is now the power of attorney and trustee for his father who is 87 and has moderate/severe Alzheimer's.

     

    Nina


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    re: home care
    stressedcaregiver
    Thursday, April 24, 2008 at 02:04 PM

    everything has been considered but the poa and my husband and me are bound by a contract which the aunts niece took her to court and the judge made us agree to it therefore only 400.00 is allowed to be spent of the aunts retierment.guardianship isnt allowed according to the contract we are bound by.as of right now the only person who can help the aunt is the aunt but is unwilling at this time.


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    re: re: home care
    ninamarczynski
    Thursday, April 24, 2008 at 03:25 PM

    I am sorry to know that. How could the judge/contract limit the expenses? Home care or anything is expensive also. Maybe you can go to the court to argue against it again.

    Sorry to know about that. Hope you will find some solutions. Maybe find a support group to go.

    Nina


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  2. Untitled Comment
    Sue
    Thursday, April 24, 2008 at 02:58 PM

    Hello and thanks for your post.  Welcome to our community!

     

    It sounds like you have alot on your plate right now and reaching out for help is crucial.  I'd like to suggest you look at our Caregiver Center for information on finding assistance fo you and your loved one.

     

    As well, the Alzheimer's Foundation of America Social Services Team has a toll-free hot line, 866-AFA-8484, or via email, info@alzfdn.orgwhere you can talk with someone about just about anything surrounding Alzheimers and Dementia.

     

    Hope this helps.  All the best, sue (moderator)


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    re: Untitled Comment
    stressedcaregiver
    Thursday, April 24, 2008 at 05:51 PM

    Thank you for the info. I have called Catholic Social Services to get help from them just for a couple of hours, but unfortunately She has to agree for someone to come in and sit with her and she is against it. So it has just been basically my husband and me on a daily basis, unless he's at work then it's just me. I will definitely look into my options to somehow get help. Thanks again.


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  3. Untitled Comment
    A.A. Schutte
    Thursday, April 24, 2008 at 05:16 PM

    Stressed Caregiver:

     

    I bet you look like Sylvester the Cat. That's how I looked when I tried to care for my mother by myself. I was stressed to the max. I slowly discovered resources for our area that would assist me in this Alzheimer's journey, which actually is a marathon not a sprint. I began to create a world for my mother that would support her during the stages or progression of the disease. Currently, she is in late stage. Some days/weeks are better than others. The past two weeks she has been awake, alert and engaged. She smiles a lot and likes to drive in the car.

     

    Since you have access to the internet, would you please google "senior services" or "services for seniors" for your area. Some of the names of agenices that might popup include senior source, area agency on aging, alzheimer's association, etc. What you are trying to locate is free respite care, an alzheimer's support group, and affordable or sliding scale legal help to untangle this "contract" that only allows $400 per month for the aunt's care.

     

    Alzheimer's or any other form of dementia is an expensive disease. Four hundred dollars a month will not cover the aunt's prescription needs, food, incontinent underpanties, a paid part-time or full-time caregiver(s), structured activities such as a day care facility or activities you and your family structure for your aunt so she is appropriately stimulated and not allowed to sit all day and night.

     

    Please remember: you cannot do this alone!

     

    A.A. Schutte


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    re: Untitled Comment
    stressedcaregiver
    Thursday, April 24, 2008 at 06:36 PM

    Thank you for your reply. It really has been more stressful lately.. At first it wasn't so bad. There are times when she just goes off with just a simple question being asked. She has been told by her Doctor and a Judge that going home to her house alone isn't an option and she just doesn't get it. I feel so bad for her, and at the same time I feel a little angry for giving up my life to help her when she acts so uncooperative.  I don't know if it's the dementia or her being stubborn. How do you not let it bother you? or get too consumed with it? She's not able to drive or cook for herself,  It's been over a week since she's showered and everyday I mention it to her, but it just doesn't register. She has been wearing diapers for a few weeks now and is upset about that. She thinks she only wears them because I want her to..  EVERYTHING is my fault. I just feel so helpless sometimes. We gave up our life in California to care for her, and now my kids are even starting to get exposed to some of her actions.(I have explained to them the situation in a way that they understand), but she has gotten to where she just screams at me constantly, and has even swatted at me with a diaper in her hand in front of my oldest son... I'm sorry to go on and on...  I don't want to give up, but don't want things to get anymore out of control either. She doesn't want anyone coming in to sit with her so there is basically nothing I can do at this point. Today was a good day..She seems content just watching TV. I'm just going to take it one day at a time. Thanks again for your information.. It was very helpful.


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    re: dementia
    ninamarczynski
    Friday, April 25, 2008 at 11:52 AM

    Your aunt's situation sounds like my father-in-law in 2007. He did not want to take a shower at times and he sat in his sofa all day. He is in moderate/severe stage of Alzheimer's. Since her sister has POA, maybe you can ask her to assert her power to put your aunt in a nursing home or a respite service and there some professionals can make sure your aunt like it or get used to it. Those professionals are good talkers and can persuade the patients, unlike the families who cannot do anything.

     

    Her anger is also obvious. My father-in-law blamed his son a lot in 2006. So she is probalby around this moderate stage of dementia now.

     

    You really should ask her sister, the poa about what she is interested in doing it to help your aunt. Even going to the court to modify the contract and etc. I think probably her niece was naive and did not realize she did more harm than help. This contract has to be changed - a doctor's order can help.

    Just my 2 cents.

     

    Nina


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