Thursday, May 31, 2012

Where Do I Begin?

By sojourner Thursday, January 22, 2009

I'll first introduce myself.  I am a 68-year-old retired woman, the daughter of a mother whose cause of death was "Alzheimer's Disease" at age 83.  With that knowledge, and knowing that I could be screened for the presence of Alzheimer's by means of a PET scan, I elected to become informed.  That was three years ago, that I was told the scan showed that I had the beginnings of the disease.

 

My primary care physician has been very attentive and supportive in my efforts to head it off by all means available, and I have been taking Aricept and Namenda, almost from the start of my diagnosis. 

 

At first, I took only Aricept, and I got off to a bad start with it.  The first night, I took my pills and went to bed.  I had a heart-poundingly terrifying nightmare, in which I walked to a nearby (actually existing) shopping mall, alone, just for an errand.  It was daytime, and not so far that I could not easily make the round trip afoot.  When I was finished, I walked between the shops to exit  through an area between the mall and the street, that was disturbed by ongoing street improvements.  But, I went that way, intentionally, knowing about the confused environment, but prepared to make my way through.  However, I soon became disoriented (and I had not experienced that feeling in my "real" life), and my surroundings morphed into unreal locations, though still bearing some semblance of familiarity, in ways.  Even though I wandered through one morphed scene, turning into another differently morphed scene, after another, I felt like there was hope that I would soon find my way through the mazes I was encountering.

 

In one scene, I found myself inside a recently completed new building of several stories.  It was ultra-modern, and all the walls were curved - no square areas at all.  While in an elevator lobby, I observed the strange fact that every surface of every floor, wall, oor, etc. was upholstered or covered with lime-green plush carpeting, or heavy velvet.  After gaining my composure, after being so visually abused, I finally found an underground and wavy (still lime-green upholstered and carpeted) tunnel, that allowed me exit - but found myself in an enormous open expanse of bare desolation!  No buildings or people, only several widely-spaced large pieces of earth-moving equipment.  Only one was operating, but it did not become a danger to me.  Still, I was abandoned to solitude.  I was reminded of the science-fiction movie "Dune" - lots of dirt and sand.  And, the area was bound by high, upright mountain cliffs.  What was I to do?  This was really getting scary! 

 

I don't remember how I escaped to higher ground, back to an occupied though still unfamiliar area, but I did.  Now, my problem was, which way was home?  Suddenly, a man was at my side.  He was very polite, but soon it was obvious that he wanted to "help" me too much, shall I say.  I rebuffed his attentions and escaped him, only to find myself in a "New York after the workers leave for their suburban homes in the evening."  The streets were almost empty.  I wandered and wandered, becoming more desperate, until I reached the "outskirts" of town.  A large factory had just shut down for the day, and all the blue collars (though uniformed in white coveralls, including white hardhats in hand) were grabbing places on an open-topped fast-moving train, much on the order of the Himalayan Express at our recently-closed Bell's Amusement Park.  I thought, "Here's my chance!" and one of the women grabbed my hand and insisted that I hurry aboard with her.  Once onboard, I asked her where we were headed.  She said, "Oh, this thing won't stop before we get to Chelsea."  No, this wasn't my salvation, as I had hoped! 

Sofia, Editor
1/22/09 10:01am

Hi Sojourner!

 

Welcome to OurAlzheimer's! Firstly I'd like to say thank you for joining us and sharing your experience.  I think you will find that there are many kind, caring people here to connect with. 

I think most everyone can relate to the feeling of being utterly terrified by a nightmare, but this one seems to be in a class of its own.  Is it your belief that it was caused by medications? Or just happenstance? Either way it is good to hear that it is not re-curring. Please keep us posted, you are a great writer!

2/11/09 6:29pm

Dear Sofia.

 

First, let me apologize for such a delayed response to your kind post.  I have just not been on this site for a while, and just this day, while going through my really-piled-up "new" e-mails, I happened upon the notice of your reply. 

 

Thank you for your compliment on my writing.  I do have aspirations of authoring a novel, which would actually be a facsimile of my own life.  Somehow, though, the time to really produce such a work is usurped by others in my household, and the rigors of daily life.  I'm sure you have probably felt that way too, huh?

 

Now, do I think my nightmare was caused by the medication?  Yes, I really do.  I think it "jolted" an area of my brain, so to speak, as that dream was very atypical for me.  Since that one, I've had another dream that was similar in its theme, but not so terrifying as the first one.  But, I plan to continue with the medication, anyway.  I might drift into a constant life of nightmare if left untreated, you know.  I would like to delay that as long as possible.

Carol Bradley Bursack, Health Guide
2/ 4/09 9:32am

Keep us tuned in. I'm glad you continued with the meds, though maybe you should have had someone stay with you the next night. You are brave! We'll be watching for more posts.

 

Blessings,

Carol

2/11/09 7:23pm

Dear Carol,

 

I appreciated your reply post, and I regret that this one has been so tardy.  (Please see my above post of reply to Sofia, for details.)

 

I do have an event to share, that I failed to include in "Sofia."  I recently experienced my second "Alzheimer's moment." 

 

Several family members were discussing the pros and cons of local restaurants.  We've been lamenting the very poor quality of food we have received of late, when eating out - no matter what the cost of the meal.  They bandied about a long list, then my husband summarized with his offering that, on the whole, Shiloh's was the best, all-around.

 

That name, Shiloh's, hit my ears, and my brain tried to assemble other information to go with it, to make me know about that restaurant (which we go to quite often), but it would not compute.  I was sitting there, knowing that I should be able to know all about it, but I only drew a very unsettling blank!  I humbly admitted my "moment," and asked them to help me by giving me a clue that might connect me.  They did, and I was past it, immediately.  But, it sadly made me wiser concerning what is to come.

 

My only other such incident was about three years ago, before I was taking Alzheimer's medications.  The coffee pot emptied before our guests were finished visiting.  I went to the kitchen to do my hostess duties, rinsed out the carafe, and filled it with fresh water.  I turned to pour the water into the automatic coffee-maker . . . , then found that I had no idea as to where it should be poured.  Not wanting to draw attention to myself, I "winged it," and poured it atop the basket of coffee grounds.  As you might expect, my secret was soon revealed, as watery grounds poured over the countertop and floor of the kitchen.  Many helpers filled my kitchen, as it was not possible to quickly stop the flow that continued from the coffee-maker.  My red face took me to sit in the living room, to be served my next cup of coffee prepared by some-one else.  It is truly a new place to be.

Carol Bradley Bursack, Health Guide
2/12/09 11:49am

How sad and frightening these episodes must be! I'm so sorry. I'm glad you are taking the medications, and hope you can find the right kinds and doses so that the nightmares and such are no longer part of this painful journey. Keep coming back to our site, and keep up with Leah, as she is always dealing with her vacular dementia changes. They all have things in common.

 

Blessings,

Carol

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1484) >
By sojourner— Last Modified: 12/22/10, First Published: 01/22/09