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Thursday, October, 16, 2008

I care for Mom she is in Mid stage and it getting awful for me I really try

by  Keetzs
Monday, July 14, 2008
Keetzs
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Keetzs

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Mom is 89 in Mid stage she can dress herself seems clean, feed herself I bring all her food, had turn off her stove it was gas. Example If something new happens she cant remember at all I have to repeat or leave a note, the other day she opened a window couldn't get it closed so I helped her the w...

  1. Response
    Dorian Martin
    Tuesday, July 15, 2008 at 08:53 AM

    Hi, Keetzs,

     

    I'm so sorry to hear about the issues you are facing with your mother. I know how difficult it is to try to make these decisions.

     

    From what you wrote, it does sound like you are thinking about exploring either assisted living or a nursing home. As hard as it is to move a loved one to this type of facility, sometimes it's for the best for the person's safety and the caregiver's own health. I have heard several friends talk about the difficulty of making the decision to move a loved one with dementia to a care facility, but most agreed that there came a time when the move became inevitable.

     

    I'd suggest that you really stop and analyze (removing your own sense of guilt) which option -- living at home vs. a nursing home/assisted living facility-- would be the best for your mother. In my own case, that decision came down to Mom's health (she had Alzheimer's and Chronic Obstructive Pulmonary Disease, which meant she needed skilled nursing) and safety (Mom was very independent and would have been a "wanderer"). I also had to factor in that I was going to be the lone family caregiver (since Dad at that point was living in a city 7 hours away and my brother was in another state). Along with caregiving duties, I had to make sure that I could maintain my professional, financial, physical and emotional well-being for the duration that Mom remained alive (which ended up being two years). If Mom had continued living with me (or in a separate home), I wouldn't have been able to pull off that balancing act.

     

    In my early years of adulthood, Mom always said, "I don't want to be a burden to my children." Knowing these wishes, I believe that if given all the facts of what would happen prior to her Alzheimer's diagnosis, Mom would have agreed with my decisions.

     

    You've been a good daughter and have tried your best to take good care of your mom. I encourage you to take a breath and give yourself some time to analzye the situation and then make the best decision that will ensure that your mom has a good quality of life and that your health is maintained.

     

    Take care and let us know what happens!

     

    Dorian

     

     


    reply
    re: Response
    Keetzs
    Tuesday, July 15, 2008 at 06:24 PM

    Well, you gave me the same ideas Ive heard from everyone, I believe my mom is beyond helping me make this decision,  I hear that safety, professional care are key, I always tell myself that if I was meant to be a Caregiver I would of been, I worked 35 years in the Telecommunications, not a caregiver by any means.  I going to give it some time to watch and also talk to Adult Living Alternatives finding one who has a lengthy involvement in advocating for better service for elders.  Also a place that are cerified by State with assessments.  Of course close to me, I know this will be painful emotionly, but sometimes its for the best.  Thanks for your input.

    Keetzs


    reply
    re: re: Response
    Dorian Martin
    Tuesday, July 15, 2008 at 06:50 PM

    Hi, Keetzs,

     

    I'm glad that you plan to take the time to make your decision. Please know that if you do end up moving your mom to a nursing home or assisted living facility, you won't be losing your caregiving chores; instead you'll find them evolving as you become your mom's advocate. In my case, although my mom resided in a good nursing home, I found that I had to have a visible presence, during which I had to keep an eye out for care issues and all too often call attention to lapses by staff members. I wrote about this in Inspecting the Quality of Care in Your Loved One's Nursing Home.

     

    I would also say that my ability to enjoy my relationship with Mom improved during the last two years when she was in the nursing home. During almost all of my adult life, Mom and I had been best friends, but during her several-year descent into dementia, I didn't understand or know how to deal with some of her behaviors that seemed uncharacteristic of the Mom I knew and loved Once she moved to the nursing home, I no longer had to bear the brunt of her paranoia or emotional outbursts (which can be part of Alzheimer's). Instead, we reached the point where she was once again excited to see me come in the door for our daily visit and we were able to share quality time (often with cookies or fruit smoothies).

     

    Again take care!

     

    Dorian


    reply
  2. Your story sounds very familiar
    vivian74
    Saturday, July 26, 2008 at 08:25 AM

    My grandmother is 72 and she has moderate alzeimers.  She sometimes goes out with her clothes on backwards.  I don't make a big deal out of that either.  Atleast she isn't streaking.  Sometimes she trys to go out with about 12 shirts on and 3 pairs of pants and I can't get it through to her that it's summer.  I do all the cooking now.  She tried to make Oatmeal and it looked so gross that I threw up.  However, my grandmother is not clean anymore.  I never smell her or anything but she hasn't had a bath in close to two weeks and everytime I suggest it she says no.  She's got this fixiation on the Garbage.  She has a garbage can in the bathroom where she puts the toilet paper instead of flushing it (why?  I don't know).  After that she has to take the whole can out to the Garbage can outside and take the tp out by hand and put it in the commercial dumpster.  She'll also take the kitchen can outside and take all that out by hand and throw it in the dumpster.  She came in yesterday trying to clean the inside of the bag.  I had to make her go wash her hands because she wasn't going to.

    And the everytime something new happens.  For example, her brother is coming to get her Friday for a visit and to give me a break since it's just me and my husband.  Shes asked me everyday this week about 10 times a day when he's coming.  Then she's afraid she'll get somesick.  She's staying 3 days and she thinks shes staying a week no matter how many times I tell her.  And she has a violent side too.  She tried to pull all her hair out yesterday because I was watching Days of Our Lives (which I watched with her as a child 30 years ago).  We can easily put her into a nursing home but we do not want to until it's absolutely necessary.  I don't know about you but my nerves are shot.


    reply
    re: Your story sounds very familiar
    Keetzs
    Tuesday, July 29, 2008 at 08:31 PM

    Hi: Yep we do have a very similar circumstance going on, its hard, even tho I have a caregiver over  only two times a week to make sure her pills are taken. Im always doing stuff for her paying bills, picking up prescriptions,fixing meals. We have wheels on meals but if I tell her someone is bring food she forgets and goes for a little walk  around her block... so that will not work.  My nerves a shot also I have physical syptoms I never did before until she started getting bad and needing me to visit 5 to 6 days a week.  I feel the same way I will  find a place for her when the time is necessary for sure.  I know there are a lot of people going thur this.  I'm not the type to go to meetings and listen to everyones stories, this web site is nice as I dont have to leave home.  When Im not going to Moms I need to do my stuff and things I enjoy I walk at least 30 to 45 mins everyday which helps keep my sanity.  Just wanted to repond to you.  Thanks for you Comment.  Keetzs


    reply
  3. change?
    MEME
    Tuesday, July 29, 2008 at 12:32 AM

    It seems to me you are calling out for help.  Find a Alzheimer Caregiver Support Group meeting. In my city the meetings are during the day and also in the evening.  Go hear what other people are saying. 

    Your mom won't want to go anywhere else.  She won't want change.  You need to put your mom in a home.  I wish my dad would put my mom in a home.  He thinks he can keep doing it, but his health could deteriorate because of the stress.  At some point you have to say enough.


    reply

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