What We Give Up As Caregivers

By Carol Bradley Bursack, Health Guide Friday, July 13, 2007

Once upon a time, as preparation for a telephone interview, a producer asked me to post a question on my Web site, so people could have some input ahead of the interview. The question was, "What have you, personally, had to give up, as a caregiver?"

 

Web visitors had a lot to say, and much of it was repetitive. This is to be expected, since we all face many similar situations (thus the success of peer support groups). Also, much of it didn't have a lot to do with the original question.

 

The questions and statements did give us a jumping off place for a lively phone interview. Today, I was looking for something entirely different, when I came across these questions. Thinking that I didn't need them anymore, I was going to delete the document. Then I started re-reading the questions, and became engrossed in thinking of how I'd answer them in written, rather than spoken, form (can you tell I'm easily distracted?). That, of course, was one short step to actually starting to write answers, which, of course, I wanted to share with you. So, here are some musings about these caregiving questions.

 

1. How can I care, but not care too much, as an adult child?

 

Learn to detach. You can't change your parents or their situation. The only thing you can change is your attitude. This is easier said than done, I know. You may need support from a group or a professional to do that.

 

2. What can I do about my health?

 

Realize that if you skip your checkups, don't treat your depression, don't take time to relax, you will not be an effective caregiver. You are just as important as the person you are caring for. Don't neglect your health for theirs. They need to be taught, from the beginning, that you will take care of yourself as well as them. If they could think straight, that is what they would want.

 

3. What about time with my family?

 

Again, if your parents' minds were normal, they wouldn't want you to sacrifice time with your children and your husband. Obviously, in the real world, you will need to make these sacrifices. There is only so much time in a day. I spoiled my elders way too much. Then their expectations were so high that, when I had to pull back, it was worse than if I had started out with more a more balanced view of everyone's needs.

 

4. I feel like I've sacrificed my freedom.

 

You have. But, like time with your family, you need to try to find balance and get some of that freedom back. There will be some hurt feelings. And you will never be totally free, as a caregiver is on call 24/7 - even if the person being cared for is in a facility. But you need to line up some kind of dependable respite care, so you can have a little time without worrying about everyone else.

 

5. Giving away time during 'working hours' is a sacrifice since it almost always translates into loss of income.


Women, particularly, seem apt to sacrifice promotions, transfers and other options that may help their income, in order to care for their elders. Of course some men do the same. An employer may look at someone who has needed time off for elder care as not reliable enough for a promotion. Sometimes it's just about not enough hours in a day. It is a difficult issue, and employers are going to need to address this, as they have had to address child care. Unfortunately, real answers to this dilemma are still out on the horizon.

By Carol Bradley Bursack, Health Guide— Last Modified: 12/06/10, First Published: 07/13/07