advocacy

Global Attention to Alzheimer’s Must Include Educating Public

Carol Bradley Bursack Health Guide January 17, 2013
  • The United States Senate Special Committee on Aging recently released a report examining how five nations with developed economies are approaching the growing numbers of aging adults with dementia, including Alzheimer’s disease, within their borders. The nations studied are the United States, A...

6 Comments
  • Leah
    Health Guide
    Jan. 17, 2013

    A wonderful article, Carol.  Having dementia myself, I have seen first hand how people do not want to acknowledge my disability and/or they remain speechless.  It is vital that more education be provided for those who do NOT have dementia so that they can better understand what it is all about.  I suggest, too, that scenarios should be used within...

    RHMLucky777

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    A wonderful article, Carol.  Having dementia myself, I have seen first hand how people do not want to acknowledge my disability and/or they remain speechless.  It is vital that more education be provided for those who do NOT have dementia so that they can better understand what it is all about.  I suggest, too, that scenarios should be used within the TV shows...more exposure is needed in that area.  Just like TV has used its venue to push an acceptance of homosexuals and homosexual relationships so too could it expose life for and with people with dementia.  We must show people realize that those of us with dementia are not to be shunned, and we (and our families) have nothing to be embarrassed about.   Thank you for continuing to cover dementia; your blogs are invaluable! 

    Leah

    • Carol Bradley Bursack
      Health Guide
      Jan. 17, 2013

      Thanks for the note, Leah! I always know I hit the nail on the head when something resonates with you. I loved your idea of using dementia more often on TV and other venues. There have been some movies and, of course, documentaries, but it would be nice to have someone with dementia as part of a family on a show.

      Blessings, Leah,

      Carol

  • Anonymous
    Carrie
    Jan. 20, 2013

    This quote stuck with me: "Education can help the general public understand that people with dementia are people first. Their disease comes second." So important that dignity and respect for human life, regardless of the disease that affects a person, remain at the forefront. I'm glad to say, in continuous research of Assisted Living facilties for Assisted...

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    This quote stuck with me: "Education can help the general public understand that people with dementia are people first. Their disease comes second." So important that dignity and respect for human life, regardless of the disease that affects a person, remain at the forefront. I'm glad to say, in continuous research of Assisted Living facilties for Assisted Living Today, that many of the facilities with specialized Alzheimer's and memory care programs note this very fact and treat their residents with respect first. This was a thought-provoking piece. Thanks!

    • Carol Bradley Bursack
      Health Guide
      Jan. 21, 2013

      Hi Carrie,

       

      Thanks for your kind words. I'm dedicated to preserving the dignity of our elders, while supporting caregivers. I saw what surgically induced dementia did to my dad, and there were times when I was angry about the uneducated attitudes of the general public. I have to say that the professionals in the nursing home were amazing and treated him...

      RHMLucky777

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      Hi Carrie,

       

      Thanks for your kind words. I'm dedicated to preserving the dignity of our elders, while supporting caregivers. I saw what surgically induced dementia did to my dad, and there were times when I was angry about the uneducated attitudes of the general public. I have to say that the professionals in the nursing home were amazing and treated him with the dignity he deserved, so we were fortunate. I'm thrilled your organization understands how important this is.

      Blessings,


      Carol

  • AFA Social Services
    Health Guide
    Jan. 17, 2013

    Our nation is finally tackling the Alzheimer’s disease crisis, with the release last May of the National Plan to Address Alzheimer’s Disease. However, more needs to be done! Recently, the Alzheimer’s Foundation of America (AFA) released a report, “Time to Build,” that includes more than three dozen recommendations for the federal...

    RHMLucky777

    Read More

    Our nation is finally tackling the Alzheimer’s disease crisis, with the release last May of the National Plan to Address Alzheimer’s Disease. However, more needs to be done! Recently, the Alzheimer’s Foundation of America (AFA) released a report, “Time to Build,” that includes more than three dozen recommendations for the federal government to consider in its amended annual plan, due out this spring. AFA’s recommendations build upon the current goals of the federal government’s historic national Alzheimer’s plan and take the initiative to the next level. AFA recognizes that education is key—as evidenced by its recommendations that call for building a high-quality dementia care workforce by offering federal student loan forgiveness for professionals in geriatrics and gerontology, and establishing a 24-hour call center for dementia healthcare professionals. AFA also calls for initiating an awareness campaign for physicians—similar to the new campaign for the public; publicizing the importance of early detection; and promoting the cognitive detection aspect of the Medicare Annual Wellness Visit. In addition, chief among AFA’s recommendations are those related to the enormous cost borne by families: AFA urges the expansion of publicly-funded “participant-directed” programs that would allow participants to hire family members, including spouses, children and teens, as paid caregivers. In addition, the organization suggests federal tax credits for primary family caregivers; income tax deductions for out-of-pocket costs for long-term care services; greater access to government-funded home- and community-based care services such as adult day programs and diagnostic and care planning services; incentives for employers to adopt family-friendly workplace policies; and qualifying all people with Alzheimer’s disease, regardless of age, for Medicare benefits and Administration on Aging programs.  To read the full report, go to:   http://www.alzfdn.org/Publications/TimeToBuild_final.pdf.

    • Carol Bradley Bursack
      Health Guide
      Jan. 17, 2013

      Thanks for the note. The AFA has been a very impressive force in getting this bill passed. I'm sure they will continue to fight for everything this country needs to help people with Alzheimer's and other dementia.

      Take care,

      Carol