Saturday, February 11, 2012

Alzheimer’s and Wandering: The Death of a Brave Woman

Julie Kay Webster was found dead in Wyoming, August 2, 2006, less than a mile from her car. Julie, a 58-year-old woman with early-onset Alzheimer’s disease, lived in Deephaven, Minnesota and had set out to pick up her daughter at the Minneapolis-St. Paul International Airport. She never arrived...
Anonymous
Monica Moreno
8/25/06 9:40am
It's no myth that up to 60 percent of those with dementia will wander. If not found within 24 hours, up to half will suffer serious injury or death as in the case of Julie Kay Webster. The Safe Return program's greatest challenge is getting persons with dementia enrolled in the program BEFORE a wandering episode occurs. 2/3 of our incidents involve a good samaritan or law enforcement officer calling to report a found enrollee who was never reported missing. This clearly reinforces that wandering is unpredictable and can happen at anytime, even on days when the person with dementia may seem unimpaired. The Alzheimer's Association Safe Return program encourages caregivers and persons with dementia to contact us for more information on wandering and aging safely with dementia at 800-272-3900. We are here to help 24/7. Sincerely, Monica Moreno Associate Director, Safety Services Alzheimer's Association - National Office ******************************************************************** You are 100% correct, Monica. Getting the word out on Safe Return is very important. I've written about it in my column as well as the blog, and I've even referred to Safe Return in a press release. All of us involved with Alzheimer's patients need to do what we can to make people aware that the patient should be registered now - rather than later. Later could be too late. Thanks so much for writing. Carol
Anonymous
Thomas
10/24/07 6:43pm
What a sad, sad tale. Made even more so, as you say, by the possibitity that it all may have been preventable by a suitable monitoring or alerting device. Those of us who care for folks with dementia know that our loved ones cannot be relied upon to ask for the help they might need; indeed, thay might not even know they need help. I'd call you attention to systems like Notifex offers, which does not require an ankle or wrist bracelet (which many folks won't tolerate - especially as they likely won't remember why it's there) but will notify a caregiver right away if their cared for wanders. In this day and age, anything we can do to prevent similar tragedies is so important. Thanks so much for your caring.
10/25/07 8:54am

HI Thomas,

There are many new tracking devices for people with AD and other dementia. Technology is our friend with this. I'm looking into an article on several of the newer ones out. Of course, prevention is the best, but it can happen to anyone. People don't expect it with early on-set AD, so then they are totally blown away when it does happen.

 

Thanks for your help and your kind words.

Carol

6/ 1/10 1:47pm

Carol,

 

I think the families need to be educated about this matter. So many cases I have heard from the greater Montreal area in Canada: there have been a few Alzheimer's elders wandered and were found dead over the years. Quite a few. They were found soon later after some days/weeks. Some elders began with going out to see friends alone and some just went out and got lost in the cold winter or spring.

Every time after I read the news, I always felt that the family could do better (not that it is their fault) and that the elders have to be watched diligently. Maybe some of the families didn't realize the elders can be lost and dead! I don't know how the families reacted as it was just some random news - it seems to be so common. Even a retarded boy was found dead after he wandered...

 

I understand it is hard to follow the elder or disabled person all day, but maybe the families need to acquire the tracking system and bracelet. Or they need to hire someone to be with the person all the time.

 

It is sad. In fact, sometimes the elders don't wander too far if the caregiver can catch them in 10 minutes. The family needs to understand even the elder with early Alzheimer's has to be watched so that he/she is not lost. So many families don't realize how AD progresses.

 

Regards,
Nina

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