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Untitled Comment
Leah
Tuesday, October 14, 2008 at 11:43 AMre: Untitled Comment
Carol Bradley Bursack
Tuesday, October 14, 2008 at 12:18 PMThanks for your note, Leah. I did some speaking over the weekend, and had a very, very people-busy week before. I needed some time out badly, and have learned, like you, to take it when I can. I just told some folks I was "peopled out." We need to take care of ourselves, and we all have a different tolerance for people. I came to terms long ago that I need more quiet time than most. If people don't understand, that's their problem. After some "time out," I can get on with it. Maybe that's part of being a writer.
Take care,
Carol
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Untitled Comment
N.C.
Tuesday, October 14, 2008 at 12:28 PMIt is so true. My father-in-law is antisocial and yet he said he is lonely because we are not there or that he has no spouse. Often he said he is alone even if there is a caregiver next to him. He always has a caregiver now. But at times he is lonely. So he likes to try to play with women hoping they can be his date or mate. That won't happen but he tries. We are thinking as time goes, he would be better off in a nursing home in a year. Home care is expensive anyway and we cannot afford that unless we move back to be with him. Eventually I think the community can help his loneliness even though he is antisocial and does not play games. He only likes to take a walk and talks to women. He can relate to a guy like he is his colleague or a friend. I don't think he is totally antisocial. No one is really antisocial unless he is mentally ill (not AD.) One could want to be alone but no one likes to be lonely. He can no longer work on his career as he forgot about it in details now so no writing or reading for him. I believe at this point, the community can play a role.
Regards,
Ninare: Untitled Comment
Carol Bradley Bursack
Tuesday, October 14, 2008 at 12:36 PMThis is where so many elders gain when they go to communal living. They nearly always fight it, so there's adjustment time. But I know so many who wouldn't trade it for anything, once they've made friends. It's hard to convince them, though. And, of course, not every area offers great assisted living.
But having the company of peers often trumps that on one caregiver just sitting with them.
Take care, Nina,
Carol
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Ray
Connie Moore
Wednesday, October 15, 2008 at 06:52 AMHi Carol, thank you for the share post, I read it and it's is strange that you talked about a subject that has been going on here that I have worrid about. As the disease progresses with Ray he is withdrawing more and more. He is isolating himself in his room. I have tried everything to draw him out but I think he is beginning to feel like that is his safe place. Our younger granddaughter came over last week (17) she had been here two hours and talked to her poppy while here, I noticed he seemed distant but didn't question him. Two hours into her visit I went in his room to check on him and he looked at me and ask who was at the house, I told him it was Jamie Lea and he said OH. I know he is begging to forget more and more and I know she dosen't come often but I was still shocked he didn't remember our other grand daughter that has been here so much. He never leaves the house except to go to the doctor. He use to fish a lot and our new grandson tried to take him fishing and he said he was sick and couldn't go. We then told him we were all going to Walmart and ask him to come he said no. We ask about going out to dinner he said go with out me. I even tried to get him to just go for a drive to some of the old places we use to go not to get out just drive around and he said no. The alzheimers steals a little more of him each day. He is having a difficult time finding the right words and I know we are approaching the really bad part. I have pretty much made the decision to go with Hospice, he has so many other medical problems, his congestive heart failure is getting bad. he told me even with his oxygen he is having problems breathing and is losing what strength he had. I have had Phenemonia for three weeks and been very sick. I see the doctor this morning and I am going to ask about either home health care or Hospice. I have to have knee replacement surgery and before I can do that I have to have a definate plan of action. Thank you so much you have helped more then you know.Connie
re: Ray
Connie Moore
Thursday, October 16, 2008 at 04:34 AMLife isn't getting any easier and I have to quit using it as an excuse to quit smoking. I know I have done this to myself and only i can quit smoking and I am doing that. I can't undo the damage I have done to my lungs but maybe if I quit the younger generation can look back and see what has happened to me and not make the same mistake I did when I lite that first cigarette. Connie
smoking
Carol Bradley Bursack
Thursday, October 16, 2008 at 07:49 AMI've read, and been told by friends, that smoking is harder to quit than almost anything. But it can be done. Good vibes go your way from me. If you have a "smoking buddy" who is quiting - even an online one - that may help. I'll bet there are support groups online for that. You may want to search one out.
Good for you!
Carol
re: smoking
Connie Moore
Thursday, October 16, 2008 at 07:58 AMThank you Carol I have quit before if I could go back and do the only if's all over again I wouldn't be in this situation now, the stop smoking part. I can and will do it I have to, I love my family and they have all been through enough. I can't care for Ray if I don't take care of myself. Keep me in your thoughts. Connie
re: smoking
sandra
Saturday, October 18, 2008 at 07:58 PMI was smoking for about 6 years. I actually started when I was about 20 in 1995. After about a month, I went from a few cigarettes a day to half a pack a day. After 6 months, I gave the pack to my mom and asked her to "hide" the pack from me so that I wouldn't smoke. (My mom used to smoke before she had me). After a few months I went back to smoking.
Then 1997 came and I had paused from smoking for years. I went to a Bible college in Indiana and I had no desire to smoke (it was not allowed either). I came back home to Cali in 2001 and by July 2002 I was smoking again (27) due to a friendly influence.
It happened the same way. Started out with a few a day. Ended up smoking a pack a day by 2004. I think I was up to more than this when I was hanging around smokers. I went on and off for months between 2005-2007.
By mid 2007 I had paused for about 3 weeks. I saw a friend of mine that I haven't seen in a while, she smokes, so I had a few or hers, and I was hooked again! Then I tried to slow down in late 2007, just smoking less and having my first one at noon instead of 8am. By early 2008, my first cigarettes were around 8pm and by that time, I even hated to smell of the smoke. I noticed on hot days, I hated to smoke. I only would smoke on cold days. It got in my eyes and my eyes burned.
By March 2008 I stopped. I have not had a cigarette since then and my friend (that smokes) is so proud of me. I saw her in March AND in July of this year and I did not have 1 even though she smoked around me. I do not think I can go back to smoking. The smoke (now that I notice it) stinks. (I never knew that I myself smelt like smoke).
Stopping can be done. A person just has to want it bad enough. It's not enough for all of a persons friends and family to want them to stop. The smoke has to want to stop. Until then, the smoker will continue to enjoy every puff. I know I did!
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About being alone VS. Lonlinenes
Sandra
Saturday, October 18, 2008 at 07:39 PMHello. I enjoyed your article about Alzheimers and how it relates to lonlineness.
I'm not a doctor, but I believe you may have Asperger Syndrome. What you describe sounds a lot like it. I know that I have it!
I must have some alone time to re-group my thoughts. I was working at a residential center for teenagers and I always wondering why (at 2pm) when all of the boys would be in the dorm (about 30 of them) and I'd just want to leave the dorm since it got sooo loud. After about a month, I just could not take it anymore and I just did not go to the dorm at 2pm, since my schedule allowed me to have a break at 2pm for 15 mins. What a relief that was to get away from all of the loud noise!
I sometimes DO get lonley since
1. I do not have any friends near where I live
2. I have no car (not since my car accident in 2003)
3. I'm 33 and single
4. I have no brothers/sisters
5. I have no job (not since March 2007)
6. Not even dating!
I wonder how Alzheimers relates to elderly people with Austim or Asperger Syndrome. It may be something that I'm going to research now that I've read your article. I'm sure that many people that do have A.S could get Alzheimers as well.
Again, thank you for your article!re: About being alone VS. Lonlinenes
Carol Bradley Bursack
Sunday, October 19, 2008 at 07:17 AMGood point! I've never thought of that, but I know I need more quiet time than most, to gather my thoughts. I also meditate (in my own way - prayer and meditation have as many "styles" as people who practice them). It's my time to connect with my spirituality. But most others don't need the amount if time I do. I get up very early, just to have solitude, and if I get that, I'm good to go for a very long day. If I don't, the day is more difficult.
I do believe there's a huge difference between solitude (for whatever reason we want or need it) and loneliness. Solitude is generally positive. Loneliness is not.
Good luck with your research and thanks for chiming in.
Carol
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Hi, Carol. I can so relate to this issue. I have always considered myself a "loner" though I am seen by others to be very social. Yes, I can take social moments with others, but I also need my "down time". I am alone. I am not bored. I do not watch endless tv...I write, I think, and I even sleep sometimes. It is an actual physical need for me. I would "suffocate" if I had to be with others all the time. Since the dementia, I have grown more intune with my need of solace. I used to worry what others were thinking, but I don't care any more. For the first time, I had a favorite nephew come over and I did not go to meet him. I let my husband sit with him. I had showered, I was still exhausted from my family reunion the day before and I was laying on bed...I think my husband felt I was wrong not to get dressed and go down, but I just couldn't...I was feeling physically sick...and I just couldn't force myself to go down to be with them no matter how much I love them! I don't know if you can understand this, but I think you can. It is not something I have control over. I am just learning to live with it. I can't imagine what I'll be like in another twenty years!
Thanks for your wonderful messages! Keep on reading and writing. I truly enjoy it!
Your friend, Leah