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Asking for Help
dadcarer
Monday, November 03, 2008 at 09:54 AM -
Family
N.C.
Tuesday, November 04, 2008 at 12:00 PMIt is nice to know that Nov. is the month. I often wonder that since today lots of families have previous marriages and stepchildren and etc, lots of families actually are in the middle of trying to bond togehter to help or fighting against one another in the battle of the rights of caregiving.
I guess it is sad that some families are split like that and often it is the family of the latest marriage that helps out. I wonder sometimes if it is possible for everyone to help out? It is time for all memebers of the family or step family to realize that caregiving for a dementia family member is a lot of work and that everyone should try to help one another or at least be understanding or supportive. Especailly when both marriages have the same father or mother who has dementia.
In our case, my husband's stepbrother is sort of there to call his Dad from a long distance in the home country in Europe. But lately he cannot offer more than that. We also decide that his Dad cannot travel back to his home country anymore because he is too confused. His elder son has health issues also. The sad thing is the family was not bonded well before he got sick, so it is more distanced now. This elder son has never seen him again in 45 years and his Dad has never gone back to the country for 45 years.... His Dad is a bit antisocial and extreme so he really has never known his elder son closely. They wrote each other a lot and call often.
I myself don't have the experience of many previous marriages in the family, and I realized some previous marriage actually cut off the contact and etc.
Perhaps it is the fate of the person with dementia: if he never bothered to be closer to his child from the previous marraige, then they will never be close. It takes 2-way street. Can we really say the previous marriage's family is bad?
Since we never know what is to come for our own future when we may get very sick and need care, we need to have peace with family members early on.Sometimes I believe that the caregiving needs long-term planning. Not the insurance, but the true love in the family. When we wait until it is too late to do that, it is really too late and difficult.
All the best,
Nina
re: re: Family
Connie Moore
Wednesday, November 19, 2008 at 07:47 AMI too don't get this with families. My 19 year old granddaughter is the only family I have helping me. She is married to a wonderful service man that is staioned thankfully where we live. This young man returned just recently from Afganistan and now suffers from severe PTSD and is in treatment. With so much going on in their young lives they are the ones here helping me with my husband. No one is coming for Thanksgiving and his parents have invited them to come to Marshall TX. My husband and I were invited to. The other family members call but don't come around. I just found out yeaterday that a fall I took on the 4th of this month broke my hip. I had been taken to the hospital by ambulance and many xrays done and was released after my blood pressure was stabalized. I opened a letter from the hospital saying I needed to see my primary physician because they had found two small fractures in my back and hip. Yesterday morning I took the letter and off to the doctor. I was immediately sent for a bone density scan and yes my hip is fractured and yes I have osteoporisis(now on Boniva) but I have had this over 14 days now and nothing was done. I have pain but not to bad I have survived witout pain medication and refused to take it now. Now all these well meaning family members that aren't coming for Thanksgiving or just to see my husband are telling me I am crazy for considering a 5 hour trip to go with my Granddaughter and her family with my husband to celebrate Thanksgiving. My Grandsons mother is an RN and are welcoming us into her home with open arms knowing that even though it is the disease that cause Rays out burst of anger is willing to help him and me.This family has remodeled their bathroom to accomidate his wheelchair, not one in our family has done this and this family is not wealthy but did this out of love and concern for us. I don't get it I some times think they think we need to just live in this little box and only call and say what we shouldn't be doing or the mistakes they think I am making. Get with the program families if you don't come around and just call, quit making negative opinions and keep them to yourselves. If you want an opinion then come here see for yourself and then you have a right to speak other wise leave your opinions to yourselves you may think your helping but your not. I say caregivers make the decision on how you want to handle your own situation and go for it. We are going away for the holidays and we will have a great time. Yes it will be hard lots of medical equipment to travel but this could be our last holiday together and I plan to make the best of it. Happy Thanksgiving to all. Enjoy the holidays and may God be with you in your travels, grab the best in life and leave your worries at home. Connie
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Mission in Texas
Connie Moore
Thursday, November 06, 2008 at 05:39 AMThank you Carol again you are right on the mark about Alzheimer's and giving out as much information as possible to Alzheimers patients and their care givers. I too think that this month is the perfect time to get people more aware and more involved. I am trying to get our local paper to do a story about my husband and also I want to get this site some PR I know I am not the only one fighting this battle with this disease, I want to try to get other people to be able to find and use this site, it has helped me more then anyone knows but I know there has to be many more out there. They need this. What better time then National Alzheimers month to get the message out there. Thank you Connie
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I can't remember how many times I begged siblings for help in caregiving to no avail. So, indeed, I decided to take care of myself: after drawing up a list of all the important phone numbers, diagnoses and pertinent info regarding my parents who were in my sole care, I went on a 12-day vacation with my husband and warned the rest of the family that we would be unavailable by phone or email. Sometimes drastic circumstances require drastic actions. The vacation sure was fun!