Sign in

or Register now

OurAlzheimer's.com

See all of our health sites at www.HealthCentral.com
Monday, November, 09, 2009
  • Font size
Receive a FREE Osteoarthritis of the knee pamphlet. Start here.

Caregivers Must Realize That Imperfection Is Good Enough

Carol Bradley Bursack
Carol Bradley Bursack
Close
Carol Bradley Bursack is Answering questions
Author, blogger and eldercare columnist

For over twenty years author, columnist and speaker Carol Bradley...

Carol Bradley Bursack

Monday, December 29, 2008
View All of Carol Bradley Bursack's Posts
I was a part of the sandwich generation before the term was ever coined. I was also a people pleaser.  And never was that combination more apparent than during the holidays.   My mother had always loved holidays and made a big deal out of them. When I had children, I followed in her foots...
  1. caregivers must realize that imperfection is good enough
    Helene Moore
    Tuesday, December 30, 2008 at 10:17 PM

    Dear Carol,

    You are so right in everything you said here. I find it amazing looking back, at how much a person can do when they have to.

    I also wanted to comment about decisions, your first gut reaction is usually the right one, and anyone making decisions should remember not to go back and rehash what they did. We all make mistakes, but we move forward.

    Happy New Year.

    Love and kisses Helene

    Reply
  2. Holiday madness
    Connie Moore
    Wednesday, December 31, 2008 at 07:52 AM

    Carol you wore me out just reading it. I like you have always been a prefectionist and I also have OCD. I did all the holiday deocrating like my mother which growing up wasn't a lot.We had to move a lot when I was a child and my mother did the best she could with very limited resources.

    One Christmas I remember as a child we were in a cheap hotel room. My father had called again and told her to pack the car and move however many miles to the next home. He was a wanderer. Here we were Momma me and my three older syblings. I think I was 7 any way she put me to bed and I started crying as always my mother took me in her arms to comfort me. I told her Santa couldn't find me I had already mailed my letter from where we had been living. My loving mother assured me Santa was special and he would never forget me. My mother had almost no money. She got out a sock and laid it on my pilow and tucked me in. I woke the next morning to an orange, apple and a piece of ribbon candy. I was thrilled. My brother and sisters were not. I was grateful for what Santa had left because there was a note in there that said next year would be special. That was the last time my mother allowed her wandering husband to move her and her children at Christmas.

    My husband having alzheimers and the strenth I gained from watching my mother endure over the years made me realize this year it isn't quantity, the meal the gifts but Jesus birthday and who you are with. My beloved husband and I were alone. No turkey no gifts and sadly he has worsened. He was with me this year and I decorated the house for him Okay me too. I fear this will be our last. He moves to Hospice this next week. Home but hospice he is showing signs of organ failure.

    Thank you all for your support and I hope you enjoy the real Christmas story of my childhood I shared with you. I have learned perfection is not always so important. It's quality and not quantity.

    Fearing what this new year brings. Peace I pray for and an end to my husbands suffering and him going into Gods arms.

     

    Happy New Year dear friends.

    Connie

    Reply
    re: Holiday madness
    Carol Bradley Bursack
    Wednesday, December 31, 2008 at 08:02 AM

    I'm praying for you, too, Connie. You have hard times, but you appreciate the love you and your husband have shared. You will never lose that. And hospice will help make his transition as comfortable as possible. They are a wonderful support. Take advantage of all of the services they offer, including the chaplain.

     

    Blessings,

    Carol

     

    PS - I loved your story! What a great tale about the true meaning of Christmas, and what a wonderful tribute to your mother, who must have been awesome.

    c

    Reply
    re: re: Holiday madness
    Connie Moore
    Wednesday, December 31, 2008 at 08:13 AM

    Thank you Carol

    My mother is wonderful she is 79 and runs rings around me. She was desserted by her mother at the age of 7. She helped her blind grandmother raise her syblings. She has had a very difficult life but is the strong woman she is because of it. I have always used her as my role model. She has encouraged me to better my life and never stop trying never give up and you are never to old to learn more. She has given me so much. Not finacially she didn't have she gave me the resources to earn it and to gain respect by giving respect. I love her dearly and Thank God everyday for blessing me with such a loving giving mother many do not have what I have had. People get so caught up in money now days and they are losing so much. I had a fire at my house ten years ago I learned the true meaning of life. Possessions are just that it's what you carry in your heart and memories that carry you though life. My husbands illness have strengthened those values. I am still learning and loving my gifts from God.

    Connie

     

     

    Reply
    re: re: re: Holiday madness
    Carol Bradley Bursack
    Wednesday, December 31, 2008 at 08:19 AM

    Wow! Your mom really is something. She's a role model to everyone. May we all pick up some of her - and your - strength and values.

    Carol

    Reply
  3. Letting Go and Acceptance
    Rainbow Painter
    Wednesday, December 31, 2008 at 09:08 AM

    My mother, at the advice of her doctor, will be moving to a permanent facility for Alzheimer's and in knowing this before the holidays, decided to let go the usual festive decorating and hustle and bustle of the season and just enjoy......each other.

    Our family "tradition" of the holidays was, in the past, before our father passed away last year, to do it all up right. Big tree with all the trimmings, decorating every room of the house and outside as well, with baking and candle lighting events around the town.

    Well, not this year after our news of submission, I made the decision to focus this holiday on Mom and what brings her the most joy. Her most joy is having her love ones around her, with her, beside her. No, she doesn't carry on a conversation and she doesn't interact with us, per se. But we can see it in her facial expressions like a light coming back into her eyes that she is still with us. She doesn't want to eat the traditional Christmas feast we serve, she eats her Fruit Loops cereal, but she sits at the table with us and listens to our laughter and conversations. And we take pictures, candid and posed and then I will make a photo album for her to have with her, in her new home, in hopes of jarring a moment in time for her to remember.

    In this new transition for not only her, but for ourselves, we found acceptance and more love and more respect and most of all, we found how to feed her soul and her soul smiled back at us with a light in her eyes.

    Reply
    re: Letting Go and Acceptance
    Carol Bradley Bursack
    Wednesday, December 31, 2008 at 09:27 AM

    What a wonderful testimony to accepting "what is," and making the best of it. We must never forget that giving what really matters, which is often love and attention rather than things, is especially valuable in these later stages of dementia. You are an inspiriation to us all.

     

    Blessings in the New Year,

    Carol

    Reply
  4. Are nursing homes as bad as people say? Meaning care?
    Robert McClellan
    Wednesday, December 31, 2008 at 11:37 PM

    I have alway's heard that nursing homes are nowhere to go. The care and smell are not real good. How true is this?

     

    Reply
    re: Are nursing homes as bad as people say? Meaning care?
    Carol Bradley Bursack
    Thursday, January 01, 2009 at 08:45 AM

    Nursing homes are very different from one another. Please don't assume nursing homes are all bad. Many people blossom under the right care in a good home. I do recommend that a family member or friend be a regular visitor. Elder's need familiar faces and to know they have an advocate. Visit any nursing home you are considering and see for yourself. Are the residents treated with respect? Are they clean? Are there activities? How are the hands-on caregivers - the CNAs - treated? Do the nurses and administration treat them with respect? That means less turnover. Are the residents treated as individuals?

     

    Morning wakeup time may mean unpleasant odors coming from rooms, as many people are incontinent and need cleaning up, but that should be brief. A good nursing home doesn't smell like a hospital, nor does it smell dirty. It should be reasonably pleasant to visit.

     

    Please don't assume they are all bad. Different parts of the country have vastly different choices, but you should be able to find an acceptable home in your area. Your locak ombudsman, who you can find through your state aging services, should be able to give you an idea, as well. But nothing replaces onsite visits.

    Carol

    Reply
  • Font size
  • Bookmark
  • Thank you for your input
  • Save
  • RSS
  • Report Abuse
This video animation shows how beta amyloid plaques are created in Alzheimer's patients and how they affect the progress of the disease.

Ask a Question

Get answers from our experts and community members.

View all questions (883) >