Sunday, February 12, 2012

Scholars Coming Forward with Their Alzheimer’s Stories Helps Reduce Stigma of Dementia

Brilliant people get Alzheimer's and other dementias. Three rather public figures that come to mind are recent Nobel prize winner, physicist Charles K. Kao, retired psychologist, professor and Alzheimer's activist Richard Taylor and the husband of retired Supreme Court Justice Sandra Day O'Conno...
10/26/09 11:15am

Carol,

 

You are right on the issue! The stigma is still out there. I think there are 2 situations: the first situation is about the image and pride so the patient does not want to face it or admit it. The second one is about being improper and being a misfit that requires caregiver's divine attention.

Frankly, even Dr. Kao didn't really announce that he has AD like Reagan. His family was saying that subtly. (Typical of any family who cares about great image.)

I think this stigma somehow will stay forever as it is human nature to have pride and dignity.

The only thing that really matters is not to hide it. If one has such stigma and does not face the issue and gets treatment or a proper living arrangement with caregivers, then it is a big porblem (just like the beginning when we tried to help my FIL as he lived alone without any help in 2004/2005.)  I think people will still try to be subtle about unless we were Reagan or Charles Heston who died with AD as well. Celebrity is different and we as common folks are another matter.

The important thing is to educate the public about the right things to do for AD patents and that the stigma for mental illness in the dark age in the 60s or earlier has to go away.

 

Nina

10/26/09 11:31am

Thanks, Nina. You are right on as usual.

Carol

10/27/09 12:13pm

Thank you for such an interesting article! It was very encouraging! :) Another good thing about famous people sharing their stories is that it can also help raise more money to help fight this disease!!!! We have seen this with Michael J. Fox and Parkinson's Disease (which my dad had), and it's been such a blessing!

10/27/09 2:54pm

Yes, it's a huge help. Bless them for their courage!

Carol

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1454) >