Monday, February 13, 2012

My Beloved Husband is Gone

Dear friends,

 

I don't know where to begin I already know how it ends.

 

I have been here and shared with everyone my role as the care giver of my husband with alzheimers. My husband was the love of my life. Over the past thirty years we have shared so much, love, friendship, children and grandchildren. We had the priviledge of sharing in the joy of our only great grandson Mikhail. I came here to this site when I could no longer live in denial that my beloved had alzheimers. I have told you of the struggles. Ray has had five heart attacks lost both legs,congestive heart failure and COPD but he kept on fighting and with each new trial he walked closer with God.

 

Friends my beloved husband lost his struggle with all his diseases on Janurary 19 2009 at 9:35.

 

I hope I can get this right so you will all see that this wonderful man left me went to heaven with the same grace and loving way he accepted the loss of both legs.

Ray started getting really bad on friday 2-16-09. I knew he was getting bad I just didn't know how bad.  I started sleeping in his room I dared not leave his side.

 

On the 17th at about 2:00 in the morning I realized he was fighting to hang on. I washed his face and kissed him and sat on his bed. I opened up his Bible and laid it on his chest. I read 23rd Psalms to him and told him I loved him. I then told him with his bible still on his chest that when he was ready to go with God, I assured him I would be alright yes I will miss you I said and yes I will grieve but I will honor you by continuing on living and fighting to let the world know all you have done for our country and to try to help others battling this same disease. I never slept.

 

On the 18th our granddaughter Mackenzie came over and shaved and washed her Poppy's face. She kissed him and sat on his bed. Mackenzie took his hand and said " Poppy I am here and I love you. Poppy please don't worry about Mimi I will take care of her for you. It's time for you to walk with God." That was the last time Ray opened his eyes. Mackenzie went home and told me call if anything changes.

 

Our mother was with us then. Momma and I took turns washing his face and telling him we loved him. Momma loved him as her own son and he loved her so much his loved shined in his eyes everytime he looked at her.

 

I slept on the floor that night and again called hospice and they told me he was just in pain and first thing Monday morning his nurse would come and they would change his pain medication. Momma and I knew she was wrong.

 

All night long bathing Rays face and praying for God to help I was standing by his bed when all of a sudden I so strange. For days Ray had weakly kept pointing at the ceiling trying to tell me and Momma something. That time he did not raise his arms he didn't have to because his roomed filled with loved ones that had gone before him.  I don't know how I knew I saw no faces but so many spirits of loved ones that had gone before him were in the room with us but I was not frightened there was so much love all around the two of us.. I never had met my Great grandmother but she was there holding her Bible,my beloved Uncle who had passed many years before was there. The room was so full of spirits I could not move. Ray settled down and the room changed their presense were still there but I could breathe and move then. They didn't leave they just relaxed and waited.

1/25/09 9:38am

Connie,

Your story is beautiful.  I am so sorry  to hear about Ray but sounds as though the peace that you and Ray were looking for finally came.   God was and is with you now.  Through Ray he showed you what love turly is.   Take care and write when you can. Your Al Pal.

Lesa

1/25/09 12:45pm

Oh Dear Connie,

 

Your post made me cry! I am sorry Ray is gone. It was nice that you and your Mom were there with him and all the kids who came to help him out... You got a wonderful family and I hope Ray will bless you in heaven!

It is so sad. Please find comfort in the Lord and know that we still support you and will look forward to seeing your post in the future!


Love,

Nina

1/26/09 11:09am

My spirit sister, you have used such beautiful words in testimony of Ray's life.  You know how much I admire the way you attended to him even to its affecting your own health.  The love you two shared was stronger than dementia.  I am so happy that you wrote about the fact that the caregiver needs to realize that the "real" person is locked up inside, but he/she is still there.  Thank you so very much for sharing such insight with all of us.  May God continue to bless you through the grieving period and beyond.  I look forward to reading more of your insight in the future.

Leah

1/30/09 11:32am

I have been a visitor to this site for a relatively short time but have read many responses from you to others and have always been struck by the depth of your wisdom, compassion and willingness to share what you have learned.  You have touched many lives I am sure and wish you all of God's comfort as you face these days without Ray. It can be very hard to balance the grief over the loss with the gratitude for days you were able to share together.  Do try to remember he is now free of all of his problems, and I'm quite certain is still with you, loving you and watching over you.

Cynthia

1/31/09 7:54am

Thank you so much. I have physically lost my beloved but he left me so many gifts. You can't touch or see them but he is now whole well and in Gods arms. He left me with one last kiss I wll forver feel on m face. One day soon I will tell all of you how wonderful his passing was and the peace God took him with.

God Bless all of you. Connie

2/ 1/09 6:15pm

Hi, Connie,

 

I apologize for not posting sooner, but I've been out of town for most of the week. I want to tell you how sorry I am for your loss of Ray. I also want to commend you for the grace that you've handled this difficult journey with your husband. I truly appreciate how much you wanted him to be happy and to be at peace. Based on what you've written, I believe that you succeeded (and Ray knows this)!

 

Also, I want you to know that I plan to make a donation in Ray's memory to the Alzheimer's Association. In doing so, I hope that researchers can find a way to eventually stop this terrible disease.


Please do take care of yourself! You are a GREAT person!

 

Dorian

2/ 2/09 3:24am

Dorian thank you so much. Everyone on this site has helped me make it though this odicy of alzheimers so much. No matter what time of day or night I have not felt alone. I have been able to open my computer at some of the most terrifying moments and been able to come here read post and comments and the comfort it has given me cannot be measured. As a care giver when you finally have a moment and they are resting you feel so lost and alone all you have to do is open your computer and you know that you will find a post to read that helps or just be able to pour your heart out. I will never leave this site. I want to be able to help others make it through this difficult journey. I have been through so much medically with Ray and myself but this by far was the worst most frightening and lonely feeling in the world. You feel so totally helpless. Sharing here keeps you going I know it did me and if reaching out to just one person helps I will feel it worth while.

 

Thank you so much for your donation in Ray's name. he sent me many flowers and cards over the years but we have both always felt flowers die do something that helps others and that last forever. Thank you there is no better cause. Connie

2/ 4/09 9:25am

We've talked about this before, Connie, but I tear up everytime I read your eloquent post. I hope you are healing. Ray will always be with you, but now he'll be without the pain. Just wanted you to know I was thinking of you.

 

Blessings,

Carol

2/16/09 6:43am

Thank you Carol and everyone who has read our story it is four weeks today yet it still dosen't seem real. Yes he is gone and he suffers no more they keep saying this will get easier but it is so hard to see that right now. I can't leave this site or the many friends I have made here. I am trying to keep living and reaching out but I feel as if I am still dreaming and will wake up. No I don't want him to suffer any more but I miss him so much. Everyday I wake up at the same time and think I need to get up so Ray will sleep now but when I get up at 2:00 he is still gone and I cannot go back to sleep old habits are hard to break so I get on here and start reading all the post and try to answer as many as I can.

 

I took psychology classes in college but nothing can prepare you for this. You can't prepare your self for Alzheimers nor can you for the death of a loved one. It ironic that in so many ways you grieve the whole time your loved one has this horrible disease as you watch them leave you a little more each day. I prayed for God to take Ray swiftly and painlessly and he did so why can't I say okay he's not suffering any more and be happy with my prayer being answered because the human loving part of me misses our life together and it will never be the same for me again.

 

Without this site I would not have made it during this journey nor would I make it now without all the love and support I get from here. If I can say just one thing to make one of your smile or make your journey easier I will. Thank you so much. Connie

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