Thursday, May 31, 2012

Life after Alzheimers

By Connie Moore Wednesday, March 04, 2009

No more 2:00am wake ups from my beloved husband. He is gone now as you all know. I am so sorry I haven't written to many of your comments I have read them but not commented on all. It has just been so over whelming for me. I haven't left just reading them and being silent. I am back.

 

Many times before Ray left when it was early and the house was silent and I was exhausted and frightened I would write and ask is there life after Alzheimers and if there is what is it. I have the answer now and I hate it. If I chose to my grief would completely do me in. I have to rejoin the living now and that is what I am trying to do. 

 

My body isn't really cooperating with me or my mind. I run around from room to room thinking I need to do something and become lost in this now silent house. It's strange the little things you miss. The quick dashes to the grocery store while your loved one sleeps. I have all the time in the world now to do only what I want but now I find what I want is no longer here. It's so difficult when you are caring for your loved one to see past the stress the caring the day to day things we have to do to suvive and keep them going. We think we are exhausted and can go no farther and we think we can't keep doing this when in reality I now know that is what kept me going that is what kept me grounded. Caring for Ray was one of the hardest but most loving things I have ever done in my life. Would I change things NO only to have had him longer. His pain is gone mine is still going on. Just when you think you can't do this any more you can some where down inside us all we find the strength to get up each day and continue on. I am doing that now it is the only thing I have left to honor Ray by. I truly wish you all could have met him not a more loving and devoted person do I know. He suffered so much and gave so much of him self I can't just stop living he wouldn't want that.

 

My life has changed so dramatically. The world continues on and so shall I. I have not only been having to adjust to living with out Ray but a week after his funeral I found a leak in my bathroom. Not just an ordinary leak a slab leak. My house is torn apart from them breaking part of the foundation of my house to repair the broken pipe. It has been hard taking my house a part so quickly after Ray left nothing looks the same. In the beginning I felt as if by having people in the house doing repairs and painting that I felt as if it was erasing his memory completly no one can ever do that no matter what changes are made around here He lives in my heart and mind now. It occurred to me one day as I was working If he were still here he would have been right in the middle of it. Before Alzheimers even after the loss of his legs that man was amazing. Someone would come in to do work if he couldn't do it himself and he would be right at whoevers side handing over tools or fixing tea for them to drink. Ray was always up for any new project. As I do everything right now I know he is watching over me and would be offering advise if he could. I still stop and think if he would do it this way before I continue on. Ray taught me so much. The thing he taught me that sticks with me the most is his never ever give up spirit. No matter what life hands us you don't stop you continue on.

3/ 4/09 9:14am

 As I think back to what I go through at times and feel like I have nothing in my tanks I come here to this site and find that I am not alone. This it self is fuel in the tanks! And to read your words I am selfish as I read, wanting to believe you are writing to me. How your words must relate to others as they do me touch me in ways only US, the caregivers could ever understand . Your strength is unmatched in my home. you have been there for me at all the right times. How nice it would be to live closer to you and be able to repay your help by helping you at home. who knows? I have help now and I could pop on over!  hehe

 Connie, I normaly would never speak for others but I am sure I can thank you for your support that you give out so graciously for all of us that you have touched. Certainly you have touched and helped my life.

 "Thank You"

 Until we get to talk again I wish for you health and happieness.

 

Hugs for you

Always, Bill

3/ 5/09 4:55am

Hi Bill

Thank you. I wrote the post because that is truly what is in my heart. It is what I learned during my journey with Alzheimers. It is the gift my husband gave me. I had all the same feelings all the frustrations you are going through right now. You are not alone no one going through this is. This site needs more advertisement. Many more are out there that have no knowledge of this site and that has become my new mission in life. I will find a way to help bring others here. Here is where as care givers we find the support the strength to face each new day and each new challenge. We don't have a hand book to follow and no two patients are the same but we all share a common bond caring for a loved one with alzheimers. We can all survive this we can all help each other survive this just by saying you are not alone. Keep writing keep sharing you frustrations and your joys. Take care. Your friend in Texas. Connie

3/ 4/09 11:06am

Connie,

I read what you wrote here and I am quite moved. You said we all do the best and the right thing. It strikes my heart so. You know how all of us caregivers/family feel. Yes, there is life after Alzheimers, and I hope you will again pick up what you used to like or do and become active in the local community again! I am sure you are doing so well! I am surprised you can write this nice post after what happened and so soon.

Your posts have helped me a lot and made me feel we are not the only one.

That is why we need this support group, online or local.

Thanks for your post and I will read it again sometimes because it is so nicely written. I can feel what you said or felt.

Take care and I hope you will soon find what to do again for yourself.

 

My father-in-law's house is also old and we are in the middle of unclogging this big clog by the plumbers. They said we would need to fix the old rusted pipes one day. The tree root came too far in the old pipes! We do have lots of problems. We even caught 3 squirrels and hope that is it and we will animal proof the attic. Then we need to fix the broken insulation and woods in the attic... It is hard to know where we will stay. My FIL may stay here or he may go to a nursing home next year because this house is really getting too old and needs lots of repairs without him being in the house.

Like you said, we all try to do the best!

 

Thanks and take care,

Nina

3/ 5/09 5:05am

Hi Nina Thank you. You have helped me so much everyone on this site has helped so much. I wish I could reach in my computer and give everyone a hug. I could not have made it without all the dear friends I have made on this site.

My house is actually only 15 years old. The problems I am having are unusual for a house this age but this to I will survive. One of the biggest lessons we learn during this journey is survial mode. In what ever form we can find it we will and have to survive. That is the legacy we pass on. How ever what ever it takes you honor yourselves your loved ones by continuing the battle they are no longer able to fight. Their choice has been taken away when each faced the diagnosis. We as care givers fight the fight for them now.

I will never stop loving and missing my husband but he was such a fighter I can do no less. Take care dear friend. Hugs Connie 

Leah, Health Guide
3/ 5/09 3:32pm

My dear friend, once again you are reaching out with your heart to help alleviate the pain and guilt felt by others who have lost or are in the act of losing a loved one.  Your words are valuable for anyone who is grieving.  Keep writing, my dear; you will become stronger the more you write--and so will will your readers.  God bless you, Connie.  You are certainly blessing our lives!  Leah

3/ 6/09 6:25am

Hi Leah

 

Thank you for your kind words. I wrote what was in my heart with the hopes of aleast sharing my grief would benefit at least one person. This journey we all face is long and can be so disheatening. We think at times we can't do it but with all the support we get on this site it gives us strength. Talking sharing and trying to help others we help ourselves too. We are able to realize even though it seems we are alone in this we are not. Thank you my friend, Connie

Anonymous
deparker
7/16/09 6:51pm

Hi Connie,

I was just looking through some of the Alzheimer's info and found  your comments.  I to live in Texas and have a husband with EOA.

I am so sorry to hear about your husband.

My husband has had it for 4 1/2 yrs.

He can't carry on conversation any more. He loves to go to Church.  And out to eat. He gets so tired of staying at home.  He was such a hard worker he was my rock.  I miss him so much.  Sometimes he doesn't seem like my husband any more.  But I love him and will take care of him as long as I possibly can.

I have so many questions I would like to ask you would you mind emailing on our private email address.

Debra Parker from East Texas

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By Connie Moore— Last Modified: 12/19/10, First Published: 03/04/09